visit with gastro

chicoturner

Mary, I am happy to hear you
Mary, I am happy to hear you are with family! That helps ease the pain! I am sorry you are experiencing so much pain as that can really wear you down. Maybe after a few days on the pain meds. it will be more affective. I will certainly keep you in my thoughts and prayers.
Best to you. Jean

msccolon

Lori-S said:

UGH Mary
You sound a bit discouraged. I'm sorry that the pain pills didn't work out for you. They think that adhesions might be the culprit?

you are right, I'm feeling a bit sorry for myself!
I have my ups and my downs, I guess the downs were getting to me. I'm feeling a bit better, although I'm still dealing with the pain. I've decided I've spent enough time feeling sorry for myself about the pain, I'm going to insist on better pain meds at the oncs on Friday and just be done with it until the scope on the 1st and the results. This too shall pass ...
mary

traci43

msccolon said:

yes, I had HIPEC in 2009
which is the procedure that went so bad with so much infection, leaving lots and lots of adhesions. That's why we figure it's probably scar tissue, but who knows. I'm actually NOT hoping for a clear colonoscopy, I'm hoping they find something they can fix. The other option's going to be finding someone willing to go into the abdomen/pelvis with an already heavy adhesion burden to find out what the problem is . I guess not knowing is the worst ... no, I think the constant pain is the worst!
mary

Wow, Mary
Mary - That's too bad. I guess I'm really lucky in that my HIPEC went well. Of course that luck was short0lived since I've got a recurrance. I know that Dr. Lowy at UCSD has gone back and removed adhesions from one of his HIPEC patients. I'm going down to see him in a few weeks, as soon as I get the referral from my insurance. I hope htey find out what's wrong and fix it. Good luck to you, Traci