Twitchy Lips

staceya
staceya Member Posts: 720
edited March 2014 in Head and Neck Cancer #1
No kidding. It just started and it is the weirdest thing.
It goes nicely with the neck cramps.
Does any one else have this, and what makes it go away?
Thanks
Stacey

Comments

  • Glenna M
    Glenna M Member Posts: 1,576
    #2
    Nothing twitching here
    Stacey, I'm one year post treatment and have the neck problems but nothing with my lips yet. Hope this isn't something I have to look forward to.

    Interested to hear if others are having this problem also.

    Glenna
  • D Lewis
    D Lewis Member Posts: 1,581 Member
    #3
    Ha. No twitchy lips yet...
    I did get a shaky lower jaw today. Got my first post-radiation dental scaling and cleaning today. I was unsure about my gumline along the back molars, on both sides of my upper jaw. Gumline is sore and has receded somewhat, away from the roots of my crowned back molars. I was afraid the scaling was going to be really painful, so I asked the hygenist to apply a topical numbing product to it first. Worked like a charm. No pain at all, but I was so tense that my lower jaw was all shaky.

    Deb
  • pascotty
    pascotty Member Posts: 174 Member
    #4
    D Lewis said:

    Ha. No twitchy lips yet...
    I did get a shaky lower jaw today. Got my first post-radiation dental scaling and cleaning today. I was unsure about my gumline along the back molars, on both sides of my upper jaw. Gumline is sore and has receded somewhat, away from the roots of my crowned back molars. I was afraid the scaling was going to be really painful, so I asked the hygenist to apply a topical numbing product to it first. Worked like a charm. No pain at all, but I was so tense that my lower jaw was all shaky.

    Deb

    Not lips
    My lip hasn't started twitching but my right Eye has. I feel like igor ha ha. I guess it's just another side effect to mark down on the list of many get xxxx
  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    #5
    yes for my husband
    Jim's lips do twitch and he didn't have that pre-treatment. I don't know what could cause it other than some disturbed nerves in that area.

    Not really obvious to anyone but me.
  • D Lewis
    D Lewis Member Posts: 1,581 Member
    #6
    pascotty said:

    Not lips
    My lip hasn't started twitching but my right Eye has. I feel like igor ha ha. I guess it's just another side effect to mark down on the list of many get xxxx

    What hump?
    Do you pronounce that "eye"-gor? Sorry. Young Frankenstein... Must be Halloween sneaking up on me.

    Deb
  • Greend
    Greend Member Posts: 678
    #7
    Trigeminal nerve
    Look it up. I am getting an MRI today to validate scar tissue affecting the trigeminal nerve. Causes the tension in the neck, numbness to the jaw (in my case, there are actually three nerves that can be affected), tongue and lips.

    My ENT wants to try steroid injections to see if that will help. I will keep you posted.

    Denny
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #8
    Twitchy Lips ~ Song or Musical Group
    You might be able to include this within the long list of symptoms that we are considering as song titles or a musical group name.....

    Group Name = "The Twitchy Lips"

    Song = "Everytime that I see you, I get Twitchy Lips"

    Best,
    JG
  • staceya
    staceya Member Posts: 720
    #9
    Skiffin16 said:

    Twitchy Lips ~ Song or Musical Group
    You might be able to include this within the long list of symptoms that we are considering as song titles or a musical group name.....

    Group Name = "The Twitchy Lips"

    Song = "Everytime that I see you, I get Twitchy Lips"

    Best,
    JG

    additions to the song
    ..quickly followed by neck cramps..and some spitting up..
    I would want to fit in the bit about someone saying " I thought you died"
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #10
    staceya said:

    additions to the song
    ..quickly followed by neck cramps..and some spitting up..
    I would want to fit in the bit about someone saying " I thought you died"

    Song of Symptoms
    Sounds like we need some input from our resident musicians Denis, Joe or Mick (sorry forgot you other musicans at the moment)...

    We need to find that old post of similar topic and include these an come up with a CSN H&N "Song of Symptoms", LOL.....
  • Greend
    Greend Member Posts: 678
    #11
    Skiffin16 said:

    Song of Symptoms
    Sounds like we need some input from our resident musicians Denis, Joe or Mick (sorry forgot you other musicans at the moment)...

    We need to find that old post of similar topic and include these an come up with a CSN H&N "Song of Symptoms", LOL.....

    Band
    I will be the lead singer...oh wait a minute...my voice is gone...:>)
  • Hondo
    Hondo Member Posts: 6,636 Member
    #12
    Hi staceya

    Nerve damage, I have it on the left side of my face and lips, also the left ear at times. I also get numbness in my tongue it starts on the left side and hurts like hell.
  • liveagain
    liveagain Member Posts: 15
    #13
    Skiffin16 said:

    Song of Symptoms
    Sounds like we need some input from our resident musicians Denis, Joe or Mick (sorry forgot you other musicans at the moment)...

    We need to find that old post of similar topic and include these an come up with a CSN H&N "Song of Symptoms", LOL.....

    song of symptoms
    Can't forget the sweet ringing in the ears and just holding your hand makes my hands go numb!
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #14
    liveagain said:

    song of symptoms
    Can't forget the sweet ringing in the ears and just holding your hand makes my hands go numb!

    L'hermitte's
    When I bow my head in your presence, I feel the electricity shooting through my limbs....
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #15
    Hondo said:

    Hi staceya

    Nerve damage, I have it on the left side of my face and lips, also the left ear at times. I also get numbness in my tongue it starts on the left side and hurts like hell.

    Twitchy lips
    For some reason, every time I read twitchy lips I get the image of Clint Eastwood saying, "go ahead, make my day.".

    My lip doesn't twitch but under it does. Down by my jawline where my tumor was attached to my jaw. It's annoying. The other thing I notice is that side is getting more droopy. Boo. Also I am getting a weird dimple in my chin I never had. Don't like. The twitching on my left side insnt that bad. I get really bad eye twitches when stressed. I mean bad. The last year I was managing McDs it was unbearable.

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