Just wanted to post a update

unknown said:

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What will you do with all that money...
Watch out Bill Gates, here come the Marshalls....lol

Thanks for your reply. Steve was staged at 3. We had a stent placed and
it caused a bunch of trouble.It worked, but was uncomfortable. Also with each PET scan it showed
the stent had moved.
We went through 3 rounds of in hospital chemo
consisting of 5-fu, cisplantin, doxitaxil. The docs were really
happy with his response to the chemo
and we were getting ready for surgery.
Then DVT hit with multiple emboli going to each lung. The surgeon wanted to wait for some healing
from the clots before surgery. On june 30th had another scan and according to the scan the cancer had grown.
and we were no longer a candidate for surgery, but still not other organs involved. During this time the stent was causing more and more
problems until it finally moved enough to let the esophagus completely occlude again. So on July 14th a new stent and J=tube was placed.
This stent has caused no problems at all so far. He eats anything he wants. The aug PET showed the cancer had not changed. No growth. We started outpatient chemo in Late aug. consiting of
5-fu, cisplatin and irontecan?(sp) He has had two rounds and doing well.

He is able to eat what he wants and we use the tube for xtra calories. I give him home hydration the day after chemo and he has been staying on top of hydration by drinking a lot of gatorade and water.
Since the new stent, his weight has picked up. and the jtube is wonderful for sneaking in the xtra when he really isn't hungry.
He has his shakes of carnation breakfast, whey protien and whatever other fattining stuff I can find to stick in it.
eats what he wants all day, then at bedtime we put a can of ensure in the tube.
He has a good attitude now and really has improved. I am very proud of him.

I really question the June 30th scan. I wonder if the scan was lighting up cancer OR lighting up to the irritation that old stent was causing.
Even the med onc said that the nodes lighting up could be just reacting and not cancer. I have questioned this all along and the med onc knows my therory.

He is baffling the docs, I can see it in their eyes when we seen them. I am pretty know at the clinic and hosp and Steve's caregiver. They know they have to go through me first and I have been called the
"talker" of the pair.....lol. What they dont know, is I have a secret weapon in my caregiver arsinal. All of you... you all are my rock and I come here everyday to learn and draw strength to continue on.

Nancy