Hair

dixiegirl
dixiegirl Member Posts: 1,043 Member
edited March 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1
With everyone starting so close together I lose track of everyone and where they are...but many of you should be getting close to the dreaded day. Does your hair hurt yet? That's the best way I can describe the beginnings of it. Just very tender at the roots.

Just know that it won't be a good day, but my heart is with all of you! I gave some of my hats and scarves to my co-worker today for her mother-in-law which brought all of this back to the surface. I looked through the bag and it was almost hard to give them away, but that's what support is all about isn't it? Give what you can to those in need? She started rads today to her brain. I know scared, and my prayers are with her and her family. I am so thankful for all of us. Although we have lumps and bumps everywhere, we are very lucky people to have NHL. I am grateful for all of us.

Take care folks! I care deeply for all of you!

Beth

Comments

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #2
    Not yet...
    Hi Beth,
    It's only been 7 days today for me, so thats probably a little too soon to start loosing hair...right? My roots don't hurt and I'm not getting fall-out in my brush or in the sink trap after washing. Soooo...(knock on wood) maybe I'll have a week or more to go still. I read it can start anywhere from 7 days on....we will see! I have some scarves, doo-rags and a cute short cut wig all ready to go when it does happen.
    Love...Sue
  • truckingalong
    truckingalong Member Posts: 445 Member
    #3
    Yep - losing hair now
    Hi, Beth and Sue,

    My hair roots don't hurt or not least yet. But I was surprised that yesterday I saw my legs becoming bare then I pulled my hair and it just came right off!! Two days ago, I washed my hair - they felt rather dry and limp then later that day I was cleaning the bathroom and saw one of my hairs down - this was when I started to wonder. My husband got real upset and I comforted him. I found this rather amusing - I don't care about the hair loss because they don't hurt me and I don't have to blow dry anymore!! I am happy about that.

    Now I am trying to figure out what to do- let my hair fall one by one, cut my hair real short or shave - I have not bought a wig yet but have a turban. My sweet father offered to pay for it. The wig is really for being in public and I plan to work from home using video counseling with my clients. But I am on medical leave and don't know when I am "ready" to work. God, this seems to go on with side effects with no prediction of when I can be up to work or down to rest. Think that few days before each treatment, I would be recovered mostly then be able to work 1 to 2 days - will that work? I hope so!

    Hope your bodies remain pain-free as much possible.
    Bless you,
    Liz
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #4
    truckingalong said:

    Yep - losing hair now
    Hi, Beth and Sue,

    My hair roots don't hurt or not least yet. But I was surprised that yesterday I saw my legs becoming bare then I pulled my hair and it just came right off!! Two days ago, I washed my hair - they felt rather dry and limp then later that day I was cleaning the bathroom and saw one of my hairs down - this was when I started to wonder. My husband got real upset and I comforted him. I found this rather amusing - I don't care about the hair loss because they don't hurt me and I don't have to blow dry anymore!! I am happy about that.

    Now I am trying to figure out what to do- let my hair fall one by one, cut my hair real short or shave - I have not bought a wig yet but have a turban. My sweet father offered to pay for it. The wig is really for being in public and I plan to work from home using video counseling with my clients. But I am on medical leave and don't know when I am "ready" to work. God, this seems to go on with side effects with no prediction of when I can be up to work or down to rest. Think that few days before each treatment, I would be recovered mostly then be able to work 1 to 2 days - will that work? I hope so!

    Hope your bodies remain pain-free as much possible.
    Bless you,
    Liz

    Shave for me...
    Hi Liz,
    I've decided as soon as the first clump comes out, to have my hair dresser come to the house and just whack it all off and then immediately shave my head. He's on speed dial and knows to get the heck up here with his scissors and shears. I'm not going to let it fall out in drips and drabs, cuz I'm just not geared for a daily episode of hair loss drama. I'll use my wig for chemo treatment days at the clinic, or public outings, but for the rest of the time here at home I'm going commando!..ha! Sometimes I sit and think to myself..."what a sight you will be climbing out of the shower Sue...3 bumps on your chest (all little)..(ha!) and a bald head to boot!" Then I just sigh and say.."oh well"! So much to take in and digest...ya know?...Love...Sue
  • truckingalong
    truckingalong Member Posts: 445 Member
    #5
    allmost60 said:

    Shave for me...
    Hi Liz,
    I've decided as soon as the first clump comes out, to have my hair dresser come to the house and just whack it all off and then immediately shave my head. He's on speed dial and knows to get the heck up here with his scissors and shears. I'm not going to let it fall out in drips and drabs, cuz I'm just not geared for a daily episode of hair loss drama. I'll use my wig for chemo treatment days at the clinic, or public outings, but for the rest of the time here at home I'm going commando!..ha! Sometimes I sit and think to myself..."what a sight you will be climbing out of the shower Sue...3 bumps on your chest (all little)..(ha!) and a bald head to boot!" Then I just sigh and say.."oh well"! So much to take in and digest...ya know?...Love...Sue

    Right on
    Ha ha ha - I like that, Sue - go commando around the house!! Thanks - I look forward to wig shopping because I love shoppinng for anything!

    Love,
    Liz
  • vinny59
    vinny59 Member Posts: 1,036 Member
    #6
    truckingalong said:

    Right on
    Ha ha ha - I like that, Sue - go commando around the house!! Thanks - I look forward to wig shopping because I love shoppinng for anything!

    Love,
    Liz

    hahaha
    great attitude Liz!!!! my hair hurt like hell after I shaved my head, tough to sleep! It feels a lot better now, It's the first thing to sweat now when I have my hot flashes! Hahaha..... Good luck guy's! Vinny
  • tcvine
    tcvine Member Posts: 174
    #7
    truckingalong said:

    Yep - losing hair now
    Hi, Beth and Sue,

    My hair roots don't hurt or not least yet. But I was surprised that yesterday I saw my legs becoming bare then I pulled my hair and it just came right off!! Two days ago, I washed my hair - they felt rather dry and limp then later that day I was cleaning the bathroom and saw one of my hairs down - this was when I started to wonder. My husband got real upset and I comforted him. I found this rather amusing - I don't care about the hair loss because they don't hurt me and I don't have to blow dry anymore!! I am happy about that.

    Now I am trying to figure out what to do- let my hair fall one by one, cut my hair real short or shave - I have not bought a wig yet but have a turban. My sweet father offered to pay for it. The wig is really for being in public and I plan to work from home using video counseling with my clients. But I am on medical leave and don't know when I am "ready" to work. God, this seems to go on with side effects with no prediction of when I can be up to work or down to rest. Think that few days before each treatment, I would be recovered mostly then be able to work 1 to 2 days - will that work? I hope so!

    Hope your bodies remain pain-free as much possible.
    Bless you,
    Liz

    Hair
    Hi Y'All.
    Sue - LOVE the hair attitude!!! Liz, same goes for you! I know it's different for you ladies, and I'm super impressed with your coping.

    Vinny, I just did my 2nd round and my hair started to fall out. Didn't hurt at all. But I did cut it down to almost nothing (without actually shaving). Now here I am almost 60, been bald as a bat since I was 23, AND I DO NOT LIKE THIS ONE BIT! I think it's because I have big ears and wear glasses, and, frankly, I look ridiculous. BUT, it doesn't hurt, and I think that by the time I go through round 3 I will lose the rest. It seems to come fairly suddenly 2 - 3 days after my infusion, and then it stops. And it is obviously not the worst thing can happen.

    Happy day, Y'All,
    Tom
  • merrywinner
    merrywinner Member Posts: 626 Member
    #8
    truckingalong said:

    Yep - losing hair now
    Hi, Beth and Sue,

    My hair roots don't hurt or not least yet. But I was surprised that yesterday I saw my legs becoming bare then I pulled my hair and it just came right off!! Two days ago, I washed my hair - they felt rather dry and limp then later that day I was cleaning the bathroom and saw one of my hairs down - this was when I started to wonder. My husband got real upset and I comforted him. I found this rather amusing - I don't care about the hair loss because they don't hurt me and I don't have to blow dry anymore!! I am happy about that.

    Now I am trying to figure out what to do- let my hair fall one by one, cut my hair real short or shave - I have not bought a wig yet but have a turban. My sweet father offered to pay for it. The wig is really for being in public and I plan to work from home using video counseling with my clients. But I am on medical leave and don't know when I am "ready" to work. God, this seems to go on with side effects with no prediction of when I can be up to work or down to rest. Think that few days before each treatment, I would be recovered mostly then be able to work 1 to 2 days - will that work? I hope so!

    Hope your bodies remain pain-free as much possible.
    Bless you,
    Liz

    Hi Liz
    It is hard to know what to do. I had semi prepared by cutting my hair in a shorter style prior to starting. When it finally started falling out in handfuls I just let that happen thinking maybe I wouldn't lose it all but let me tell you it was a mess and a constant reminder. I would not do it that way again. I would shave it and be done with it. I did lose it all so I really prolonged the whole process. I had a wig that I wore to work etc. and hats for around the house and non important errands. It was winter in Minnesota so no commando cuz I was always freezing!! I did find out that I have a nice shaped head and no birthmarks on my scalp! Haha! Now after being done for awhile it's about 3-3 1/2 inches long and ready for styling, maybe on Thursday. It came back thick and wavy. Hope this helps. Oh and I don't recall but if you are on R CHOP you will lose it all. R CVP maybe,maybe not. I have heard both. God bless. Mary
  • truckingalong
    truckingalong Member Posts: 445 Member
    #9
    merrywinner said:

    Hi Liz
    It is hard to know what to do. I had semi prepared by cutting my hair in a shorter style prior to starting. When it finally started falling out in handfuls I just let that happen thinking maybe I wouldn't lose it all but let me tell you it was a mess and a constant reminder. I would not do it that way again. I would shave it and be done with it. I did lose it all so I really prolonged the whole process. I had a wig that I wore to work etc. and hats for around the house and non important errands. It was winter in Minnesota so no commando cuz I was always freezing!! I did find out that I have a nice shaped head and no birthmarks on my scalp! Haha! Now after being done for awhile it's about 3-3 1/2 inches long and ready for styling, maybe on Thursday. It came back thick and wavy. Hope this helps. Oh and I don't recall but if you are on R CHOP you will lose it all. R CVP maybe,maybe not. I have heard both. God bless. Mary

    Hi, Mary, et al
    Hi,Mary, Beth, Tom, Vinny and Sue,

    I get ABVD treatments for Hodgkin's. My hair already started to fall day 10th after my 1st treatment! Yesterday was my 2nd. Guess those chemo meds are real powerful. Yes I will not commando by the time it gets cold here in Maryland - by October! A friend's friend made me acrylic caps - nice of her! I am thinking of making cotton caps out of old t-shirts. Saves me moola! I will cut my hair real short in a day or two and I probably will notice my little scar from hitting something when I was little. It will be weird...then it will be alright. Tom, being bald is the way to go nowadays. My brother in law decided to go bald just for fashion. Yes, it is different for ladies.

    Great day to you,
    Liz
  • kayebadoe
    kayebadoe Member Posts: 81
    #10
    truckingalong said:

    Hi, Mary, et al
    Hi,Mary, Beth, Tom, Vinny and Sue,

    I get ABVD treatments for Hodgkin's. My hair already started to fall day 10th after my 1st treatment! Yesterday was my 2nd. Guess those chemo meds are real powerful. Yes I will not commando by the time it gets cold here in Maryland - by October! A friend's friend made me acrylic caps - nice of her! I am thinking of making cotton caps out of old t-shirts. Saves me moola! I will cut my hair real short in a day or two and I probably will notice my little scar from hitting something when I was little. It will be weird...then it will be alright. Tom, being bald is the way to go nowadays. My brother in law decided to go bald just for fashion. Yes, it is different for ladies.

    Great day to you,
    Liz

    Wigs are free
    at the American Cancer Society. So don't buy them

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