Why oh why?????
I really appreicate any and all prayers, comments and support.
Thank you all for taking the time to read this.
Update! UCLA has a phase 2 clinical trial TK1258 in FGFR1. This drug is designed to block the growth of certain cancer cells. This drug is known as tyrosine kinase receptor inhibitors. We are hoping that when they test the tumor it has the protein that would allow her to participate in this trial and that the 4 failed lines of treatment will not be a disqualifier. In the event that she does not get accepted, then we are going to try something NAVELBEAN. Will know more next week after the results of the test and whether or not she gets in at UCLA.
Thanks again for all the love and support and prayers.
Thomas
Comments
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I'm so sorry
I'm so sorry the news is not what you wanted to hear. Hopefully UCLA will have the treatment you need. You are both in our prayers and thoughts. Come back and keep us posted and to vent or anytime we can help.
marge0 -
I'm sending thoughts andJean 0609 said:Sorry to hear the news.
Sending positive thoughts & prayers to you, your wife, and entire family.
I'm sending thoughts and prayers also to you and your family. Hang in there and God Bless.
Hugs,
Wanda
We're here for you.0 -
Sending prayers and positive
Sending prayers and positive thoughts your way. We are here if you need to talk or vent what ever you need. God bless you both and your family. Take care Kay, Please keep us posted.0 -
So sorry for the bad news.Betsy13 said:I'm so sorry.
My heart goes out to you and your family. I will pray for you and yours.
Peace to your soul,
Betsy
So sorry for the bad news. Hoping UCLA will have something to offer. My prayers will be for your wife and you.
Stef0 -
Praying that you find that
Praying that you find that clinical trial at UCLA that helps your wife. There are so many "hows" and "whys" to breast cancer that remain unsnawered...how i wish i had answers or advice to help you and your wife through this. One thing I am doing to help is becoming active in my local ACS chapter. I've offered to do public speaking for them, and lobby to congress if and when they send delegates from my state. And THAT I'm doing for my daughters, my mom (who was diagnosed 2 months after me), your wife, all the wonderful women on this board, and every woman who is affected, or will be affected, by breast cancer. I'm keeping you both in my thoughts & prayers and please keep us updated on your wife.
*hugs*
Heather0 -
We must keep searching forHeatherbelle said:Praying that you find that
Praying that you find that clinical trial at UCLA that helps your wife. There are so many "hows" and "whys" to breast cancer that remain unsnawered...how i wish i had answers or advice to help you and your wife through this. One thing I am doing to help is becoming active in my local ACS chapter. I've offered to do public speaking for them, and lobby to congress if and when they send delegates from my state. And THAT I'm doing for my daughters, my mom (who was diagnosed 2 months after me), your wife, all the wonderful women on this board, and every woman who is affected, or will be affected, by breast cancer. I'm keeping you both in my thoughts & prayers and please keep us updated on your wife.
*hugs*
Heather
We must keep searching for answers to this ugly ugly beast. So much progress has been made and yet there is so much more to still be made. My prayers are for you and your wife and all others on this board, and like Heather said, every woman who is effected by b/c. Please keep us posted when you go to UCLA and learn what's offered there. Do you have an appointment yet?
Oh, feel blessed that you are going to UCLA. Try not to think "that's pretty much all we have", but "Thank God there are new cutting edge treatment options/clinical trials available and we'll be able to take part in one".
Suzanne0 -
I wish I knew
Thomas, I don't even know what to say (and that's very rare for me). I'm very sorry that the latest plan of attack hasn't succeeded, but perhaps the folks at UCLA have something that will work. Please keep in mind that not too long ago, the treatments in use today were Phase One trials. There are a lot of BC survivors out there today whose lives were saved by a Phase One trial which might have looked like "pretty much all that was left" at the time but hit the cancer like - say - a division of angry Marines. It's my hope and prayer, and Moopy's too, that your beautiful and beloved wife joins this growing group.
God Bless,
Joe (and Moopy too)0 -
I am sorry for yourAortus said:I wish I knew
Thomas, I don't even know what to say (and that's very rare for me). I'm very sorry that the latest plan of attack hasn't succeeded, but perhaps the folks at UCLA have something that will work. Please keep in mind that not too long ago, the treatments in use today were Phase One trials. There are a lot of BC survivors out there today whose lives were saved by a Phase One trial which might have looked like "pretty much all that was left" at the time but hit the cancer like - say - a division of angry Marines. It's my hope and prayer, and Moopy's too, that your beautiful and beloved wife joins this growing group.
God Bless,
Joe (and Moopy too)
I am sorry for your dissapointing news. I am glad she is feeling ok though. Hoping she responds to the new clinical trial. Joe always has the right way of saying things, you are in my prayers and sending a huge hug.!0 -
Praying for you bothcarkris said:I am sorry for your
I am sorry for your dissapointing news. I am glad she is feeling ok though. Hoping she responds to the new clinical trial. Joe always has the right way of saying things, you are in my prayers and sending a huge hug.!
that by His Grace you choose to seek hope, faith and strength through this.
Sylvia0 -
You both will be in my prayerscarkris said:I am sorry for your
I am sorry for your dissapointing news. I am glad she is feeling ok though. Hoping she responds to the new clinical trial. Joe always has the right way of saying things, you are in my prayers and sending a huge hug.!
Sorry for the bad news. I was treated at UCLA and still have been going there for 3 months check-ups. I hope they will help your wife.If you want any info, please write me PM.
Big Hug,
New Flower0 -
wishing you the best
I know that when I went in for a second opinion they were telling me of all the new drugs that are in the pipeline. Perhaps there will be a great drug in a phase 1 trial that will work to make things last long enough for the next new drug. often you have to fail other drug treatments to get into the newer phase trials.
People do live much longer than their prognoses frequently. Sounds like you will fight it as much as you can and I hope that she will fight hard, too. We hear you on this board and please use this board to vent as much as you wish. you definitely have a right to be angry at this cancer. it is not fair, cancer can be a stealthy enemy.
please keep us posted on what happens at ucla. we will all be rooting for you. if it is possible, find a getaway with the family to do something fun and spontaneous so that you have a happy memory while you are dealing with this.
take care of yourself and your family.0 -
I am so sorry to hear thisiowasignterp said:wishing you the best
I know that when I went in for a second opinion they were telling me of all the new drugs that are in the pipeline. Perhaps there will be a great drug in a phase 1 trial that will work to make things last long enough for the next new drug. often you have to fail other drug treatments to get into the newer phase trials.
People do live much longer than their prognoses frequently. Sounds like you will fight it as much as you can and I hope that she will fight hard, too. We hear you on this board and please use this board to vent as much as you wish. you definitely have a right to be angry at this cancer. it is not fair, cancer can be a stealthy enemy.
please keep us posted on what happens at ucla. we will all be rooting for you. if it is possible, find a getaway with the family to do something fun and spontaneous so that you have a happy memory while you are dealing with this.
take care of yourself and your family.
I am so sorry to hear this news. I have a tumor in my liver and the chemo has been working, but i am changing oncologist right now, i will find out my new treatment on Tuesday. I hope they can find some treatment that works. I was in a lot of pain from the tumor. Take care0 -
I am truly sorry to hear
I am truly sorry to hear this, I wish I had some sort of answers for you but cancer is a mystery to me as well. I so hope your wife is able to get into the clinical trail and that she does well on it. My prayers are with you and she, please keep us updated.
RE0
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