weirdest chemo side effect??? add yours

PhillieG said:

It's strange
Now I can speak fluent French!!!

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pepebcn said:

little antennas
are growing on my head rigth now !!
jajaja!!
Now seriously double vision in this moment .
Have fun!

I lucked out. on xeloda none
I lucked out. on xeloda none of the above.

nursesheri said:

Facial twitches
During tx, I experience facial and scalp muscle contractions. Think it might be from the pre chemo atropine. Not sure which is worse, the side effect prevention drugs, or the chemo it self.


Sheri

frozen eyes
I was in the beginning of the chemo, here in mn, and still in the "I can do it all myself" stage. I had gone grocery shopping and was headed to the car, walking out of the store my eyes "watered up" and then completely froze over (it was january) for a few seconds - really scary!

Of course I had my onc telling me he had never heard of that - everytime i mentioned something. my eyes still hurt when I cry, which stinks cause I cry at everything!

On Friday after a Thurs.
On Friday after a Thurs. infusion, I had the most intense chest pain that ran all the way down my left arm. I was on the pump and thought it was from that. It eased up after a while so I thought it was just a crazy side affect. Went to bed and woke at about 1 am in considerable pain again. Called my onc and said get to emergency. I spent 3 days being checked out for everything heart realated, to find out my heart is good... This happened every time I had treatment (oxy) for 12 treatments. I choose to stay with it because the scans showed the tumors fading fast. My onc said he had never seen this reaction. They watched me closely and encouraged me to stop, but I wanted to just be done with it. The pain would last for about 40-45 mins - very intense, then fade and I would sleep for a couple of hours and it would begin again. This happened each treatment for about 12 hour period. I could tell with in a few hours when it would start!! At the end of treatment my tumors where down to just a speck or 2. within 3 months of no treatment they all came back.
I now know I am so much stronger then I ever thought and I CAN deal with more if I have to.
No pain meds helped with pain, but I did sleep when it was over!! Wierd to say the least! My onc still asks me about it!! Jean

Mine
I went through chemo while it was Winter her in MN, not a the best time with the cold sensitivity issues. I had my eyes freeze shut a couple of times going from the store to my car, my eyes watered a bit and froze shut. I would have to put my hands on my eyes to warm them up and unfreeze them. I also had the jaw pain someone else mentioned below, the jolt I would get from the first few bites of food was enough pain to almost drop me to my knees, thankfully it stopped doing that about half way through my chemos.

Hyperaccussis
My hearing actually has become much more acute since chemo. White noise drives me nuts, as does any volume on other sounds (music, etc.)

I guess when making my nerves hypersensitive, it affected my auditory nerves as well.

ron50 said:

So vein
i had infusions of 5fu via canulas in the back of alternate hands for 48 weeks. By the end of the 48 weeks the veins in each arm that carried the chemo were so dark they were nearly black all the way up to each shoulder. I often heard people commenting ,they probably thought I was some sort of drug addict. After chemo finished they gradually faded back to normal after about three months. Ron.

fingerprints
I work in a courthouse with biometrics on the doors and you have to scan fingerprint to get in to the building, well I have a hard time convencing the bailiffs that me fingerprints are gone for now. They think Im crazy. I guess we would make good criminals with no fingerprints. They are totally gone for now.