Bone Cancer Survivor

My husband is 26yrs and just had his left leg amputated due to a reaccurance of osteosarcoma in his tibia. The cance has also spread to his lungs for the 2nd time. I guess we were both just looking for someone to talk with that would give us strength and a positive outlook that he can survive this and will live a long happy life. Anyways, thanks -- Danielle4

tylerc said:

I had ostoesarcoma in my pelvis when i was 25
I am now 30
I have been cancer free for 5 years
I am not the same physiclly or emotionally
i have good days and bad days

I had osteosarcoma of the pelvis when I was 42. I am now 46 - been cancer free for 3 1/2 years. I, too, am not the same physically or emotionally. Would love to correspond. Thanks.

Hello! I too had bone cancer in my right leg right above my knee. It was a month before I turned 22. I had to have my knee replaced and 10 months of chemo! I was just wondering what kind of treatment you had, and how you are getting by now. I just turned 25 this month. I would like to talk to you! It's nice to know there is someone out there that has been throught the same thing! Let me know!

char1970 said:

yhi, i also had osteosarcoma of my right knee when i was 25. i'm 33 now and looking for others to talk to. what type of treatment did you have? i still have alot of pain and fatigue? What about you any limitations? looking forward to talking with you. email me at char1970@nycap.rr.com

There is a new support group and website for Adult Bone Cancer Survivors. You are all welcome to share your stories and provide support! http://abcsurvivors.net

marysorens said:

There is a new support group and website for Adult Bone Cancer Survivors. You are all welcome to share your stories and provide support! http://abcsurvivors.net

osteosarcoma of the ribs
Just trying to find someone who has had cancer in the ribs. It is rare and I have not been able to talk with anyone about it.

sporti1381 said:

Hi, I'm now 21 and just finished my treatments a couple months ago. I had bone cancer, but mine was in the tibia. They replaced it with Kadavour bone and it's still not healed; they said it would take about 2 years to fully heal. I use to be extremely active, and this has put a total halt on my activity, and even once it heals I'll be limited to what I can do unless I want to risk having surgery again. Were you able to resume a pretty normal active life, if so or not, how did you cope?
Thanks, Somer

Bone Cancer Survivor
I had a tibia transplant and 9 months of chemo when I was 23. I am now 30. I was very active, ran and played soccer. My leg took longer then 2 years to completely heal but now that it has my doctor is thrilled with my leg. Everytime I saw my doctor for 6 years I asked if I could start running and I cried everytime he said no. I have adjusted and it was not easy and I still have my days. I was also a teacher and could no longer be on my feet all day. Still trying to adjust to a new profession.

I saw my doctor 6 months ago and once again I asked can I please run, just a little. I was ready for his smirk and then an adament no, but he could not believe how well my leg was doing. My doctor, and as stupid as this may sound to some I couldn't have been happier, said "Well...." and he gave me permission to run around while playing with my niece and nephews and even to run around the block while they were learning to ride bikes.
Just those little freedoms where I could play and run with the kids made everything okay. Professional still struggling, but getting closer to acceptance.

I also use a punching bag that is little and stuck to the top of a table at home when I need to get out frustration.

christinep22 said:

Bone Cancer Survivor
I had a tibia transplant and 9 months of chemo when I was 23. I am now 30. I was very active, ran and played soccer. My leg took longer then 2 years to completely heal but now that it has my doctor is thrilled with my leg. Everytime I saw my doctor for 6 years I asked if I could start running and I cried everytime he said no. I have adjusted and it was not easy and I still have my days. I was also a teacher and could no longer be on my feet all day. Still trying to adjust to a new profession.

I saw my doctor 6 months ago and once again I asked can I please run, just a little. I was ready for his smirk and then an adament no, but he could not believe how well my leg was doing. My doctor, and as stupid as this may sound to some I couldn't have been happier, said "Well...." and he gave me permission to run around while playing with my niece and nephews and even to run around the block while they were learning to ride bikes.
Just those little freedoms where I could play and run with the kids made everything okay. Professional still struggling, but getting closer to acceptance.

I also use a punching bag that is little and stuck to the top of a table at home when I need to get out frustration.

Bone Cancer Survivor
I'm 30 and was diagnosed with Bone Cancer in my right Tibia when I was 16. I too had limb salvage with a kadavar. Its been a long 14 years. I am cancer free but never pain free from my leg surgery. It would be great to compare stories with some other people with the same type of surgery.

surviver08 said:

I am 12 and was diagnosed with bone cancer in my head when I was 8.

Blessings
May God continue to bless you and keep you in the palm of his loving hands

Enjoy life

Peace and Blessings

christinep22 said:

Bone Cancer Survivor
I had a tibia transplant and 9 months of chemo when I was 23. I am now 30. I was very active, ran and played soccer. My leg took longer then 2 years to completely heal but now that it has my doctor is thrilled with my leg. Everytime I saw my doctor for 6 years I asked if I could start running and I cried everytime he said no. I have adjusted and it was not easy and I still have my days. I was also a teacher and could no longer be on my feet all day. Still trying to adjust to a new profession.

I saw my doctor 6 months ago and once again I asked can I please run, just a little. I was ready for his smirk and then an adament no, but he could not believe how well my leg was doing. My doctor, and as stupid as this may sound to some I couldn't have been happier, said "Well...." and he gave me permission to run around while playing with my niece and nephews and even to run around the block while they were learning to ride bikes.
Just those little freedoms where I could play and run with the kids made everything okay. Professional still struggling, but getting closer to acceptance.

I also use a punching bag that is little and stuck to the top of a table at home when I need to get out frustration.

Wow! How I can relate! My
Wow! How I can relate! My stepson ("son" since he was 10) was Dx with Ewing's Sarcoma of his left pelvic 08/09. He went through intense chemo and radiation and has been clear until his latest scans 10/11/10; CT revealed mets to his lungs; very tiny and caught early but we're going through chemo again but he is able to attend school so far. He missed almost all of his Jr. year of high school last year. He LOVES basketball and was gearing up to play this year, his Sr. year. He too was told to be very careful with his activity but very difficult to slow down a teenager and God has blessed him with a stable bone. Thank you for sharing your story and reply when you can.

danielle4 said:

My husband is 26yrs and just had his left leg amputated due to a reaccurance of osteosarcoma in his tibia. The cance has also spread to his lungs for the 2nd time. I guess we were both just looking for someone to talk with that would give us strength and a positive outlook that he can survive this and will live a long happy life. Anyways, thanks -- Danielle4

Hi Danielle,
How is your
Hi Danielle,

How is your husband? My 17 yr old stepson was DX with Ewing's Sarcoma of his left pelvic. He went through intense chemo and then radiation and has been clear until his latest scans on Oct 11th. Looks like he has lung mets and is going through chemo again. Can't wait to hear from you!