Bone Cancer Survivor

jarales
jarales Member Posts: 1
edited March 2014 in Bone Cancers #1
I had bone cancer in my right knee when I was 21 and have survived. I'm 32 years old now and would like to offer and type of support needed.
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Comments

  • tylerc
    tylerc Member Posts: 1
    I had ostoesarcoma in my pelvis when i was 25
    I am now 30
    I have been cancer free for 5 years
    I am not the same physiclly or emotionally
    i have good days and bad days
  • danielle4
    danielle4 Member Posts: 1
    My husband is 26yrs and just had his left leg amputated due to a reaccurance of osteosarcoma in his tibia. The cance has also spread to his lungs for the 2nd time. I guess we were both just looking for someone to talk with that would give us strength and a positive outlook that he can survive this and will live a long happy life. Anyways, thanks -- Danielle4
  • surviver08
    surviver08 Member Posts: 1
    I am 12 and was diagnosed with bone cancer in my head when I was 8.
  • grover
    grover Member Posts: 2
    tylerc said:

    I had ostoesarcoma in my pelvis when i was 25
    I am now 30
    I have been cancer free for 5 years
    I am not the same physiclly or emotionally
    i have good days and bad days

    I had osteosarcoma of the pelvis when I was 42. I am now 46 - been cancer free for 3 1/2 years. I, too, am not the same physically or emotionally. Would love to correspond. Thanks.
  • sporti1381
    sporti1381 Member Posts: 7
    Hi, I'm now 21 and just finished my treatments a couple months ago. I had bone cancer, but mine was in the tibia. They replaced it with Kadavour bone and it's still not healed; they said it would take about 2 years to fully heal. I use to be extremely active, and this has put a total halt on my activity, and even once it heals I'll be limited to what I can do unless I want to risk having surgery again. Were you able to resume a pretty normal active life, if so or not, how did you cope?
    Thanks, Somer
  • Survivor2001
    Survivor2001 Member Posts: 5
    Hello! I too had bone cancer in my right leg right above my knee. It was a month before I turned 22. I had to have my knee replaced and 10 months of chemo! I was just wondering what kind of treatment you had, and how you are getting by now. I just turned 25 this month. I would like to talk to you! It's nice to know there is someone out there that has been throught the same thing! Let me know!
  • char1970
    char1970 Member Posts: 17
    yhi, i also had osteosarcoma of my right knee when i was 25. i'm 33 now and looking for others to talk to. what type of treatment did you have? i still have alot of pain and fatigue? What about you any limitations? looking forward to talking with you. email me at [email protected]
  • marysorens
    marysorens Member Posts: 9
    char1970 said:

    yhi, i also had osteosarcoma of my right knee when i was 25. i'm 33 now and looking for others to talk to. what type of treatment did you have? i still have alot of pain and fatigue? What about you any limitations? looking forward to talking with you. email me at [email protected]

    There is a new support group and website for Adult Bone Cancer Survivors. You are all welcome to share your stories and provide support! http://abcsurvivors.net
  • This comment has been removed by the Moderator
  • shirleyjo49
    shirleyjo49 Member Posts: 1

    There is a new support group and website for Adult Bone Cancer Survivors. You are all welcome to share your stories and provide support! http://abcsurvivors.net

    osteosarcoma of the ribs
    Just trying to find someone who has had cancer in the ribs. It is rare and I have not been able to talk with anyone about it.
  • cathyK
    cathyK Member Posts: 93
    bone cancer survivor
    so great to hear so many have survived this cancer for so many years, I wish I could see this with other cancers, like mine , stage 4 b grade 3 endometrial cancer. and THANK you for giving a shout out about your survival on line SO MANY need to hear this , thanks !

    cathy k
  • christinep22
    christinep22 Member Posts: 5

    Hi, I'm now 21 and just finished my treatments a couple months ago. I had bone cancer, but mine was in the tibia. They replaced it with Kadavour bone and it's still not healed; they said it would take about 2 years to fully heal. I use to be extremely active, and this has put a total halt on my activity, and even once it heals I'll be limited to what I can do unless I want to risk having surgery again. Were you able to resume a pretty normal active life, if so or not, how did you cope?
    Thanks, Somer

    Bone Cancer Survivor
    I had a tibia transplant and 9 months of chemo when I was 23. I am now 30. I was very active, ran and played soccer. My leg took longer then 2 years to completely heal but now that it has my doctor is thrilled with my leg. Everytime I saw my doctor for 6 years I asked if I could start running and I cried everytime he said no. I have adjusted and it was not easy and I still have my days. I was also a teacher and could no longer be on my feet all day. Still trying to adjust to a new profession.

    I saw my doctor 6 months ago and once again I asked can I please run, just a little. I was ready for his smirk and then an adament no, but he could not believe how well my leg was doing. My doctor, and as stupid as this may sound to some I couldn't have been happier, said "Well...." and he gave me permission to run around while playing with my niece and nephews and even to run around the block while they were learning to ride bikes.
    Just those little freedoms where I could play and run with the kids made everything okay. Professional still struggling, but getting closer to acceptance.

    I also use a punching bag that is little and stuck to the top of a table at home when I need to get out frustration.
  • 1maladywc
    1maladywc Member Posts: 9
    cathyK said:

    bone cancer survivor
    so great to hear so many have survived this cancer for so many years, I wish I could see this with other cancers, like mine , stage 4 b grade 3 endometrial cancer. and THANK you for giving a shout out about your survival on line SO MANY need to hear this , thanks !

    cathy k

    bone cancer
    How did you find out you had bone cancer? I have bone cancer, mets from breast cancer.
    I broke my left arm and found out I have cancer , again.
    I'm having alot of pain in my left leg in the calf area, They say its not cancer. but it gets to hurting so bad, I can't walk.
    I'm taking pill form chemo for the cancer under my left arm now. Have lost the use of my left hand and arm
    . my email is [email protected]
  • megmal
    megmal Member Posts: 2

    Bone Cancer Survivor
    I had a tibia transplant and 9 months of chemo when I was 23. I am now 30. I was very active, ran and played soccer. My leg took longer then 2 years to completely heal but now that it has my doctor is thrilled with my leg. Everytime I saw my doctor for 6 years I asked if I could start running and I cried everytime he said no. I have adjusted and it was not easy and I still have my days. I was also a teacher and could no longer be on my feet all day. Still trying to adjust to a new profession.

    I saw my doctor 6 months ago and once again I asked can I please run, just a little. I was ready for his smirk and then an adament no, but he could not believe how well my leg was doing. My doctor, and as stupid as this may sound to some I couldn't have been happier, said "Well...." and he gave me permission to run around while playing with my niece and nephews and even to run around the block while they were learning to ride bikes.
    Just those little freedoms where I could play and run with the kids made everything okay. Professional still struggling, but getting closer to acceptance.

    I also use a punching bag that is little and stuck to the top of a table at home when I need to get out frustration.

    Bone Cancer Survivor
    I'm 30 and was diagnosed with Bone Cancer in my right Tibia when I was 16. I too had limb salvage with a kadavar. Its been a long 14 years. I am cancer free but never pain free from my leg surgery. It would be great to compare stories with some other people with the same type of surgery.
  • smartinez200
    smartinez200 Member Posts: 3
    1maladywc said:

    bone cancer
    How did you find out you had bone cancer? I have bone cancer, mets from breast cancer.
    I broke my left arm and found out I have cancer , again.
    I'm having alot of pain in my left leg in the calf area, They say its not cancer. but it gets to hurting so bad, I can't walk.
    I'm taking pill form chemo for the cancer under my left arm now. Have lost the use of my left hand and arm
    . my email is [email protected]

    bone cancer
    I too have bone cancer, mets from breast cancer. I have a large tumor close to my neck, they treated it with radiation and the growth has slow down. It still hurts but not as bad, I take 15 mg of morphine twice a day. I also have 6 other spots mostly on my ribs.
    I am realizing that I need to take better care of myself and not overdue it. I am always
    taking care of kids, gradkids, husband, bills, job, house, etc and not much time to rest and I get run down. I need to let things go and rest more. Have you had a PET scan and bone scan? I wish you the best, good luck and God bless.
  • FaithandPeace
    FaithandPeace Member Posts: 3

    I am 12 and was diagnosed with bone cancer in my head when I was 8.

    Blessings
    May God continue to bless you and keep you in the palm of his loving hands

    Enjoy life

    Peace and Blessings
  • stepmom04
    stepmom04 Member Posts: 12

    Blessings
    May God continue to bless you and keep you in the palm of his loving hands

    Enjoy life

    Peace and Blessings

    Stepmom of Ewing's Sarcoma 17 yr old
    Hey,

    I've never posted to this site, so not sure what I'm doing?? Briefly, my stepson (my "son" since he was 10) was dx with Ewing's Sarcoma of the left pelvic 08/09. It was localized with no signs of metastasis. He had chemo then radiation. He's been clear until his latest scans Oct 11th; chest CT revealed 4-5 lesions on his lungs suspicious for metastasis. We're in chemo again. Just wanting to know how you all are doing and what type of treatment you went through. Thanks for posting and hope to hear from you soon!
  • stepmom04
    stepmom04 Member Posts: 12

    Bone Cancer Survivor
    I had a tibia transplant and 9 months of chemo when I was 23. I am now 30. I was very active, ran and played soccer. My leg took longer then 2 years to completely heal but now that it has my doctor is thrilled with my leg. Everytime I saw my doctor for 6 years I asked if I could start running and I cried everytime he said no. I have adjusted and it was not easy and I still have my days. I was also a teacher and could no longer be on my feet all day. Still trying to adjust to a new profession.

    I saw my doctor 6 months ago and once again I asked can I please run, just a little. I was ready for his smirk and then an adament no, but he could not believe how well my leg was doing. My doctor, and as stupid as this may sound to some I couldn't have been happier, said "Well...." and he gave me permission to run around while playing with my niece and nephews and even to run around the block while they were learning to ride bikes.
    Just those little freedoms where I could play and run with the kids made everything okay. Professional still struggling, but getting closer to acceptance.

    I also use a punching bag that is little and stuck to the top of a table at home when I need to get out frustration.

    Wow! How I can relate! My
    Wow! How I can relate! My stepson ("son" since he was 10) was Dx with Ewing's Sarcoma of his left pelvic 08/09. He went through intense chemo and radiation and has been clear until his latest scans 10/11/10; CT revealed mets to his lungs; very tiny and caught early but we're going through chemo again but he is able to attend school so far. He missed almost all of his Jr. year of high school last year. He LOVES basketball and was gearing up to play this year, his Sr. year. He too was told to be very careful with his activity but very difficult to slow down a teenager and God has blessed him with a stable bone. Thank you for sharing your story and reply when you can.
  • stepmom04
    stepmom04 Member Posts: 12

    Bone Cancer Survivor
    I had a tibia transplant and 9 months of chemo when I was 23. I am now 30. I was very active, ran and played soccer. My leg took longer then 2 years to completely heal but now that it has my doctor is thrilled with my leg. Everytime I saw my doctor for 6 years I asked if I could start running and I cried everytime he said no. I have adjusted and it was not easy and I still have my days. I was also a teacher and could no longer be on my feet all day. Still trying to adjust to a new profession.

    I saw my doctor 6 months ago and once again I asked can I please run, just a little. I was ready for his smirk and then an adament no, but he could not believe how well my leg was doing. My doctor, and as stupid as this may sound to some I couldn't have been happier, said "Well...." and he gave me permission to run around while playing with my niece and nephews and even to run around the block while they were learning to ride bikes.
    Just those little freedoms where I could play and run with the kids made everything okay. Professional still struggling, but getting closer to acceptance.

    I also use a punching bag that is little and stuck to the top of a table at home when I need to get out frustration.

    Wow! How I can relate! My
    Wow! How I can relate! My stepson ("son" since he was 10) was Dx with Ewing's Sarcoma of his left pelvic 08/09. He went through intense chemo and radiation and has been clear until his latest scans 10/11/10; CT revealed mets to his lungs; very tiny and caught early but we're going through chemo again but he is able to attend school so far. He missed almost all of his Jr. year of high school last year. He LOVES basketball and was gearing up to play this year, his Sr. year. He too was told to be very careful with his activity but very difficult to slow down a teenager and God has blessed him with a stable bone. Thank you for sharing your story and reply when you can.
  • stepmom04
    stepmom04 Member Posts: 12
    danielle4 said:

    My husband is 26yrs and just had his left leg amputated due to a reaccurance of osteosarcoma in his tibia. The cance has also spread to his lungs for the 2nd time. I guess we were both just looking for someone to talk with that would give us strength and a positive outlook that he can survive this and will live a long happy life. Anyways, thanks -- Danielle4

    Hi Danielle,
    How is your

    Hi Danielle,

    How is your husband? My 17 yr old stepson was DX with Ewing's Sarcoma of his left pelvic. He went through intense chemo and then radiation and has been clear until his latest scans on Oct 11th. Looks like he has lung mets and is going through chemo again. Can't wait to hear from you!