OUCHY! DON"T LIKE BMB TEST!!!!!!
Sue
Comments
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ouch
the BMB was the worst part of all my tests, surgeries, and chemo combined so I really feel your pain. I can't imagine if they just kept poking around on me. No meds helped me either. Praying for you and hope your results come back favorable. What type of cancer are you facing if i may ask?0 -
ouchvinny59 said:ouch
I always say why the hell can't they sedate you, that is alot of pain to have to go through, but look on the bright side, go fishing and put all this crap on the back burner! wish you well! Vinny
Glad that test is behind you (ha literally!!). And very glad you can now enjoy your vacation. Have a great time relaxing. Try your best to put this stuff out of your mind. God bless.0 -
Too bad
You poor thing, but at least it's over. The whole thing sounds inhumane. I haven't heard of the dry,hard bone thing but there are probably as many scenarios as there are people. Enjoy your fishing trip and try not to worry too much. The treatment will be the same and yes it can clean up bone marrow too!! Mary0 -
??vinny59 said:ouch
I always say why the hell can't they sedate you, that is alot of pain to have to go through, but look on the bright side, go fishing and put all this crap on the back burner! wish you well! Vinny
They can and often do. I have had 2 and was asleep for both. I just don't get it, but it makes me kind of mad. My Md never does them with patients awake. I understand all Md's are different but come on. It's not like they're paying for it. OK I'm getting down from the soap box now.0 -
BMB
Sue, My onc told me the same thing abour not being surprised if it was in the marrow. This got me to checking on all the sites to check it out. I was not aware of this site at the time. Because of the tumor sizes in my abdomen I figured it had been there for awhile. It was no surprise when the test came back positive. It was in the bone marrow,just a little but still it was in there. The Doc. said it would be treated the same as stage 3. That put me at stage 4. Nothing was ever said about the spleen,so I wonder about that as well. Spleen never showed any signs of swelling, but I don't know if that means anything or not. We are all different in treatment. I was really dragging after my first round up and down. This time I was a little better with the after effects, only its been 8 days out and my butt is dragging today. I guess thats normal, right guys? Hips are a little sore and now the taste has finally gone. The only thing I can taste is macaroni and cheese that I make myself. I know thats not the best thing to eat , but its the only thing I can really taste.I was outside most of the day yesterday in the heat and humidity and I am sure that did not help. Anyway, glad you get to go on the fishing trip. It would be no fun going if you had just gotten the chemo. You would not know what to expect from day to day. That tiredness feeling is no fun. John0 -
Oh man
I am so sorry you had such a bad experience. I have been knocked out all 3 times and wouldn't have it any other way. I am wondering if you can request to be knocked out should you ever have to do it again?
The surgeon who did my biopsies told me and my hubby that bmb is the absolute worst, brutal test there is and even he said he wouldn't do it awake. I hope you get to feeling better quick and enjoy the trip!
Take care,
Beth0 -
BMBdixiegirl said:Oh man
I am so sorry you had such a bad experience. I have been knocked out all 3 times and wouldn't have it any other way. I am wondering if you can request to be knocked out should you ever have to do it again?
The surgeon who did my biopsies told me and my hubby that bmb is the absolute worst, brutal test there is and even he said he wouldn't do it awake. I hope you get to feeling better quick and enjoy the trip!
Take care,
Beth
Beth, I was awake with my test as well. I did have a local though. I did not feel the pain, but felt the pressure. It was horrible. I could feel the pulling when they were taking the needle or whatever it was out. They pulled and tugged. I was swaying back and forth on the table. I got so out of it I was close to passing out. BP dropped to 73/42. I started sweating and felt sick. I think it is the worst part of the test so far. John0 -
BMB/dry boneCOBRA666 said:BMB
Beth, I was awake with my test as well. I did have a local though. I did not feel the pain, but felt the pressure. It was horrible. I could feel the pulling when they were taking the needle or whatever it was out. They pulled and tugged. I was swaying back and forth on the table. I got so out of it I was close to passing out. BP dropped to 73/42. I started sweating and felt sick. I think it is the worst part of the test so far. John
My doctor attributes the dry bone marrow and thick solid bone to my taking Premerin(HRT) for the last 20 years. She promised that the next BMB will be done at the surgical center and she will be put me under. My hip is sore as heck today, but nothing un-bearable. Didn't get to sleep last night until 3:00a.m, but slept in this morning. Movin slow.
Sue0 -
BMBallmost60 said:BMB/dry bone
My doctor attributes the dry bone marrow and thick solid bone to my taking Premerin(HRT) for the last 20 years. She promised that the next BMB will be done at the surgical center and she will be put me under. My hip is sore as heck today, but nothing un-bearable. Didn't get to sleep last night until 3:00a.m, but slept in this morning. Movin slow.
Sue
Sue, I was fortunate with my bmb as far as pain. For some reason today 8 days out of round 2 I feel like I am dragging really bad. Don't know if it from the heat yesterday or what. We are all different but this is rough. Hope I spring back tomorrow. This is what you have to look forward too. Its like a yoyo session from day to day. When you finalliy get back to near normal they hit you again and it all starts over again. John0 -
CiAnnaBanna/ouchCiAnnaBananna said:ouch
the BMB was the worst part of all my tests, surgeries, and chemo combined so I really feel your pain. I can't imagine if they just kept poking around on me. No meds helped me either. Praying for you and hope your results come back favorable. What type of cancer are you facing if i may ask?
The type of cancer I have is Follicular NHL stage 3(if not in the bone)Grade 2 and I'm Type A. I have tumors in my left groin...abdomen...and left side of my neck. My CT scan showed no signs of it in the spleen..liver...kidney(only have one)...pancreas(sp?)...or lungs. Doesn't mean it won't travel to those areas down the road, but as of right now those vital organs are clean. So...thats a "Good" thing. Hubby and I talked this morning and have decided to stay home and cancel vacation. We want to save the money for all of the co-pays that just keep rolling in. He said we will do some mini trips...a day trip to Seattle...drive up in the mountains etc. Neither of us are in the mood for being gone 2 weeks. Yesterday really took the wind out of both of our sails...ha! We will have fun just being together, so it's all good for us and no big deal.
P.S...You look absolutely darling with-out hair!!! Seriously...you really do! You've got a beautifully shaped head and such a pretty face and awesome smile! I have a round face and I'm sure a fat round head under this hair, so I'm thinkin I won't look as attractive...ha! "LUCKY YOU"!!! You remind me of Natalie Portman.
Sue0 -
Awww I'm sorry JohnCOBRA666 said:BMB
Sue, I was fortunate with my bmb as far as pain. For some reason today 8 days out of round 2 I feel like I am dragging really bad. Don't know if it from the heat yesterday or what. We are all different but this is rough. Hope I spring back tomorrow. This is what you have to look forward too. Its like a yoyo session from day to day. When you finalliy get back to near normal they hit you again and it all starts over again. John
Man...I hate to hear when someone is feeling down. I know you had mentioned that you always were an active vibrant guy before all of this, as was I. I know how hard it is to not feel 100% and full of energy and how helpless it makes us feel. I was like the energizer bunny...go go go and keep on goin. I never felt like I was close to being 6O...more like 40. One of the hardest things for me right now is the loss of energy, and when I think that I haven't even started chemo yet...it scares the crap of me. I'm going to do everything in my power to not let this cancer get me down...energy or no energy. I sure hope you will bounce back...in the meantime, I'm thinking of you!
Sue0 -
BMBCOBRA666 said:BMB
Sue, I was fortunate with my bmb as far as pain. For some reason today 8 days out of round 2 I feel like I am dragging really bad. Don't know if it from the heat yesterday or what. We are all different but this is rough. Hope I spring back tomorrow. This is what you have to look forward too. Its like a yoyo session from day to day. When you finalliy get back to near normal they hit you again and it all starts over again. John
Sue, Don't mean to sound so negative, but this is one of those days where its just getting to me. Again, I want you to know what you have to look forward too. It will be like nothing you have experienced before. You are going to wonder why you feel so worn out and you haven't done anything to make you tired. Then you spring back the next day,then you don't feel good the next day after that. You will be able to tell what kind of day its going to be when you first get up in the morning. Been thru it quite a few times. It is a weird body feeling. I felt like a bus hit me sometimes. When I woke up this morning I opened my eyes and said "Oh, Sh--", gonna be one of those days. The good part of it is we know the chemo will help us in the long haul. John0 -
BMBCOBRA666 said:BMB
Sue, Don't mean to sound so negative, but this is one of those days where its just getting to me. Again, I want you to know what you have to look forward too. It will be like nothing you have experienced before. You are going to wonder why you feel so worn out and you haven't done anything to make you tired. Then you spring back the next day,then you don't feel good the next day after that. You will be able to tell what kind of day its going to be when you first get up in the morning. Been thru it quite a few times. It is a weird body feeling. I felt like a bus hit me sometimes. When I woke up this morning I opened my eyes and said "Oh, Sh--", gonna be one of those days. The good part of it is we know the chemo will help us in the long haul. John
Already had 2 naps today and slept good last night. I feel like I been awake for 48 hours. the body is worn out, but strange as it may seem I am not mentally tired. Thats the only way I know how to explain it. It will get better, but it does get you down. John0 -
napsCOBRA666 said:BMB
Already had 2 naps today and slept good last night. I feel like I been awake for 48 hours. the body is worn out, but strange as it may seem I am not mentally tired. Thats the only way I know how to explain it. It will get better, but it does get you down. John
John by the time I got done my routine was this.
Drink a cup of coffee on the porch, watch the sun rise............take a nap.
Shower..........take a nap.
Eat....take a nap.
Watch Tv.........take a nap.
Eat some more.......another nap.
Throw in a load of laundry............take a nap.
Cook dinner ( or wait for hubby to do it )
Eat....and go to bed.
It does get better!0 -
BMB Testallmost60 said:BMB/dry bone
My doctor attributes the dry bone marrow and thick solid bone to my taking Premerin(HRT) for the last 20 years. She promised that the next BMB will be done at the surgical center and she will be put me under. My hip is sore as heck today, but nothing un-bearable. Didn't get to sleep last night until 3:00a.m, but slept in this morning. Movin slow.
Sue
I have NHL, went thru a Bone Marrow Transplant (Autologous) my own stem cells. I had a clean BMB last October, my Onc wants me to have another one 8/2/10. She says she can't put me under, does your dr say they can? HELP I am already on Norco and Morphine for my burning hands and mouthwash for mouth sores. I was treated at Stanford but belong to Kaiser in Redwood City, CA. Please tell me if there is a way to be put out? I have to have one every year to stage the cancer, or see if there are any NHL cell come back.0 -
thanks Sueallmost60 said:CiAnnaBanna/ouch
The type of cancer I have is Follicular NHL stage 3(if not in the bone)Grade 2 and I'm Type A. I have tumors in my left groin...abdomen...and left side of my neck. My CT scan showed no signs of it in the spleen..liver...kidney(only have one)...pancreas(sp?)...or lungs. Doesn't mean it won't travel to those areas down the road, but as of right now those vital organs are clean. So...thats a "Good" thing. Hubby and I talked this morning and have decided to stay home and cancel vacation. We want to save the money for all of the co-pays that just keep rolling in. He said we will do some mini trips...a day trip to Seattle...drive up in the mountains etc. Neither of us are in the mood for being gone 2 weeks. Yesterday really took the wind out of both of our sails...ha! We will have fun just being together, so it's all good for us and no big deal.
P.S...You look absolutely darling with-out hair!!! Seriously...you really do! You've got a beautifully shaped head and such a pretty face and awesome smile! I have a round face and I'm sure a fat round head under this hair, so I'm thinkin I won't look as attractive...ha! "LUCKY YOU"!!! You remind me of Natalie Portman.
Sue
Aww, thanks for the compliment. I wasn't thrilled about losing my hair, BUT its a small price to pay to get better. Plus it's really easy to get ready! I have been taking a bunch of mini trips myself during all of my treatments and it's been fun. I have a few more planned for the summer and it's nice because when i'm feeling sick during and after chemo, i just keep counting down the days when I know i'll get my energy back and I have a little trip to look forward to. Let us know how everything pans out! I'll keep you in my prayers0 -
VACATIONallmost60 said:CiAnnaBanna/ouch
The type of cancer I have is Follicular NHL stage 3(if not in the bone)Grade 2 and I'm Type A. I have tumors in my left groin...abdomen...and left side of my neck. My CT scan showed no signs of it in the spleen..liver...kidney(only have one)...pancreas(sp?)...or lungs. Doesn't mean it won't travel to those areas down the road, but as of right now those vital organs are clean. So...thats a "Good" thing. Hubby and I talked this morning and have decided to stay home and cancel vacation. We want to save the money for all of the co-pays that just keep rolling in. He said we will do some mini trips...a day trip to Seattle...drive up in the mountains etc. Neither of us are in the mood for being gone 2 weeks. Yesterday really took the wind out of both of our sails...ha! We will have fun just being together, so it's all good for us and no big deal.
P.S...You look absolutely darling with-out hair!!! Seriously...you really do! You've got a beautifully shaped head and such a pretty face and awesome smile! I have a round face and I'm sure a fat round head under this hair, so I'm thinkin I won't look as attractive...ha! "LUCKY YOU"!!! You remind me of Natalie Portman.
Sue
Sorry you had to cancel your vacation. All my organs were clear on my pet scan as well. Yes, it could get to the organs later on. I think the chemo is supposed to help prevent that. There are so many coulds,shoulds,woulds,cans and maybes about this disease its a real waiting game. When do you start your chemo or is that still up in the air? I really feel you made the right decision to start as soon as possible. Its all about your own gut feeling when you come down to it.0 -
Napsdixiegirl said:naps
John by the time I got done my routine was this.
Drink a cup of coffee on the porch, watch the sun rise............take a nap.
Shower..........take a nap.
Eat....take a nap.
Watch Tv.........take a nap.
Eat some more.......another nap.
Throw in a load of laundry............take a nap.
Cook dinner ( or wait for hubby to do it )
Eat....and go to bed.
It does get better!
Dixie, I do feel a little better today. The hips are sore though. I guess the bone marrow is working overtime. I do not get up early enough to watch the sunrise, but I do get the coffee and get on the computer. I should be feeling even better tomorrow if it runs like it did last go around. Then with the chemo nothing is a gaurantee,right? I just wonder how a person can feel pretty good and then 8-9 days later it knocks them down the way it does. John0 -
Don't know yet on "when" treatment will start...COBRA666 said:VACATION
Sorry you had to cancel your vacation. All my organs were clear on my pet scan as well. Yes, it could get to the organs later on. I think the chemo is supposed to help prevent that. There are so many coulds,shoulds,woulds,cans and maybes about this disease its a real waiting game. When do you start your chemo or is that still up in the air? I really feel you made the right decision to start as soon as possible. Its all about your own gut feeling when you come down to it.
Hi John...
My doctor said we won't even have the results back on the BMB until around the week of the 26th. I suppose once we find out if it's in the bone she will get busy on when to start. We are perfectly fine with cancelling vacation. Hubby said he would be more comfortable not being away from home and actually that works good for me too. The fish will always be there! Have a good day....Sue0
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