Got my Score

TulsaMomof3
TulsaMomof3 Member Posts: 105
edited March 2014 in Breast Cancer #1
My onco appointment isn't till Tuesday, But My doctor faxed my a copy of my OncoType Dx results. My score was a 12, I am really curious to see what the Ocnologist reccomends. I had said if my score was lowere than 10 I would feel comfortable in not having Chemo. So much to think about!
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Comments

  • TulsaMomof3
    TulsaMomof3 Member Posts: 105
    #2
    Ok me playing Doctor to
    Ok me playing Doctor to myself, If I am reading the chart right If I take Tamoxifen only my chance reoccurance is like 8%, If I take Tamaxifen plus Chemo my reoccurance rate is 3% So would that mean my chances go down by 60% if I take Chemo? Also Will the Oncologist take other things into consideration like size of Tumor and my age or is all based off Onco?
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #3
    TulsaMomof3 said:

    Ok me playing Doctor to
    Ok me playing Doctor to myself, If I am reading the chart right If I take Tamoxifen only my chance reoccurance is like 8%, If I take Tamaxifen plus Chemo my reoccurance rate is 3% So would that mean my chances go down by 60% if I take Chemo? Also Will the Oncologist take other things into consideration like size of Tumor and my age or is all based off Onco?

    I don't understand your own
    I don't understand your own recurrence rate TulsaMom. I just know what mine was. Your oncologist will explain all of this to you. When do you see him?

    Most do everything possible to improve their chances of no recurrence. Some have even taken chemo with just a 2%. It is up to the individual to decide.

    Noone wants to have a recurrence and then wonder "what if I just would have taken or done whatever."

    Good luck to you, and, let us know.

    Sue :)
  • Hubby
    Hubby Member Posts: 325
    #4
    Great Score
    Even though you didn't get the 10 or less you were looking for, a 12 is really good. Under 18 is considered low risk. Your oncologist may go on a lot of other things, but it will come down to what percent of benefit he sees vs. the risks of being on chemo. Good Luck with Onc appointment!!
  • TulsaMomof3
    TulsaMomof3 Member Posts: 105
    #5
    Ritzy said:

    I don't understand your own
    I don't understand your own recurrence rate TulsaMom. I just know what mine was. Your oncologist will explain all of this to you. When do you see him?

    Most do everything possible to improve their chances of no recurrence. Some have even taken chemo with just a 2%. It is up to the individual to decide.

    Noone wants to have a recurrence and then wonder "what if I just would have taken or done whatever."

    Good luck to you, and, let us know.

    Sue :)

    I was just figureing that 3
    I was just figureing that 3 is 60% of 8 lol, I know I am over thinking all of this... I need to have patience
  • waffle8
    waffle8 Member Posts: 234
    #6
    They do take all info.
    They do take all info. including tumor size into consideration for treatment plans ...Do you know the grade of your tumor? My tumor was 2cm. grade2 est/prog post and herc neg...no lymph nodes positive....It is all mind boggling...I will have my last chemo July 1...
  • TulsaMomof3
    TulsaMomof3 Member Posts: 105
    #7
    waffle8 said:

    They do take all info.
    They do take all info. including tumor size into consideration for treatment plans ...Do you know the grade of your tumor? My tumor was 2cm. grade2 est/prog post and herc neg...no lymph nodes positive....It is all mind boggling...I will have my last chemo July 1...

    Im 37 its was Grade 1 IDC
    Im 37 its was Grade 1 IDC 1.4 cen w/ 6 areas of DCIS
  • waffle8
    waffle8 Member Posts: 234
    #8
    TulsaMomof3 said:

    Im 37 its was Grade 1 IDC
    Im 37 its was Grade 1 IDC 1.4 cen w/ 6 areas of DCIS

    Wondering if you have had
    Wondering if you have had any surgery yet? I am 45 had lumpectomy...I know that the grade 1 is considered to be less agressive..I am constantly amazed even though we all have had bc each case is so diff...Your doc. will help you make the best plan for you...
  • TulsaMomof3
    TulsaMomof3 Member Posts: 105
    #9
    waffle8 said:

    Wondering if you have had
    Wondering if you have had any surgery yet? I am 45 had lumpectomy...I know that the grade 1 is considered to be less agressive..I am constantly amazed even though we all have had bc each case is so diff...Your doc. will help you make the best plan for you...

    I had a BLM, my BS said that
    I had a BLM, my BS said that because the DCIS was in a different area than the IDC a lumpectomy was not possible, So I opted for a BLM with DIEP recon
  • waffle8
    waffle8 Member Posts: 234
    #10
    TulsaMomof3 said:

    I had a BLM, my BS said that
    I had a BLM, my BS said that because the DCIS was in a different area than the IDC a lumpectomy was not possible, So I opted for a BLM with DIEP recon

    You know its hard to believe
    You know its hard to believe in Jan.. this year I had no idea what all those abbreviation meant.....But life sure does change....
  • Alexis F
    Alexis F Member Posts: 3,598
    #11
    TulsaMomof3 said:

    I was just figureing that 3
    I was just figureing that 3 is 60% of 8 lol, I know I am over thinking all of this... I need to have patience

    Good luck with what you
    Good luck with what you choose to do Tulsomom!


    Lex♥
  • SamuraiMom
    SamuraiMom Member Posts: 295
    #12
    xxoo
    Hang in there TulsaMom and keep us all posted!

    xxoo,
    SamuraiMom
  • TulsaMomof3
    TulsaMomof3 Member Posts: 105
    #13
    SamuraiMom said:

    xxoo
    Hang in there TulsaMom and keep us all posted!

    xxoo,
    SamuraiMom

    Thanks for the advice, I
    Thanks for the advice, I guess the reason I am struggling back and forth is that I have done to much research on my own! I have read like the NCCN guidlines for oncologist and they reccomend Chemo for any one with invasive cancer over 1cm, I have also read reports about oncotype dx and that only 10% of the woman used in thier study where "younger", There is just way to much information available to someone as OCD as me! I also saw a graph on adjuvant online that my reoocurrance rate would go from an 8% to a 3% (thats a 60% drop) and that woman with my similar DX -4 more lived out of hundred that choose Chemo - that doesn't seem like alot ...unless you where one of those 4!
  • Angie2U
    Angie2U Member Posts: 2,991
    #14
    TulsaMomof3 said:

    Thanks for the advice, I
    Thanks for the advice, I guess the reason I am struggling back and forth is that I have done to much research on my own! I have read like the NCCN guidlines for oncologist and they reccomend Chemo for any one with invasive cancer over 1cm, I have also read reports about oncotype dx and that only 10% of the woman used in thier study where "younger", There is just way to much information available to someone as OCD as me! I also saw a graph on adjuvant online that my reoocurrance rate would go from an 8% to a 3% (thats a 60% drop) and that woman with my similar DX -4 more lived out of hundred that choose Chemo - that doesn't seem like alot ...unless you where one of those 4!

    It is a lot to try and
    It is a lot to try and figure out and a lot to deal with. But, if your recurrence rate would go from a 8% to 3%, wouldn't it be worth it or not?


    Only you can make this decision based on all of the facts in YOUR case and your doctor's advice and guidance.

    Good luck with your decision.
  • TulsaMomof3
    TulsaMomof3 Member Posts: 105
    #15
    Angie2U said:

    It is a lot to try and
    It is a lot to try and figure out and a lot to deal with. But, if your recurrence rate would go from a 8% to 3%, wouldn't it be worth it or not?


    Only you can make this decision based on all of the facts in YOUR case and your doctor's advice and guidance.

    Good luck with your decision.

    Thank you so much, I am
    Thank you so much, I am going to pray for peace and wisdom. No matter what decision is made on Tuesday I need to be at peace with it so I can enjoy life.
  • Kylez
    Kylez Member Posts: 3,761 Member
    #16
    TulsaMomof3 said:

    Thank you so much, I am
    Thank you so much, I am going to pray for peace and wisdom. No matter what decision is made on Tuesday I need to be at peace with it so I can enjoy life.

    Good luck to you on Tuesday!
    Good luck to you on Tuesday! Hoping that you don't have to have any chemo!
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #17
    Kylez said:

    Good luck to you on Tuesday!
    Good luck to you on Tuesday! Hoping that you don't have to have any chemo!

    TulsaMomof 3 .. I too was DCIS stage 1 -- BRCA testing
    was not an option for me .. I am the only woman in 5 generations to have breast cancer.


    Once I got my hands on my path report I tore it apart -- every word, phase .. I then spent the next 72 hours on line or in the library researching my cancer 1) DCIS and 2) HER2 positive. I must say now that I may of gone overboard, but my research gave me a visual prospective on what treatments were available to me, doctors who specialized in both cancers and hospital treatment centers.

    Take a deep breathe and grab yourself a tape recorder, booklet of paper .. write down your questions, and if possible take a friend with you to your first visit or visits. My husband was overwhelmed with worry and fear. My sister and girlfriend proved to be a wealth of information, as I forgot just about everything my Breast Cancer Specialist told me during our first 45 min. appointment.

    Peace and Strength to you TulsaMomof3,

    VickiSam
  • TulsaMomof3
    TulsaMomof3 Member Posts: 105
    #18
    VickiSam said:

    TulsaMomof 3 .. I too was DCIS stage 1 -- BRCA testing
    was not an option for me .. I am the only woman in 5 generations to have breast cancer.


    Once I got my hands on my path report I tore it apart -- every word, phase .. I then spent the next 72 hours on line or in the library researching my cancer 1) DCIS and 2) HER2 positive. I must say now that I may of gone overboard, but my research gave me a visual prospective on what treatments were available to me, doctors who specialized in both cancers and hospital treatment centers.

    Take a deep breathe and grab yourself a tape recorder, booklet of paper .. write down your questions, and if possible take a friend with you to your first visit or visits. My husband was overwhelmed with worry and fear. My sister and girlfriend proved to be a wealth of information, as I forgot just about everything my Breast Cancer Specialist told me during our first 45 min. appointment.

    Peace and Strength to you TulsaMomof3,

    VickiSam

    Thanks Vicki
    I am going to
    Thanks Vicki
    I am going to sit down tonight and write down all my questions. My husband says he can handle it so he is going to go with me. He just sits and listens. Sometimes he remebers things I forget! lol

    (In addition to the DCIS I had a 1.4 cn invasive tumor and was her2-)
  • AMomNETN
    AMomNETN Member Posts: 242
    #19
    waffle8 said:

    They do take all info.
    They do take all info. including tumor size into consideration for treatment plans ...Do you know the grade of your tumor? My tumor was 2cm. grade2 est/prog post and herc neg...no lymph nodes positive....It is all mind boggling...I will have my last chemo July 1...

    Same
    Waffle
    Our dx is almost the same. U end chemo July 1st and mine last is July 16th. Did you have a bilateral mastecomy or a lymphtecomy? I didn't have a choice except whether to have the bilateral.
  • CarrWilson
    CarrWilson Member Posts: 111
    #20
    TulsaMomof3 said:

    Thank you so much, I am
    Thank you so much, I am going to pray for peace and wisdom. No matter what decision is made on Tuesday I need to be at peace with it so I can enjoy life.

    You are so young
    I am 50 years old, 49 when diagnosed, and my score was 16. My Onc told me I would only have a 2% improvement with chemo. After much soul searching and consideration, I did the chemo.

    The way I looked at it was, out of a room of 100 people and 2 were missing would I notice? If one of the two people were me, the answer would be YES!!!

    I feel I still have a lot of living to do, chemo was very doable, and I am at happy with my decision. I have said it before, but if I have a recurrence and did not do everything possible I would be pissed at myself. I would not be able to get the would have's, should have's out of my head.

    That being said, it was my decision. My best friend's score was 18 and she chose not to do chemo. We are all different, we all need to do what is comfortable for us. They also take your age and general health are taken into consideration when considering adjuvent treatment.

    I wish you much luck with your Onc next week.

    - Carrie
  • Sally5
    Sally5 Member Posts: 87
    #21
    TulsaMomof3 said:

    Thanks for the advice, I
    Thanks for the advice, I guess the reason I am struggling back and forth is that I have done to much research on my own! I have read like the NCCN guidlines for oncologist and they reccomend Chemo for any one with invasive cancer over 1cm, I have also read reports about oncotype dx and that only 10% of the woman used in thier study where "younger", There is just way to much information available to someone as OCD as me! I also saw a graph on adjuvant online that my reoocurrance rate would go from an 8% to a 3% (thats a 60% drop) and that woman with my similar DX -4 more lived out of hundred that choose Chemo - that doesn't seem like alot ...unless you where one of those 4!

    Scores
    TulsaMomof3,

    First, you have a great attitude. This is the key to making the right decision. ** Keep asking questions; especially of your doctors.

    Your percent decrease from 8% to 5%.? (It may seem like a 60 % decrease). I think it is a 5% decrease. This STILL may be significant. Read from CarrWilson (if you are the 2 extra women if makes a huge difference).

    >>>> We are not statistics.... we are people and we need to fight anyway we can. I am so proud to hear how many husbands are out there cheering on their wives. Yeah for them, too.

    I am new to understanding the cancer battle. (Just 6 weeks after surgery) but I do know math. If my reoccurance could go from a 2% reoccurance to a 1% chance (Is that 50% better. I don't think it is). I see it as a 1% increase. This could be significant but make your decision with accurate information.

    Can anyone add to this? I thought when you were tested, it also shows whether your (type) of cancer will respond to chemo. I doesn't make sense to put your body through chem if it won't respond to the treatment. Anyone hear this?

    Ladies (on sites with mastectomy and expanders and saline/silicone): In 3 days, I have learned a lot from so many of you. For the first time I feel like I am not going crazy....

    Thanks for a bit of sanity back.

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