im 29 and have Uterine cancer Hysterectomy will be done in a week or so

aprillorey
aprillorey Member Posts: 104
edited March 2014 in Uterine/Endometrial Cancer #1
Hi all i am new to this

I found out on march 22nd 2010 i had Uterine Cancer they said its a grade 1 but they wont know the Stage until they do a full and complet Hysterectomy on me this will be done on April 16th not that far away and of course im 29 years old and now my dream of ever having a baby is over with so im having alot of mixed feelings over this i do ask alot of WHY ME WHY at this age why ?

I am so a scard of having the Hysterectomy if any one has ever been through a Hysterectomy and give set my mind at ease that would be grate they said they wont know the right stage until its done and tested and if i need to have any more treatments or not

i had a D&C with testing and thats how i even found out i had this cancer. for a few years i bleed alot with big blood clots the doctors would not do a thing about it thinking and telling me nothing was wrong but now here i am with this cancer

i am so a scard it seems things are going so fast i want this sugery over with and at the same time i got alot of fear in me about it

so if any one has any advice i could use it

thanks April

Comments

  • pcordle
    pcordle Member Posts: 4
    #2
    I too have uterine cancer
    Dear April,
    So sorry to hear about your cancer. I had a hysterectomy Feb 17th. The doctors didn't know I had cancer. Have the doctors test your pelvic lymph nodes. Usually stage 1 doesn't require any further treatment. I too was never able to have children. I have been a foster parent before. And alot of these babies become available for adopition. You are young. The surgery will be painful for about the first two weeks. They'll give you pain meds. I was scared too. I did alot of research on line plus I ordered books from Amazon.com on Uterine cancer. I am here for you April. I will be there in spirt . You are not alone. My email is patriciacordle@yahoo.com. Prays & hugs Patti
  • aprillorey
    aprillorey Member Posts: 104
    #3
    pcordle said:

    I too have uterine cancer
    Dear April,
    So sorry to hear about your cancer. I had a hysterectomy Feb 17th. The doctors didn't know I had cancer. Have the doctors test your pelvic lymph nodes. Usually stage 1 doesn't require any further treatment. I too was never able to have children. I have been a foster parent before. And alot of these babies become available for adopition. You are young. The surgery will be painful for about the first two weeks. They'll give you pain meds. I was scared too. I did alot of research on line plus I ordered books from Amazon.com on Uterine cancer. I am here for you April. I will be there in spirt . You are not alone. My email is patriciacordle@yahoo.com. Prays & hugs Patti

    Thank you Patti oh yeah i
    Thank you Patti oh yeah i did alot of research and am very scard one thing i cant handle is PAIN so i hope its not as painful as i have been reading and researching all of the Risks and side affects is enough to scare me i got to the point i had to stop researching :( my email is aunt2amiracle@yahoo.com ya they are testing to see if its spreed
  • susie1143
    susie1143 Member Posts: 105
    #4
    Upcoming surgery
    I haven't been on this site for awhile but wanted to wish you fast healing from your surgery. My surgery was in August and I was fortunate to have the robotic surgery and was home after 2 days. My diagnosis was Stage 1C, Grade 2 which basically means intermediate endometrial cancer. The gyn/onc did not want to do any further treatment but I did get a second opinion at Moffitt. Moffitt did recommend brachy treatment (radiation) in hopes of preventing re-occurrence.

    My thoughts and prayers will be with you,
    Susie
  • aprillorey
    aprillorey Member Posts: 104
    #5
    susie1143 said:

    Upcoming surgery
    I haven't been on this site for awhile but wanted to wish you fast healing from your surgery. My surgery was in August and I was fortunate to have the robotic surgery and was home after 2 days. My diagnosis was Stage 1C, Grade 2 which basically means intermediate endometrial cancer. The gyn/onc did not want to do any further treatment but I did get a second opinion at Moffitt. Moffitt did recommend brachy treatment (radiation) in hopes of preventing re-occurrence.

    My thoughts and prayers will be with you,
    Susie

    SUSIE
    thanks for sending me the message do u think if they say no more treatment is needed i should see a 2nd doctor for another Opinon ? the Surgery is in 3 days of course this has me worried :(
  • aeverhart
    aeverhart Member Posts: 5
    #6
    surgery
    Hope all went well with your hysterectomy on the 16th. You were in my thoughts and preayers all week. Let us know how you are doing when you can get up and back online! Hope you have a quick and safe recovery!
  • Cyndi04
    Cyndi04 Member Posts: 7
    #7
    Hi Aprillorey. By now Im
    Hi Aprillorey. By now Im sure u have had ur surgery. I wish you a speedy and safe recovery, I will pray for you and your family. I wish we couldve found eachother sooner. I also have the same as u. All my life I dealt with the heavy bleeding and clots. Clots got bigger and bigger throughout the years. Doctors wouldnt do a thing. I believe it was because of my race and uninsured. In 2004 I was told I had 6 months to live if I didnt get a hesterectomy. In 2005 I got a second opion and was told I didnt have anything and was taken off my meds (MEGACE 40mg). June 2009 Went for a check up and found out I have uterine cancer, stage 2. Now my oncologist wants me to get the hesterectomy within this month cuz cancer has spread. I keep asking myself "WHY ME?" Its very scary, your confused, depressed, stressed out and all of the above. My aunt said it best, "cancer doesnt kill you, its knowing that you have it that does."
  • JenB910
    JenB910 Member Posts: 7
    #8
    I am 28 and just had an
    I am 28 and just had an abdominal hysterectomy 6 weeks ago. I found all the reading made more worried then I needed to be. It's no fun of course, but not as bad as you will read about online. Everyone is different and you are young and will most likely recover better then most women going through one (as the average age is obviously much older). I have been lucky enough to have 1 child, but I did want more so I have been trying to deal with the emotional side of not being able to have more children. I feel this has been harder then any of the physical recovery. Will they be able to save your ovaries? They were able to save 1 of mine, so in theory I could have another child via surogate. Although this is not an option financial for me maybe it could be for you.
  • aprillorey
    aprillorey Member Posts: 104
    #9
    JenB910 said:

    I am 28 and just had an
    I am 28 and just had an abdominal hysterectomy 6 weeks ago. I found all the reading made more worried then I needed to be. It's no fun of course, but not as bad as you will read about online. Everyone is different and you are young and will most likely recover better then most women going through one (as the average age is obviously much older). I have been lucky enough to have 1 child, but I did want more so I have been trying to deal with the emotional side of not being able to have more children. I feel this has been harder then any of the physical recovery. Will they be able to save your ovaries? They were able to save 1 of mine, so in theory I could have another child via surogate. Although this is not an option financial for me maybe it could be for you.

    Cyndi and Jen
    hi ladys 1st ill reply to cyndi

    I had all the same Questions as why me its stressful you become grate fear for sure and its scary im now 8 weeks post my surgery hun

    so this is one of my older post i had some problams like i became very sick and kept throwing up and could not keep my food down was admited back in to the Hospital another 4 days the cause was having bowl problams

    but yes i know all about the bleeding problam badly its no fun is it hun ,i was on medcaid so had insurence only problam is it seem they miss treated me many times before i found out i had the cancer maybe even some after words but keep strong it will be ok

    JEN

    i asked if they could frezz eggs for us and they said NO pluse Financial wise i cant aford it sadly so no kids for us

    i dealt with loads of pain from srugery im still having side affects like part of the cut isnt closed and its been 8 weeks but it isnt as bad as i thought its scary reading the crap on the internet

    but it is Emotional roller coster when it comes to not having a baby for sure

    i wish u ladys luck and god bless u both :) keep me posted
  • pacarini
    pacarini Member Posts: 6
    #10
    susie1143 said:

    Upcoming surgery
    I haven't been on this site for awhile but wanted to wish you fast healing from your surgery. My surgery was in August and I was fortunate to have the robotic surgery and was home after 2 days. My diagnosis was Stage 1C, Grade 2 which basically means intermediate endometrial cancer. The gyn/onc did not want to do any further treatment but I did get a second opinion at Moffitt. Moffitt did recommend brachy treatment (radiation) in hopes of preventing re-occurrence.

    My thoughts and prayers will be with you,
    Susie

    Upcoming Surgery
    Were you told how far the invasion of the myometrium was? Did you have any further treatment? Hope your doing well.
  • sillylilmizzy
    sillylilmizzy Member Posts: 10
    #11
    I totally understand.

    Hello April,

    I am new on here, and I was reading about you having your Hysterectomy, I just had mine done 2 months ago. There were years of my husband and I trying, and finally after transfusions and my hemogloben dropping so low. I had to make a life and death choice, mine was to be alive to help my husband and go down this road together. I suffer alot right now, always wanted a child especially one who looks like Mikey and I. I know I go thru mood swings I am depressed and break out into tears, and then I am mad at another moment and then I feel joy here or there. Mostly I feel numb.

    I had fibroid tumors for 5 years, and my husband and I had been trying for a baby, my doctor never said I had cancer just recently, which the fibroids had no cancer. It was hiding in the lining of my uterus. It was not till this last friday I found out that I had cancer in the lining of my uterus. It's called Endometrial Cancer. I read up alot over the internet. I know sweetie how hard this must be for you..

    I am in a wheelchair and I was so indpendant and would cook clean grocery shop and could walk all day and now I have no energy. It's a long recovery process....

    I have no advice ask lots of questions don't let all of this overwelm you.. Enjoy those moments with your husband and laugh. Let him hold you ask for lots of help sweetie.. I use to not, and now I do. Remember your body will tell you when you can't do something and when you can. I undersand about the test, I asked my doctor if I was totally cancer free and he said well let me talk to the other doctors and make sure and maybe their might need to be more test. I think it was his way of saying Hey Mona take one step at a time breath, your going thru alot..

    I hope all is well.. You might of had all this done already I wish you good luck.
  • aprillorey
    aprillorey Member Posts: 104
    #12
    sillylilmizzy said:

    I totally understand.

    Hello April,

    I am new on here, and I was reading about you having your Hysterectomy, I just had mine done 2 months ago. There were years of my husband and I trying, and finally after transfusions and my hemogloben dropping so low. I had to make a life and death choice, mine was to be alive to help my husband and go down this road together. I suffer alot right now, always wanted a child especially one who looks like Mikey and I. I know I go thru mood swings I am depressed and break out into tears, and then I am mad at another moment and then I feel joy here or there. Mostly I feel numb.

    I had fibroid tumors for 5 years, and my husband and I had been trying for a baby, my doctor never said I had cancer just recently, which the fibroids had no cancer. It was hiding in the lining of my uterus. It was not till this last friday I found out that I had cancer in the lining of my uterus. It's called Endometrial Cancer. I read up alot over the internet. I know sweetie how hard this must be for you..

    I am in a wheelchair and I was so indpendant and would cook clean grocery shop and could walk all day and now I have no energy. It's a long recovery process....

    I have no advice ask lots of questions don't let all of this overwelm you.. Enjoy those moments with your husband and laugh. Let him hold you ask for lots of help sweetie.. I use to not, and now I do. Remember your body will tell you when you can't do something and when you can. I undersand about the test, I asked my doctor if I was totally cancer free and he said well let me talk to the other doctors and make sure and maybe their might need to be more test. I think it was his way of saying Hey Mona take one step at a time breath, your going thru alot..

    I hope all is well.. You might of had all this done already I wish you good luck.

    Mona
    Hi hun thanks for sharing your story my surgery was April 16th i just got done with my radition my body gets all tried out as well like i use to shop all day long or clean house or on the go now its like just going to the store makes me tried so i can relate to you on that sorry to here of your story as well. i think more and more younger woman are geting this cancer we both share there needs to be some one to speak up about this cancer what state was you ?

    im stage 1A but grade 2 and there are 3 grades so that is why i needed the radition it is very much scary so far my treatments over im in remison my cancer doctor says i wont be cancer free for 5 years i still have test and such ct scans to be done in the next 5 years but treatment is now over i would love to keep in touch with u

    thank u for writing

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