Diagnosed with uterine cancer grade 1 on 05/11/10

Kimba2u
Kimba2u Member Posts: 1 Member
edited March 2014 in Uterine/Endometrial Cancer #1
I was diagnosed with grade 1 uterine cancer last Tuesday 05/11/10. I go to see the Oncologist tomorrow 05/1710 and I am so scared and uncertain about what is to come.
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Comments

  • nempark
    nempark Member Posts: 681
    #2
    about being scared
    Hi my darling do not be scared. I was diagnosed in november 2009 and I can certainly relate to you. Thank God you are grade 1. The medicine these days are very effective. Think positive and be brave. We cannot change what is already there so we have to do our best to take care of it. Make sure Doctor the hospital and the pathologists are all under your insurance, or else you will be billed separately. It happened to me. Please let me know the details. I feel your pain and will be praying for you. Believe me, it is not the end of the world, its a new beginning. You must hang in there and be a fighter. Wish I was there to give you a hug. hope to hear from you soon. June. BY THE WAY YOU NEED TO TAKE A NOTE BOOK SO YOU CAN WRITE DOWN QUESTIONS AND ANSWERS. BETTER IF YOU TAKE SOMEONE WITH YOU.
  • jazzy1
    jazzy1 Member Posts: 1,379
    #3
    nempark said:

    about being scared
    Hi my darling do not be scared. I was diagnosed in november 2009 and I can certainly relate to you. Thank God you are grade 1. The medicine these days are very effective. Think positive and be brave. We cannot change what is already there so we have to do our best to take care of it. Make sure Doctor the hospital and the pathologists are all under your insurance, or else you will be billed separately. It happened to me. Please let me know the details. I feel your pain and will be praying for you. Believe me, it is not the end of the world, its a new beginning. You must hang in there and be a fighter. Wish I was there to give you a hug. hope to hear from you soon. June. BY THE WAY YOU NEED TO TAKE A NOTE BOOK SO YOU CAN WRITE DOWN QUESTIONS AND ANSWERS. BETTER IF YOU TAKE SOMEONE WITH YOU.

    Be Strong!
    Welcome and know this group is a wonderful support.

    I was diagnosed with uterine 3C last February and was horrified. My husband and best friend and all my family members have been holding my hand all the way thru. At first it's the unknown, but as time goes and you step into another part of the process, it does get easier and less scary.

    June mentioned writing down questions...yes! I had my list before the first appt, and by the way, took my husband as you'll need a second set of ears to listen to what the doc says. In fact, each follow-up appt with my oncol doc I have a list of questions. Don't be timid about asking as the way you'll gain more insight and knowledge.

    You will one day look back at you diagnosis and agree it wasn't so bad. What I've learned is life is very valuable and to enjoy each day no matter how difficult it may be.

    Best to you and plse keep us posted on your progress.((((( hugs )))))

    Jan
  • nempark
    nempark Member Posts: 681
    #4
    jazzy1 said:

    Be Strong!
    Welcome and know this group is a wonderful support.

    I was diagnosed with uterine 3C last February and was horrified. My husband and best friend and all my family members have been holding my hand all the way thru. At first it's the unknown, but as time goes and you step into another part of the process, it does get easier and less scary.

    June mentioned writing down questions...yes! I had my list before the first appt, and by the way, took my husband as you'll need a second set of ears to listen to what the doc says. In fact, each follow-up appt with my oncol doc I have a list of questions. Don't be timid about asking as the way you'll gain more insight and knowledge.

    You will one day look back at you diagnosis and agree it wasn't so bad. What I've learned is life is very valuable and to enjoy each day no matter how difficult it may be.

    Best to you and plse keep us posted on your progress.((((( hugs )))))

    Jan

    you are wonderful and always there
    Hi everyone can count on you for being there when they need someone. Love june
  • jdr5526
    jdr5526 Member Posts: 5
    #5
    Right there with you!!
    Got my diagnosis yesterday (5/26), after D&C a month ago. Surgery/ staging scheduled for next week. I have so much to learn. . . and the journey begins . . .
  • Kat Lady
    Kat Lady Member Posts: 13
    #6
    Here with you!
    I was diagnosed with grade 1, stage 1b endrometrial adenocarcinoma in April, and had a total hysterectomy on April 27th. Grade 1 is the lowest grade, the cells look most like normal cells. By now you have seen the oncologist and know what they recommend. This is a great site, there is a lot of support and information here. Good luck to you and let us know how you come out! (Also, I have found another good site, if you have a hysterectomy, it's called Hystersisters.)

    Take care,
    Julie
  • nempark
    nempark Member Posts: 681
    #7
    jdr5526 said:

    Right there with you!!
    Got my diagnosis yesterday (5/26), after D&C a month ago. Surgery/ staging scheduled for next week. I have so much to learn. . . and the journey begins . . .

    HI JDr
    I can just imagine the state of shock you are in we were all there.
    But its imazing how we are created by the wonderful God of this universe, you are going to surprise yourself how much you can endure. Be strong my love, don't be angry, this is all part of life it's just that we never think that it will happen to us. Life goes on and as long as you keep a positive attitude you will get through this. Medicine is wonderful. Take care of your self and please let us know how the staging went. You are going to be fine. Lots of comfort I sent to you. June
  • nempark
    nempark Member Posts: 681
    #8
    Kat Lady said:

    Here with you!
    I was diagnosed with grade 1, stage 1b endrometrial adenocarcinoma in April, and had a total hysterectomy on April 27th. Grade 1 is the lowest grade, the cells look most like normal cells. By now you have seen the oncologist and know what they recommend. This is a great site, there is a lot of support and information here. Good luck to you and let us know how you come out! (Also, I have found another good site, if you have a hysterectomy, it's called Hystersisters.)

    Take care,
    Julie

    Hi Julie
    Hope you are doing well. What treatment are you on, if any? Good health to you June
  • aprillorey
    aprillorey Member Posts: 104
    #9
    nempark said:

    Hi Julie
    Hope you are doing well. What treatment are you on, if any? Good health to you June

    Hello i know what you are
    Hello i know what you are feeling and the sock you are in. march 22nd 2010 i was in the very same sock when i found out i was in the early stages of Urtaus cancer. on April 16th 2010 i underwent a full surgery they removed all things the urtaus the tubes the overys it was hard for me because my Husband and i both wanted children im only 29 so the feelings i faced was mad,angery hurt and not knowing what may happen with this cancer deep fear had set in over me wondering if i would die was my 1st thought and how long did i have left to live ?

    how ever when they tested the lymp nodes i was only stage 1 like you im stage 1A and grade 2 im now 6 weeks past the Surgery the doctor told me im in Remison of the cancer how ever they want me to do Radition to down the risk of it coming back so i will be doing the radition in a few weeks .

    I want to let you know if your stage 1 hun like i am you will be ok there is alot of hope my husbands aunt was stage 1 and shes now 13 years in cancer free.

    what type of treatments will you have done ? i take it u had or are going to have the Surgery to remove all ?

    normley they dont no the treatment or staging until after the removal of all of it and they test the lymp nodes so i wasnt given my stage until then but i was told early stages

    just know we all been where you are the news that you have cancer no mater the stage can bring grate fear

    God bless

    April
  • jdr5526
    jdr5526 Member Posts: 5
    #10
    aprillorey said:

    Hello i know what you are
    Hello i know what you are feeling and the sock you are in. march 22nd 2010 i was in the very same sock when i found out i was in the early stages of Urtaus cancer. on April 16th 2010 i underwent a full surgery they removed all things the urtaus the tubes the overys it was hard for me because my Husband and i both wanted children im only 29 so the feelings i faced was mad,angery hurt and not knowing what may happen with this cancer deep fear had set in over me wondering if i would die was my 1st thought and how long did i have left to live ?

    how ever when they tested the lymp nodes i was only stage 1 like you im stage 1A and grade 2 im now 6 weeks past the Surgery the doctor told me im in Remison of the cancer how ever they want me to do Radition to down the risk of it coming back so i will be doing the radition in a few weeks .

    I want to let you know if your stage 1 hun like i am you will be ok there is alot of hope my husbands aunt was stage 1 and shes now 13 years in cancer free.

    what type of treatments will you have done ? i take it u had or are going to have the Surgery to remove all ?

    normley they dont no the treatment or staging until after the removal of all of it and they test the lymp nodes so i wasnt given my stage until then but i was told early stages

    just know we all been where you are the news that you have cancer no mater the stage can bring grate fear

    God bless

    April

    Thank you for the comforting
    Thank you for the comforting words. There is truly safety in numbers. I don't feel alone!!

    The scary part right now is the waiting for the staging. I have no idea how extensive or not, it is. Not totally true . . . pathology said "well-differentiated", which I am learning is a positive thing. My brain is swimming with learning a new language. But, I had a CT scan day after diagnosis and it should "something" in the limphnodes and cervix. MRI's scheduled be for surgery next week.

    April, my heart goes out to you about having children. I hope that some wonderful little being finds his or her way into your lives.
  • aprillorey
    aprillorey Member Posts: 104
    #11
    jdr5526 said:

    Thank you for the comforting
    Thank you for the comforting words. There is truly safety in numbers. I don't feel alone!!

    The scary part right now is the waiting for the staging. I have no idea how extensive or not, it is. Not totally true . . . pathology said "well-differentiated", which I am learning is a positive thing. My brain is swimming with learning a new language. But, I had a CT scan day after diagnosis and it should "something" in the limphnodes and cervix. MRI's scheduled be for surgery next week.

    April, my heart goes out to you about having children. I hope that some wonderful little being finds his or her way into your lives.

    Thank u :) sadly i looked in
    Thank u :) sadly i looked in to adoption u have to wait until u get a clear from your doctor and your cancer free ( my doc said i wont be for 5 years ) but i believe god can work miracles

    your right the hardest part is waiting for the stage of the cancer and not knowing what is to come next i was the very same way i never had a MRI done i only had a CT scan done

    ill be praying for your MRI and the Surgery do u no what type of cut u will have ? mine was very big up and down cut so took longer to heal im only 6 weeks past my surgery so still trying to heal still have pain

    but they do give u a Morphine pump but i wont lie its still painful and they wanted me to walk around the day after Surgery it was hard

    But again the staging and the waiting game is hard not knowing one good thing i learn is this is a slow cancer


    yet its still scary

    just know we are here for u
  • Kat Lady
    Kat Lady Member Posts: 13
    #12
    nempark said:

    Hi Julie
    Hope you are doing well. What treatment are you on, if any? Good health to you June

    Nempark: "What treatment are you on, if any?"
    My surgery was done by a gynocologist who is not an oncologist. My cancer was a stage 1b.
    A radiology oncologist suggested 28 sessions of radiation as preventative only to bring my chances of recurrence down to 1-2%. I am concerned about the side effects of radiation; no lymph nodes were taken, just everything else. I am getting second opinions this coming week from a gynocologist oncologist and the medical oncologist who followed up my husband for his cancers.
  • jdr5526
    jdr5526 Member Posts: 5
    #13
    Kat Lady said:

    Nempark: "What treatment are you on, if any?"
    My surgery was done by a gynocologist who is not an oncologist. My cancer was a stage 1b.
    A radiology oncologist suggested 28 sessions of radiation as preventative only to bring my chances of recurrence down to 1-2%. I am concerned about the side effects of radiation; no lymph nodes were taken, just everything else. I am getting second opinions this coming week from a gynocologist oncologist and the medical oncologist who followed up my husband for his cancers.

    Good luck, Kat. Hope you're
    Good luck, Kat. Hope you're in good hands. April, not to worry about the adoption, it'll happen. You're gonna need all your stamina to chase a little one!!

    I'm having robotic laproscopy on Thursday. Luckily for me, I have a great gyn who referred me to the gyn-onc for the D&C in April. All I know right now is complete hysterectomy & ovaries. We haven't even talked about after treatment, Again, waiting on the staging.

    I'll keep you girls posted. BE WELL!! And, Thanks for being there.

    Janine
  • nempark
    nempark Member Posts: 681
    #14
    Kat Lady said:

    Nempark: "What treatment are you on, if any?"
    My surgery was done by a gynocologist who is not an oncologist. My cancer was a stage 1b.
    A radiology oncologist suggested 28 sessions of radiation as preventative only to bring my chances of recurrence down to 1-2%. I am concerned about the side effects of radiation; no lymph nodes were taken, just everything else. I am getting second opinions this coming week from a gynocologist oncologist and the medical oncologist who followed up my husband for his cancers.

    about treatment
    Hi Kat: I was diagnosed in 11/2009. I have a great Gyn/onc. at Englewood hospital in New Jersey. I had total hysterectomny, lymph nodes, omentum all removed by laproscopic procedure, it was great one day in hospital and four button holes. Stage 1A. I had 6 sessions of chemo Doc says he was not going to recommend radiation. Six month ct and checkup showed remission. Thank God. Wow your husband had cancer too? May God continue to give you both the strength and wisdom to endure this journey. So many people I have heard from that had radiation and did very well with no side effects you will be the same. Please let me know the results and how you are feeling. Big hugs. June
  • memerider
    memerider Member Posts: 1
    #15
    Kat Lady said:

    Nempark: "What treatment are you on, if any?"
    My surgery was done by a gynocologist who is not an oncologist. My cancer was a stage 1b.
    A radiology oncologist suggested 28 sessions of radiation as preventative only to bring my chances of recurrence down to 1-2%. I am concerned about the side effects of radiation; no lymph nodes were taken, just everything else. I am getting second opinions this coming week from a gynocologist oncologist and the medical oncologist who followed up my husband for his cancers.

    Stage 1b and radiation
    I'm new here. Kat Lady, I'm very curious to learn what you decide to do. I had surgery (radical hysterectomy) February 2 by a gynecologic oncologist and was told at my follow-up last week that it was stage 1b, and the frozen lymph node material removed at surgery was negative, so I may not have to have chemo or radiation.
  • sleem
    sleem Member Posts: 92
    #16
    Stage 1A Grade 3
    Aug. 2008 I found my own gynecologist at specific cancer hospital and did the full treatment most known to increase positive results. Ask questions, be brave, and know that you are not alone. Hair loss was not a problem for me. I had my top 10 list for benefits of having no hair!
  • susie1143
    susie1143 Member Posts: 105
    #17
    Stage 1C, Grade 2
    I was diagnosed last year and after the surgery the gyn/onc didn't think any other treatment was necessary. I went for a second opinion and brachy was recommended. I decided to go with the brachy since I was not a Grade 1. Now I'm in NED.

    I hope this helps with your treatment.

    Susie
  • mikkiway
    mikkiway Member Posts: 1
    #18
    susie1143 said:

    Stage 1C, Grade 2
    I was diagnosed last year and after the surgery the gyn/onc didn't think any other treatment was necessary. I went for a second opinion and brachy was recommended. I decided to go with the brachy since I was not a Grade 1. Now I'm in NED.

    I hope this helps with your treatment.

    Susie

    I was diagnosed with uterine cancer 2 weeks ago
    This is my story I was having a lot of problems with heavy bleeding, clots and horrible cramps. I would have never went to the doctor but I started to bleed twice a month and I knew something was wrong. So one of my coworkers suggested I get "Abalation" she had it and raved how it changed her life. I found a doctor to get this God send and my doctor ordered a biopsy and an ultrasound. I was so excited, I had my Abalation surgery set for Aug 16. I get to the hospital get checked in they take back I'm in the bed IV in my arm. My doctor comes in to discuss any questions I may have and that’s when my life changed he remembers my strange name and he gets very quiet then starts to apologize to me. I'm so confused I'm thinking what wrong then he said the words..."After reviewing your biopsy I'm sorry you have uterine cancer" He went on to say that I was young and it appears to be at stage 1 grade 1 which was good news. I believed the world stopped for a few seconds. They obviously canceled the Abalation surgery he set me up with a gynecology oncology Dr so now I'm scheduled for a complete robotic hysterectomy including removing my lymph nodes and needless to say I'm TERRIFIED! I don’t know what scares me more the surgery, recovery or what may come after having a hysterectomy. I guess I should say I'm 39, I was married at a very young age so I am blessed to have a son 18 and a daughter 19. I am single now I have a guy friend that I'm crazy about but that’s a whole other story I've been dating for almost a year he's been pretty nice to me thru all of this but its much more than he signed up for. I'm a only child, I lost my mother who was my best friend 10 months ago and I feel very alone my children are both in school which worries me a lot because I hear I will need lots of help after the surgery. I hope the recovery wont be long until I can care for myself because I'm usually not one for depending on people. I want to thank you for all your wonderful stories they have truly helped me to know there are woman out there with the same problems, questions and worries as me it is very comforting. Well my surgery is scheduled for Sept 1st please keep me in your prayers I will let you know how it turns out......God Bless you ALL!
  • Unknown
    Unknown
    #19
    mikkiway said:

    I was diagnosed with uterine cancer 2 weeks ago
    This is my story I was having a lot of problems with heavy bleeding, clots and horrible cramps. I would have never went to the doctor but I started to bleed twice a month and I knew something was wrong. So one of my coworkers suggested I get "Abalation" she had it and raved how it changed her life. I found a doctor to get this God send and my doctor ordered a biopsy and an ultrasound. I was so excited, I had my Abalation surgery set for Aug 16. I get to the hospital get checked in they take back I'm in the bed IV in my arm. My doctor comes in to discuss any questions I may have and that’s when my life changed he remembers my strange name and he gets very quiet then starts to apologize to me. I'm so confused I'm thinking what wrong then he said the words..."After reviewing your biopsy I'm sorry you have uterine cancer" He went on to say that I was young and it appears to be at stage 1 grade 1 which was good news. I believed the world stopped for a few seconds. They obviously canceled the Abalation surgery he set me up with a gynecology oncology Dr so now I'm scheduled for a complete robotic hysterectomy including removing my lymph nodes and needless to say I'm TERRIFIED! I don’t know what scares me more the surgery, recovery or what may come after having a hysterectomy. I guess I should say I'm 39, I was married at a very young age so I am blessed to have a son 18 and a daughter 19. I am single now I have a guy friend that I'm crazy about but that’s a whole other story I've been dating for almost a year he's been pretty nice to me thru all of this but its much more than he signed up for. I'm a only child, I lost my mother who was my best friend 10 months ago and I feel very alone my children are both in school which worries me a lot because I hear I will need lots of help after the surgery. I hope the recovery wont be long until I can care for myself because I'm usually not one for depending on people. I want to thank you for all your wonderful stories they have truly helped me to know there are woman out there with the same problems, questions and worries as me it is very comforting. Well my surgery is scheduled for Sept 1st please keep me in your prayers I will let you know how it turns out......God Bless you ALL!

    This comment has been removed by the Moderator
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #20
    mikkiway said:

    I was diagnosed with uterine cancer 2 weeks ago
    This is my story I was having a lot of problems with heavy bleeding, clots and horrible cramps. I would have never went to the doctor but I started to bleed twice a month and I knew something was wrong. So one of my coworkers suggested I get "Abalation" she had it and raved how it changed her life. I found a doctor to get this God send and my doctor ordered a biopsy and an ultrasound. I was so excited, I had my Abalation surgery set for Aug 16. I get to the hospital get checked in they take back I'm in the bed IV in my arm. My doctor comes in to discuss any questions I may have and that’s when my life changed he remembers my strange name and he gets very quiet then starts to apologize to me. I'm so confused I'm thinking what wrong then he said the words..."After reviewing your biopsy I'm sorry you have uterine cancer" He went on to say that I was young and it appears to be at stage 1 grade 1 which was good news. I believed the world stopped for a few seconds. They obviously canceled the Abalation surgery he set me up with a gynecology oncology Dr so now I'm scheduled for a complete robotic hysterectomy including removing my lymph nodes and needless to say I'm TERRIFIED! I don’t know what scares me more the surgery, recovery or what may come after having a hysterectomy. I guess I should say I'm 39, I was married at a very young age so I am blessed to have a son 18 and a daughter 19. I am single now I have a guy friend that I'm crazy about but that’s a whole other story I've been dating for almost a year he's been pretty nice to me thru all of this but its much more than he signed up for. I'm a only child, I lost my mother who was my best friend 10 months ago and I feel very alone my children are both in school which worries me a lot because I hear I will need lots of help after the surgery. I hope the recovery wont be long until I can care for myself because I'm usually not one for depending on people. I want to thank you for all your wonderful stories they have truly helped me to know there are woman out there with the same problems, questions and worries as me it is very comforting. Well my surgery is scheduled for Sept 1st please keep me in your prayers I will let you know how it turns out......God Bless you ALL!

    Mikkiway sorry about your diagnosis
    We have all been there where the world stops when we hear that cancer diagnosis. It is unreal that it can be happening to us. I had robotic surgery and was in the hospital only overnight, even though the surgery was 6 hours long. I did not need any pain pills after surgery. I had no trouble with my bowels after surgery and was able to eat what ever I wanted. I started walking the day after surgery and gradually increased it a little each day.

    Sorry to hear about the loss of your mother and best friend. She would have been a great support for you. Hopefully it will be early stages for you and you will not need any further treatment. You will remain in my prayers. In peace and caring.
  • TiggersDoBounce
    TiggersDoBounce Member Posts: 408
    #21
    mikkiway said:

    I was diagnosed with uterine cancer 2 weeks ago
    This is my story I was having a lot of problems with heavy bleeding, clots and horrible cramps. I would have never went to the doctor but I started to bleed twice a month and I knew something was wrong. So one of my coworkers suggested I get "Abalation" she had it and raved how it changed her life. I found a doctor to get this God send and my doctor ordered a biopsy and an ultrasound. I was so excited, I had my Abalation surgery set for Aug 16. I get to the hospital get checked in they take back I'm in the bed IV in my arm. My doctor comes in to discuss any questions I may have and that’s when my life changed he remembers my strange name and he gets very quiet then starts to apologize to me. I'm so confused I'm thinking what wrong then he said the words..."After reviewing your biopsy I'm sorry you have uterine cancer" He went on to say that I was young and it appears to be at stage 1 grade 1 which was good news. I believed the world stopped for a few seconds. They obviously canceled the Abalation surgery he set me up with a gynecology oncology Dr so now I'm scheduled for a complete robotic hysterectomy including removing my lymph nodes and needless to say I'm TERRIFIED! I don’t know what scares me more the surgery, recovery or what may come after having a hysterectomy. I guess I should say I'm 39, I was married at a very young age so I am blessed to have a son 18 and a daughter 19. I am single now I have a guy friend that I'm crazy about but that’s a whole other story I've been dating for almost a year he's been pretty nice to me thru all of this but its much more than he signed up for. I'm a only child, I lost my mother who was my best friend 10 months ago and I feel very alone my children are both in school which worries me a lot because I hear I will need lots of help after the surgery. I hope the recovery wont be long until I can care for myself because I'm usually not one for depending on people. I want to thank you for all your wonderful stories they have truly helped me to know there are woman out there with the same problems, questions and worries as me it is very comforting. Well my surgery is scheduled for Sept 1st please keep me in your prayers I will let you know how it turns out......God Bless you ALL!

    Miki
    Welcome to the group...sorry you have to be here :(

    I know you are scared and uncertain about what the future holds for you....hang in, we are all here to support.

    I had the Robotic Surgery and it is amazingly recoverable in a relatively short period of time compared with an abdominal surgery....

    Take all the help you can get....you deserve to be pampered....trust me on this :)

    Please stay in touch and we will be with you through this!

    Laurie

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