Surgery delayed....This isn't easy :(

Devasted
Devasted Member Posts: 185
edited March 2014 in Colorectal Cancer #1
We had the MRI yesterday, four weeks after the PVE. Surg. onc. disappointed the liver had not overgrown as much as he had expected. He gave the MRI info to the rad. dept to measure volume of liver. They actually did the pre-op (bloodwork, chest x-ray, etc) and the original date is still available, first week in June,they will call us Monday and confirm whether surgery is possible. The leisons in the liver have grown while waiting for surgery (xeloda didn't do it again). Surg, onc. said cyperknife may be an option for one isolated leison. We signed the paperwork for the surgery and they are doing lar. with a small incision to check before proceeding with surgery. So, if the liver volume isn't enough, he will do chemo for a couple months and re-access..

Has anyone had anything similar?

Thanks

Comments

  • Crow71
    Crow71 Member Posts: 679 Member
    #2
    No experience with this. I
    No experience with this. I just wanted to say hang in there. I hope you get good news on Monday. Many sparks to you.
    Roger
  • pf78248
    pf78248 Member Posts: 209
    #3
    Not Unusual for Delayed Surgery
    My husband David had PVE done last fall with a scheduled surgery date of December 2009 and his tumor had grown too much so he had to do a couple of months of chemo and his resection was rescheduled for February. In February there was another delay for various reasons. Finally in March he had successful liver resection. So the third time was a charm! I know how disappointed you must be, but don't get too down. It is not unusual for these bumps in the road, according to the good people at MDA. David's surgery was at M D Anderson in Houston and we understood often there are delays. It sure is hard on the patient, and their family. We had kids and family flying in from all over the country and I can't tell you how many times we had to change flights and hotels. We had planned our Christmas in Houston so at the last minute all that had to be rearranged. But in the end, to finally have the resection, is truly a gift. So many aren't eligible and David wasn't either, according to two other surgeons. We were beyond thrilled to find the expertise and skill of his surgeon in Houston.

    Please don't give up hope. It's going to happen for you!

    Hugs and Healing,
    Priscilla
  • Devasted
    Devasted Member Posts: 185
    #4
    pf78248 said:

    Not Unusual for Delayed Surgery
    My husband David had PVE done last fall with a scheduled surgery date of December 2009 and his tumor had grown too much so he had to do a couple of months of chemo and his resection was rescheduled for February. In February there was another delay for various reasons. Finally in March he had successful liver resection. So the third time was a charm! I know how disappointed you must be, but don't get too down. It is not unusual for these bumps in the road, according to the good people at MDA. David's surgery was at M D Anderson in Houston and we understood often there are delays. It sure is hard on the patient, and their family. We had kids and family flying in from all over the country and I can't tell you how many times we had to change flights and hotels. We had planned our Christmas in Houston so at the last minute all that had to be rearranged. But in the end, to finally have the resection, is truly a gift. So many aren't eligible and David wasn't either, according to two other surgeons. We were beyond thrilled to find the expertise and skill of his surgeon in Houston.

    Please don't give up hope. It's going to happen for you!

    Hugs and Healing,
    Priscilla

    Thank you
    Priscilla,

    I can't thank you enough for your post. We had visitied the surg. onc. twice (once at orig. dx, once before FOLFOX and he said surgery wasn't an option) then after FOLFOX, the surg. onc. said we can do this. Friday was the pre-op visit and everyone, including the surgeon was disappointed...we were so sure this may come to an end or at least there was a chance. What type of chemo was your husband on for two months? Also my husband has not had the rectal tumor removed, and they won't do it now because of the size of the liver. It has been a quiet long day and seems like forever until Monday, but we had a good day and we're hoping for good news.
    Again, I can't thank you enough! So happy to hear about your husband's successful surgery.
    Wishing you all the best.
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    #5
    I'm with Roger
    I have no experience either but I'm praying for you, big hugs
    Sonia
  • pf78248
    pf78248 Member Posts: 209
    #6
    Devasted said:

    Thank you
    Priscilla,

    I can't thank you enough for your post. We had visitied the surg. onc. twice (once at orig. dx, once before FOLFOX and he said surgery wasn't an option) then after FOLFOX, the surg. onc. said we can do this. Friday was the pre-op visit and everyone, including the surgeon was disappointed...we were so sure this may come to an end or at least there was a chance. What type of chemo was your husband on for two months? Also my husband has not had the rectal tumor removed, and they won't do it now because of the size of the liver. It has been a quiet long day and seems like forever until Monday, but we had a good day and we're hoping for good news.
    Again, I can't thank you enough! So happy to hear about your husband's successful surgery.
    Wishing you all the best.

    Chemo
    David was on folfori with Avastin for the first month, then just folfiri. I know they wanted him off Avastin one month before surgery. Best of luck to you both!

    Priscilla
  • greybeard64
    greybeard64 Member Posts: 254
    #7
    Kinda similar? I think?
    I had a set back waiting for operation number three, ended up getting radiation treatments when Chemo wasnt working. In my case none of the chemo regiments has ever had any effect on the cancer, radiation stopped the growth and I think they called it "provided clear margins?" around the tumors for the surgery? Something like that, I guess I rely to much on my wife to remember the medical terminology? Dont give up, the one thing we all hold on to is hope.
    Sending good vibes your way and wishing for you the best.
    Chris
  • Devasted
    Devasted Member Posts: 185
    #8
    greybeard64 said:

    Kinda similar? I think?
    I had a set back waiting for operation number three, ended up getting radiation treatments when Chemo wasnt working. In my case none of the chemo regiments has ever had any effect on the cancer, radiation stopped the growth and I think they called it "provided clear margins?" around the tumors for the surgery? Something like that, I guess I rely to much on my wife to remember the medical terminology? Dont give up, the one thing we all hold on to is hope.
    Sending good vibes your way and wishing for you the best.
    Chris

    Thanks to you all
    Thanks for your support and invaluable information...we are hoping for a good report tomorrow.
    As always, thinking and wishing the best for you all...there's always hope! :)
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #9
    Devasted said:

    Thanks to you all
    Thanks for your support and invaluable information...we are hoping for a good report tomorrow.
    As always, thinking and wishing the best for you all...there's always hope! :)

    thinking of you
    Just wanted to let you know I am thinking of and hoping and praying for the best outcome in all of this.
    Keep us posted...

    Lisa

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