hair loss with folfiri (vs folfox)

Hair Loss
I had the same hair thinning on both regimens. I was told to get a wig for Folfiri, so I did but I did not need it.

Catherine

jillpls said:

more thinning on folfiri
I didn't lose hair on folfox but I did lose about half my hair on folfiri. It's been about a year since I was on folfiri and my hair has come back in a little. It's still thin though but I can't complain. No one other than me or my husband notices the difference. Jill

Hair Loss
FOLFOX... no hair loss

FOLFIRI... major hair loss, eventually shaved head.

Rob; in Vancouver

(Currently with coarse, curly ERBITUX hair!)

Hair loss
This is first time I have put on comment on board, but joined and have been following for awhile, thanks to all for sharing.

I was told no hair loss with folfox, so I was shocked when it did fall out, but my taste buds came back the same day, so I was happy for that. I did have a terrible reaction to folfox and only made it through 7, ended up in hospital, etc. Dr. said it was worse reaction he had seen. It will be one year almost and hair came back rather quickly with a beautiful texture, so it was all ok. I have not had anything since then and so far so good. I believe no hair loss is the usual for most others....

Pat

ADKer said:

hair loss
My first systemic chemo regimen (in addition to chemo through HAI pump) was oxaliplatin and irinotecan. I had only mild thinning of hair discernible only to me. About 6 months later, I did systemic irinotecan only. Within first month, I lost 60-70% of my hair and most of the rest over the next several months.

Of course, it does grow back; for me, with a vengeance.

I am interested in this too.
I am interested in this too. I will be starting folfori or xeliri next week. My hair thinned a lot with folfox. I fouund a great product called XFusion Keratin Hair Fibers That come in different colors and you shake in on your scalp. It really helped my hair to look a lot better.

The thought of losing my hair still really scares me. I know that after a year of DX I should not be worried about this. I know in the big picture your hair is not important, but it will be devastating to me if I lose my hair. I bought a nice wig before I started Folfox, but didn't need it. My daughter is 14 and I think me losing my hair would be hard on her too.

Brenda

My husband has had 3 cycles
My husband has had 3 cycles of FOLFIRI and his hair was very thick. It started to look patchy so he shaved it. Our oncologist said most often it 'thins'. I was happy to hear he wouldn't lose all of his hair (eyebrows, arm & leg hair etc..) Of course I love my husband unconditionally; I hate to see all of these side effects from the toxins that are in his body. I hope they are doing their job.
Erin

unknown said:

This comment has been removed by the Moderator

a product that grows eyebrows?
you really know something that can grow eyebrows? Due to a skin condition, I have been drawing on my eyebrows since I was 16 and have always dreamed of having real hair eyebrows! What product do you use? Of course, the hair follicles were damaged, which is why I don't have any eyebrows, wonder if that matters.
mary

I lost all my hair on FOLFIRI. It's the Irinotecan that does it. I took it once for a short period and had some hair loss (but no one else could tell). Then I went on it again about 8 months later and within 2 months I was completely bald. (The fallout process was not fun). Six months after that, I went off the drug and my hair started growing back. It's a different color now and thicker than before and wavy.

Bless your heart, Erin. I lost my boyfriend to Melanoma in 2016. It took many years to accept the pain he was in during his brief illness. I think that watching someone you love suffer is one of the hardest things we can experience as human beings. I took two months off work and cared for him as the cancer took him. Your love and care will be of great benefit to him. Even though seeing him suffer was extremely difficult, I take great comfort in the knowing that I stayed right by him the entire way and provided love and comfort. Peace to you.