Thinking of Pat Kapper today

dianetavegia
dianetavegia Member Posts: 1,942 Member
edited March 2014 in Colorectal Cancer #1
Carrie is struggling with hospice today, according to her update. Pat needs IV fluids and the woman she spoke to last night said hopsice won't provide IV fluids.

Keep them in your thoughts or prayers.

Comments

  • angelsbaby
    angelsbaby Member Posts: 1,165 Member
    #2
    Thats wrong
    Hospice came 3 days a week to give angel fluids . I would call and speak to a superviser or the dr.The only thing i know is that they could not give him any pain meds he had to be in thier hospital for that, but angel had that pain pump inserted into the stomach cavity so that was not a problem for us I hope they can get fluids to him.Maybe it is different in each state .

    michelle
  • Shayenne
    Shayenne Member Posts: 2,342
    #3
    angelsbaby said:

    Thats wrong
    Hospice came 3 days a week to give angel fluids . I would call and speak to a superviser or the dr.The only thing i know is that they could not give him any pain meds he had to be in thier hospital for that, but angel had that pain pump inserted into the stomach cavity so that was not a problem for us I hope they can get fluids to him.Maybe it is different in each state .

    michelle

    I'd....
    be calling a different hospice center or taking him back to the hospital then.
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #4
    PK
    Pat has sure been through the wringer the past couple of months - wish he could get a break so he could enjoy some of his time.

    I've kept up with his progress through the CB site. I don't want to lose Pat but I can only imagine how tired he's been from reading - he says he's had enough - and I can hear it through Carrie's posts.

    I hope this is worked out quickly - don't understand it, thought hospice was there to provide quality end of life issues - and they are denying him liquids?

    -Craig
  • geotina
    geotina Member Posts: 2,111 Member
    #5
    Pat Kapper
    I have been following his caring bridge site and get updates. Pat really does not want any more hospital. Carrie called hospice in the evening and "did not get the most informative person". She is waiting until morning to talk to his hospice nurse directly. From what I read it sounds like Pat was in the hospital with a bad blockage and there was nothing for them to do for him, they tried. He can't eat or drink without it coming right back up thus the reason Carrie thinks he is dehydrated and wanted the fluids. Hopefully, he can get these fluids at home. She said she will let everyone know after talking to the nurse. If Pat has to go to the hospital for fluids he will but he refuses to stay, he wants to be home.

    The last hospital stay a few days ago they wanted Pat to stay and he said no, if they can't help with the blockage he wanted to go home and spend his time with his family so they released him.

    Please keep Pat, Carrier and their 5 girls in your thoughts today.

    Tina
  • Unknown
    Unknown
    #6
    geotina said:

    Pat Kapper
    I have been following his caring bridge site and get updates. Pat really does not want any more hospital. Carrie called hospice in the evening and "did not get the most informative person". She is waiting until morning to talk to his hospice nurse directly. From what I read it sounds like Pat was in the hospital with a bad blockage and there was nothing for them to do for him, they tried. He can't eat or drink without it coming right back up thus the reason Carrie thinks he is dehydrated and wanted the fluids. Hopefully, he can get these fluids at home. She said she will let everyone know after talking to the nurse. If Pat has to go to the hospital for fluids he will but he refuses to stay, he wants to be home.

    The last hospital stay a few days ago they wanted Pat to stay and he said no, if they can't help with the blockage he wanted to go home and spend his time with his family so they released him.

    Please keep Pat, Carrier and their 5 girls in your thoughts today.

    Tina

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  • karguy
    karguy Member Posts: 1,020 Member
    #7
    Pat
    I think there is something wrong with the hospice.My brother did his hospice at home to be with his family,and he got fluids,and a nurse came every day to give him pain medication[morphine].She should talk to the doctor.I'll pray for her and the family.
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #8
    Oh, me.
    Goodness! I hope this can get straightened out.

    *hugs*
    Gail
  • luv3jay
    luv3jay Member Posts: 533 Member
    #9
    They are both definitely in
    They are both definitely in my thoughts and prayers.

    -Sheri
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #10
    I hope this can get resolved
    I hope this can get resolved quickly for Pat so he can enjoy being home. It seems hard to imagine that hospice can't provide IV fluids. When I was dehyrated after Christmas, home care (the same organization that comes to disconnect me from chemo) came + gave me IV fliuids for a week. They came 2X?day; to hookup + disconnect. I am in Canada, so it is probably different.
  • sfmarie
    sfmarie Member Posts: 602
    #11
    Pat and Carrie
    You are all in my prayers. I just went through exactly what you are going through Carrie so please contact me for anything!
    Pat was so kind to me and informative sharing his personal journey when I needed to hear it. Know you are in my prayers daily.
    Marie

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