Home from Dallas

saundra
saundra Member Posts: 1,370 Member
edited March 2014 in Ovarian Cancer #1
We finally got out of the hospital and home late yesterday afternoon. Was I pooped from the 300 mile trip.
I did get a walker so that I could make it to the piblic bathrooms on the interstate. Medicare paid 80% on that for information. I am slow to bounce back this time because I was not in good shape going in. Stayed 4/5 to 4/13 in Baylor. I truly didn't feel like leaving Tues. afternoon but had to. My legs are swollen up to about twice the regular size, like Dorion's. Don't have any reason except the trauma of surgery.

I will see the Onc/Gyn on the 12th of May and then go into radiation. They did get 85% of the one tumor I had but the rest in totally involved in blood vessels and everyone agrees that this is the best option for right now. My case went before the Big Board, whoo-pee. Interested in anyone elses' experiece with radiation on one tumor site.

The stoma care takes a lot of my time and energy plus I have a weepy wound that has to be dressed. I have home health care nurse coming every day to help with that, and another one to come and bath me in bed twice a week until I can actually take a shower. I did try a shampoo with a wet towel and no soap.
Joe just rubbed my head like he was drying it after a shampoo and it did remove the smell and oil and fluffed up the waves some.

Everyone asks if I can have the colonoscopy reversed and he left enough so that I can. But not inclined to do any more surgery at this time.

I am so grateful for all the prayer support of all of you. I really felt them coming through in the dark painful time in the hospital. My daughter cried when she read you supportive post for me.

Saundra

Comments

  • kayandok
    kayandok Member Posts: 1,202 Member
    Welcome home~!
    I hope you can rest rest rest and heal quickly!!
    Love and hugs,
    kathleen
  • Lisa13Q
    Lisa13Q Member Posts: 677
    Welcome Back
    I am so sorry that it has been such a tough time. Hopefully being back in your own home will bring renewed energy and healing. We missed you.
  • arbor3
    arbor3 Member Posts: 103
    WELCOME HOME
    Hi Saundra

    SO GOOD to hear you are home. There is no place like home to heal.

    Dinora
  • leesag
    leesag Member Posts: 621 Member
    Welcome Home Saundra!
    My

    Welcome Home Saundra!

    My thoughts and prayers continue to be with you! Rest and focus on getting well.

    HUGE (Gentle) HUGS!

    Leesa
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    Saundra...
    You sure have had

    Saundra...

    You sure have had the stuffing beat out of you this time around. You are one tough cookie!

    Praying that each new day brings you closer to recovery, and that the radiation kicks that tumor's butt!

    Carlene
  • msfanciful
    msfanciful Member Posts: 559
    Hi Saundra,
    I am up at this

    Hi Saundra,

    I am up at this ungodly hour (steriods in my meds.), but I am glad to see you are back home.

    Yippeee!

    You certainly have had a journey, but hopefully you can get much needed rest. I am just estatic that you home now.

    God Bless,

    Sharon
  • Tina Brown
    Tina Brown Member Posts: 1,036 Member

    Hi Saundra,
    I am up at this

    Hi Saundra,

    I am up at this ungodly hour (steriods in my meds.), but I am glad to see you are back home.

    Yippeee!

    You certainly have had a journey, but hopefully you can get much needed rest. I am just estatic that you home now.

    God Bless,

    Sharon

    Hi Saundra
    You are one feisty lady Saundra to be still posting on here while you are still recovering from surgery. I wish you a good recovery and hope things go well for you.

    Tina xx
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  • BonnieR
    BonnieR Member Posts: 1,526 Member
    Welcome Home
    Dear Saundra, I am so glad you are home, please know once the fluid starts to leave the body you well drop 6-8lbs a night or that is what happened to me. I had elephantitis, the nurses couldn't believe how huge my legs and feet got but now all gone. Our body hangs onto the fluids because of the trauma, a survival mode it takes.

    I cannot have a reversal of the colostomy, but even if I could, would not. The colostomy care gets easier and once you have your strength you'll be doing it with ease. I still have Randy help me, as my stoma changes ~ adn the strength it takes to stand that long is a bit much.

    Sending lots of prayers your way along with gentle gentle hugs.

    Much Love Bonnie

    "I am counting on the Lord; yes, I am counting on him. I have put my hope in His Word." - Psalm 130:5
  • Mwee
    Mwee Member Posts: 1,338
    BonnieR said:

    Welcome Home
    Dear Saundra, I am so glad you are home, please know once the fluid starts to leave the body you well drop 6-8lbs a night or that is what happened to me. I had elephantitis, the nurses couldn't believe how huge my legs and feet got but now all gone. Our body hangs onto the fluids because of the trauma, a survival mode it takes.

    I cannot have a reversal of the colostomy, but even if I could, would not. The colostomy care gets easier and once you have your strength you'll be doing it with ease. I still have Randy help me, as my stoma changes ~ adn the strength it takes to stand that long is a bit much.

    Sending lots of prayers your way along with gentle gentle hugs.

    Much Love Bonnie

    "I am counting on the Lord; yes, I am counting on him. I have put my hope in His Word." - Psalm 130:5

    Welcome Home
    Welcome home, dear Saundra! That 300 mile trip must have been a very difficult. I hope you can rest comfortably in your own bed. Joe must be so pleased to have you home as are all of us. What a joy it is to see posts from both you and Bonnie.
    (((SOFT HUGS))) Maria
  • lindaprocopio
    lindaprocopio Member Posts: 1,980 Member
    Mwee said:

    Welcome Home
    Welcome home, dear Saundra! That 300 mile trip must have been a very difficult. I hope you can rest comfortably in your own bed. Joe must be so pleased to have you home as are all of us. What a joy it is to see posts from both you and Bonnie.
    (((SOFT HUGS))) Maria

    just a gentle hug (((Saundra))) & welcome home!
    I can only imagine that long trip home, but knowing you were "going home" surely made it easier. You are so brave and strong, although you may not feel that way all the time. But you are inspiring to us all, Saundra. REST! So glad you are out of the hospital.
  • MK_4Dani
    MK_4Dani Member Posts: 314
    Welcome Home
    Rest and heal! It is good to have you back Saundra. I cannot imagine a 300 mile trip after surgery...I had trouble with a 30 mile trip. You are indeed a tough teal warrior!
    Mary
  • Susan523
    Susan523 Member Posts: 231 Member
    Saundra!! You made my day~ and WEEK!!!
    SOOOO very happy to hear that you are home!! WELCOME HOME!!!

    What a long journey after your surgery. I, too, cannot imagine it. I had a 35 mile trip after mine, and it was rough.

    I also was very swollen from all of the fluids they give you; my husband had to help lift my legs out of the hospital bed!! But that will go down; and when it does, keep those fluids going.

    For bathing you might want to try "Huggies Disposable Washcloths". Have Joe pick some up for you. They are soft, and you just add a little water, and they lather up! I then use a wet washcloth to rinse. Real handy when you aren't up to taking a shower.

    Take care of yourself, and so happy that you (and Bonnie!) are both home this week!

    (((hugs)))
    ~Susan (not squeezy hugs... just gentle ones :-)
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  • ColleenN
    ColleenN Member Posts: 73
    Welcome home
    Hi Saundra,
    I'm glad to hear that you're home and starting to feel better. (((hugs)))
    Colleen