Nasopharyngeal Cancer

davey3
davey3 Member Posts: 7
edited March 2014 in Rare and Other Cancers #1
David Here.
They told me this is what I have and that its a rare Cancer because of where it is located.
I have not started any treatment yet but I do know I am in stage 3 and have 2 yrs to live..
Meeting with all of my Cancer team @ Sloan Kettering next week after I get a Pet Scan.
ANYONE have any suggestions on where to start to learn how to deal with this new Bump in my life.

David

Comments

  • EstherMSKCC
    EstherMSKCC Member Posts: 20
    #2
    Nasopharyngeal Cancer
    Dear David,

    I'm very sorry to hear of your diagnosis. I am an employee of Memorial Sloan-Kettering Cancer Center and came across your post for more information on this disease and how to cope with the diagnosis. Here are a few links on our web site that may be of help as you begin educating yourself about nasopharyngeal cancer and seeking out support:

    Overview of nasophyngeal cancer: http://www.mskcc.org/mskcc/html/9983.cfm#400639

    Treatment options: http://www.mskcc.org/mskcc/html/9992.cfm

    Survivorship and Support (including info about rehabilitation after treatment): http://www.mskcc.org/mskcc/html/9991.cfm

    Patient Stories: http://www.mskcc.org/mskcc/html/84352.cfm

    Help for the Newly Diagnosed: http://www.mskcc.org/mskcc/html/11984.cfm

    Here is a link to an organization dedicated to raising awareness and supporting people with oral and head and neck cancers: http://www.spohnc.org/

    I hope this information is useful - I wish you good luck with treatment at Sloan-Kettering and your journey ahead. -Esther
  • davey3
    davey3 Member Posts: 7
    #3
    EstherMSKCC said:

    Nasopharyngeal Cancer
    Dear David,

    I'm very sorry to hear of your diagnosis. I am an employee of Memorial Sloan-Kettering Cancer Center and came across your post for more information on this disease and how to cope with the diagnosis. Here are a few links on our web site that may be of help as you begin educating yourself about nasopharyngeal cancer and seeking out support:

    Overview of nasophyngeal cancer: http://www.mskcc.org/mskcc/html/9983.cfm#400639

    Treatment options: http://www.mskcc.org/mskcc/html/9992.cfm

    Survivorship and Support (including info about rehabilitation after treatment): http://www.mskcc.org/mskcc/html/9991.cfm

    Patient Stories: http://www.mskcc.org/mskcc/html/84352.cfm

    Help for the Newly Diagnosed: http://www.mskcc.org/mskcc/html/11984.cfm

    Here is a link to an organization dedicated to raising awareness and supporting people with oral and head and neck cancers: http://www.spohnc.org/

    I hope this information is useful - I wish you good luck with treatment at Sloan-Kettering and your journey ahead. -Esther

    Thank you so much
    Esther thank you for the support.
    My team at MSKCC start with Dr Boyel as the surgen ,Dr Lee for RAD and Dr Pfister for chmeo.
    I have been told they are good.
    I go back this Wed for Pet Scan and to meet with my Rad doctor to see what options we have.

    Thank you agian.

    Davey
  • EstherMSKCC
    EstherMSKCC Member Posts: 20
    #4
    davey3 said:

    Thank you so much
    Esther thank you for the support.
    My team at MSKCC start with Dr Boyel as the surgen ,Dr Lee for RAD and Dr Pfister for chmeo.
    I have been told they are good.
    I go back this Wed for Pet Scan and to meet with my Rad doctor to see what options we have.

    Thank you agian.

    Davey

    You are welcome! Good luck
    You are welcome! Good luck today - you are in good hands. -Esther
  • EstherMSKCC
    EstherMSKCC Member Posts: 20
    #5
    davey3 said:

    Thank you so much
    Esther thank you for the support.
    My team at MSKCC start with Dr Boyel as the surgen ,Dr Lee for RAD and Dr Pfister for chmeo.
    I have been told they are good.
    I go back this Wed for Pet Scan and to meet with my Rad doctor to see what options we have.

    Thank you agian.

    Davey

    You are welcome! Good luck
    You are welcome! Good luck today - you are in good hands. -Esther
  • EstherMSKCC
    EstherMSKCC Member Posts: 20
    #6
    davey3 said:

    Thank you so much
    Esther thank you for the support.
    My team at MSKCC start with Dr Boyel as the surgen ,Dr Lee for RAD and Dr Pfister for chmeo.
    I have been told they are good.
    I go back this Wed for Pet Scan and to meet with my Rad doctor to see what options we have.

    Thank you agian.

    Davey

    You are welcome! Good luck
    You are welcome! Good luck today - you are in good hands. -Esther
  • bbg17
    bbg17 Member Posts: 1
    #7
    Nasopharyngeal Cancer survivor
    Hello David,
    I hope you are doing ok, I found out I had this cancer back in October of 2009, I went through all teratments, Chemo and radiation. My PET scan in March shown I am clear. So hang in there, you will be fine. If you would like to chat, send me an email and I will share my experience. luluo5o7@aol.com. Good luck Lulu
  • dukers101
    dukers101 Member Posts: 14
    #8
    All I can say is read and
    All I can say is read and place calls to all the Cancer institues and get as much information as you can. I ended up with 13 hrs of brain surgery and 6 weeks of radiation.That was in 1995 and thank God, still cancer free. Whatever option you choose, keep positive thoughts but get 2nd ,third and even more opinions to make a sound decision.Dont delay, everyday is critical and if radiaton is an option afterwards for the treatment-DO IT!!My friend who had something similar did not and did not make it.Radiation is not painful at all.
    Let me know if there is anything further I can help with
  • Hondo
    Hondo Member Posts: 6,636 Member
    #9
    Hi David
    I been living with this NPC for better then 9 years now, trust in you doctors and do what they tell you. The treatment is hard as all cancer treatment are, but you can survive it; and life after cancer is still good.

    Take care

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