2nd round done and a little bummed

catcan
catcan Member Posts: 119
edited March 2014 in Ovarian Cancer #1
Went through second round of Doxil and had my CA125 done. It went up 115 pts how depressing. I know this can happen but 500 more and I will be back to where I was a year ago when I started this. I really thought I was prepared to hear they went up but sure didn't like the news. I will be positive I will be positive I will be positive. Deep breath. I am better

Cat

Comments

  • leesag
    leesag Member Posts: 621 Member
    #2
    Cat,

    If you read through past threads about Doxil, it seems as though an initial rise isn't uncommon. I hope some of the other ladies who've experienced this log on soon to give you some first hand support!

    Sending you hugs!

    Leesa
  • nancy591
    nancy591 Member Posts: 1,027 Member
    #3
    not to worry!
    Cat,
    Please try not to stress too much about this. I freaked out because after my 1st dose of Doxil my ca125 doubled!! My next ca125 was done in an outside lab so I was unable to truly assess the change but it did drop. My latest ca125 did drop again but I'm still not at where I started. I next lab is in 2wks.

    What frequency are you receiving Doxil? Do you know your dose? Any side effects? I started getting side effects after my 2nd dose. My 3rd dose was lowered. 4th dose was at full strength but they are going to give it now every 4 weeks instead of every 3 weeks.

    Nancy
  • catcan
    catcan Member Posts: 119
    #4
    nancy591 said:

    not to worry!
    Cat,
    Please try not to stress too much about this. I freaked out because after my 1st dose of Doxil my ca125 doubled!! My next ca125 was done in an outside lab so I was unable to truly assess the change but it did drop. My latest ca125 did drop again but I'm still not at where I started. I next lab is in 2wks.

    What frequency are you receiving Doxil? Do you know your dose? Any side effects? I started getting side effects after my 2nd dose. My 3rd dose was lowered. 4th dose was at full strength but they are going to give it now every 4 weeks instead of every 3 weeks.

    Nancy

    feeling better
    Hi nancy

    I'm over the stress for now. I did read some previous threads that say this happens. I get mine every 28 days not sure of the dose. I had a few mouth sores and heartburn but that was it. We will see what happens after this one. Thanks for the support

    cat
  • catcan
    catcan Member Posts: 119
    #5
    leesag said:

    Cat,

    If you read through past threads about Doxil, it seems as though an initial rise isn't uncommon. I hope some of the other ladies who've experienced this log on soon to give you some first hand support!

    Sending you hugs!

    Leesa

    support
    Thanks for the support Leesa. I did go back as you suggested and feel much better after reading the threads. What a roller coaster ride this is. how are you feeling?

    Hugs back to you

    Cat
  • saundra
    saundra Member Posts: 1,370 Member
    #6
    Second round
    I had my second round last Friday and started a fever Wed. night. Diverticulitis again. Looks like doxil and I are not going to be friends. My last dose was 1/6/10 and my CA125 only went up 4 points in between doses. Stay positive, we are all different. Saundra
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    #7
    Hang in there
    Dear Cat, Hang in there for as you know doxil works slow; and if this isn't the drug for you there is a long list of others. I know what you mean about being back where one was, been there done that and actually there right now. It does help keep us positive for just like the engine that could... we can say .. yes I can .. yes I can ... yes I can. :-D Glad it only took a deep breath and sharing for you to feel better. Hugs ♥ Prayers Bonnie
  • catcan
    catcan Member Posts: 119
    #8
    BonnieR said:

    Hang in there
    Dear Cat, Hang in there for as you know doxil works slow; and if this isn't the drug for you there is a long list of others. I know what you mean about being back where one was, been there done that and actually there right now. It does help keep us positive for just like the engine that could... we can say .. yes I can .. yes I can ... yes I can. :-D Glad it only took a deep breath and sharing for you to feel better. Hugs ♥ Prayers Bonnie

    Thanks for the encouragement Bonnie. I guess we are all the little engine that could. I guess it just makes all of us stronger and able to support each other which i thank God for. The support is fabulous. You hang in there too and the prayers are coming back to you

    Cat

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