Extra Somethin, Somethin for Lisa42
Goofyladie (Cass)
Comments
-
Lisa, I think of you so
Lisa, I think of you so often, I send my prayers to you for a great scan. But whatever the outcome I know you will know what to do. I was talking with a lady today that said she had cyberknife on her lung tumors. I am not sure what the details of your situation are, and maybe you have had this done already. She had great success with this procedure. Love ya girl, Patti0 -
Lisamom_2_3 said:Lisa
We all love you Lisa and I hope all the good thoughts and prayers of your board "family" here envelope you today. We are all hoping for good results from your scans!!!
Love and hugs to you,
Amy
You are in my thoughts and prayers. I am fairly new here and you were so quick to reach out and welcome me and my sister. Your strength, kindness and faith are evident in all of your posts. You have so much information to offer everyone. I am hoping for good results from your scan.
Love,
Brenda0 -
Lisa, praying!
Just wanted you to know that I've prayed for you this morning and asked God for some good news for you today. We love you dear sister.
Diane0 -
Lisa,
Lisa,
I've said a prayer for you. I pray for good results and peace for you and your family.
Aloha,
Kathleen0 -
Hey Lisa!Kathleen808 said:Lisa,
Lisa,
I've said a prayer for you. I pray for good results and peace for you and your family.
Aloha,
Kathleen
Just said my prayer for you........... Let us know as soon as possible. We are ALL pulling for you my friend!
Jennie0 -
Hi,
Thanks so much for starting this thread! I'm still in my robe (9:30 a.m.)- my kids are off school today (they get a 5 day wknd every year for Presidents' Day wknd) and today is also my youngest daughter's 10th birthday. I just finished making pancakes and eggs. I kind of don't want my kids to hear my news, as it would spoil the birthday mood. But, I know the report is ready for me to pick up and I don't want to wait another day. I was actually given a CD of the scan images when I left after getting my scan done yesterday and I did look at that. I know certain areas are normal to light up- brain, heart, kidneys, and bladder... but I definitely also saw several other lit up spots all over my lungs and on my liver, so I know it's not going to be a good report at all. I just have to go read the report for the specifics. I have my appt. w/ my oncologist on Monday. I went ahead and sent an email to Dr. Lenz at USC, upon advice of Serrana (BTW, since she hasn't posted on the board in a while- she just had an NED scan result a couple of days ago. She lives nearby and we talk a lot). Anyhow, she urged me to contact Dr. Lenz by email. Amazingly, he answered my email within an hour of me sending it. He told me to contact a particular person and try to get in earlier (I had already made an appt and the supposed first available was March 15). He also asked me if I had a certain kind of genetic testing and said they have a PARB Inhibitor clinical trial. I'm pretty sure, though, that the kind of testing he asked if I had was the one that my oncologist tried to get accomplished twice over the past few months and it kept getting hung up, disappeared, etc. Those results normally take several weeks, so I don't know if this would now exclude me, as I'm thinking whatever I do, I need to start it very soon. I have a leftover full bottle of Xeloda pills sitting in my cabinet from a few months back and was tempted to start taking them yesterday, but I know I need to wait until talking to my onc. If I were to actually start a clinical trial at USC or UCSD, taking the Xeloda now could disqualify me.
Well, I'll write back when I get the specific details from the scan report later today. I'm going to have my daughters with me when I go pick it up from the hospital- I'm going to try to downplay the news, as my 10 yr old is all excited about going for a walk on the Oceanside pier today- this is my reality, but for one day I'd like to forget it (kind of hard to do on the same day I'm just finding out about it).
Needless to say, I will not be going back to Nashville to see Dr. Cantrell again- he doesn't have really anything to offer me at this point, I don't think.
Lisa0 -
Lisa, I'm holding you in thelisa42 said:Hi,
Thanks so much for starting this thread! I'm still in my robe (9:30 a.m.)- my kids are off school today (they get a 5 day wknd every year for Presidents' Day wknd) and today is also my youngest daughter's 10th birthday. I just finished making pancakes and eggs. I kind of don't want my kids to hear my news, as it would spoil the birthday mood. But, I know the report is ready for me to pick up and I don't want to wait another day. I was actually given a CD of the scan images when I left after getting my scan done yesterday and I did look at that. I know certain areas are normal to light up- brain, heart, kidneys, and bladder... but I definitely also saw several other lit up spots all over my lungs and on my liver, so I know it's not going to be a good report at all. I just have to go read the report for the specifics. I have my appt. w/ my oncologist on Monday. I went ahead and sent an email to Dr. Lenz at USC, upon advice of Serrana (BTW, since she hasn't posted on the board in a while- she just had an NED scan result a couple of days ago. She lives nearby and we talk a lot). Anyhow, she urged me to contact Dr. Lenz by email. Amazingly, he answered my email within an hour of me sending it. He told me to contact a particular person and try to get in earlier (I had already made an appt and the supposed first available was March 15). He also asked me if I had a certain kind of genetic testing and said they have a PARB Inhibitor clinical trial. I'm pretty sure, though, that the kind of testing he asked if I had was the one that my oncologist tried to get accomplished twice over the past few months and it kept getting hung up, disappeared, etc. Those results normally take several weeks, so I don't know if this would now exclude me, as I'm thinking whatever I do, I need to start it very soon. I have a leftover full bottle of Xeloda pills sitting in my cabinet from a few months back and was tempted to start taking them yesterday, but I know I need to wait until talking to my onc. If I were to actually start a clinical trial at USC or UCSD, taking the Xeloda now could disqualify me.
Well, I'll write back when I get the specific details from the scan report later today. I'm going to have my daughters with me when I go pick it up from the hospital- I'm going to try to downplay the news, as my 10 yr old is all excited about going for a walk on the Oceanside pier today- this is my reality, but for one day I'd like to forget it (kind of hard to do on the same day I'm just finding out about it).
Needless to say, I will not be going back to Nashville to see Dr. Cantrell again- he doesn't have really anything to offer me at this point, I don't think.
Lisa
Lisa, I'm holding you in the Light.
Love,
Audrey0 -
Lisa, I'm holding you in thelisa42 said:Hi,
Thanks so much for starting this thread! I'm still in my robe (9:30 a.m.)- my kids are off school today (they get a 5 day wknd every year for Presidents' Day wknd) and today is also my youngest daughter's 10th birthday. I just finished making pancakes and eggs. I kind of don't want my kids to hear my news, as it would spoil the birthday mood. But, I know the report is ready for me to pick up and I don't want to wait another day. I was actually given a CD of the scan images when I left after getting my scan done yesterday and I did look at that. I know certain areas are normal to light up- brain, heart, kidneys, and bladder... but I definitely also saw several other lit up spots all over my lungs and on my liver, so I know it's not going to be a good report at all. I just have to go read the report for the specifics. I have my appt. w/ my oncologist on Monday. I went ahead and sent an email to Dr. Lenz at USC, upon advice of Serrana (BTW, since she hasn't posted on the board in a while- she just had an NED scan result a couple of days ago. She lives nearby and we talk a lot). Anyhow, she urged me to contact Dr. Lenz by email. Amazingly, he answered my email within an hour of me sending it. He told me to contact a particular person and try to get in earlier (I had already made an appt and the supposed first available was March 15). He also asked me if I had a certain kind of genetic testing and said they have a PARB Inhibitor clinical trial. I'm pretty sure, though, that the kind of testing he asked if I had was the one that my oncologist tried to get accomplished twice over the past few months and it kept getting hung up, disappeared, etc. Those results normally take several weeks, so I don't know if this would now exclude me, as I'm thinking whatever I do, I need to start it very soon. I have a leftover full bottle of Xeloda pills sitting in my cabinet from a few months back and was tempted to start taking them yesterday, but I know I need to wait until talking to my onc. If I were to actually start a clinical trial at USC or UCSD, taking the Xeloda now could disqualify me.
Well, I'll write back when I get the specific details from the scan report later today. I'm going to have my daughters with me when I go pick it up from the hospital- I'm going to try to downplay the news, as my 10 yr old is all excited about going for a walk on the Oceanside pier today- this is my reality, but for one day I'd like to forget it (kind of hard to do on the same day I'm just finding out about it).
Needless to say, I will not be going back to Nashville to see Dr. Cantrell again- he doesn't have really anything to offer me at this point, I don't think.
Lisa
Lisa, I'm holding you in the Light.
Love,
Audrey0 -
Happy 10th birthdaylisa42 said:Hi,
Thanks so much for starting this thread! I'm still in my robe (9:30 a.m.)- my kids are off school today (they get a 5 day wknd every year for Presidents' Day wknd) and today is also my youngest daughter's 10th birthday. I just finished making pancakes and eggs. I kind of don't want my kids to hear my news, as it would spoil the birthday mood. But, I know the report is ready for me to pick up and I don't want to wait another day. I was actually given a CD of the scan images when I left after getting my scan done yesterday and I did look at that. I know certain areas are normal to light up- brain, heart, kidneys, and bladder... but I definitely also saw several other lit up spots all over my lungs and on my liver, so I know it's not going to be a good report at all. I just have to go read the report for the specifics. I have my appt. w/ my oncologist on Monday. I went ahead and sent an email to Dr. Lenz at USC, upon advice of Serrana (BTW, since she hasn't posted on the board in a while- she just had an NED scan result a couple of days ago. She lives nearby and we talk a lot). Anyhow, she urged me to contact Dr. Lenz by email. Amazingly, he answered my email within an hour of me sending it. He told me to contact a particular person and try to get in earlier (I had already made an appt and the supposed first available was March 15). He also asked me if I had a certain kind of genetic testing and said they have a PARB Inhibitor clinical trial. I'm pretty sure, though, that the kind of testing he asked if I had was the one that my oncologist tried to get accomplished twice over the past few months and it kept getting hung up, disappeared, etc. Those results normally take several weeks, so I don't know if this would now exclude me, as I'm thinking whatever I do, I need to start it very soon. I have a leftover full bottle of Xeloda pills sitting in my cabinet from a few months back and was tempted to start taking them yesterday, but I know I need to wait until talking to my onc. If I were to actually start a clinical trial at USC or UCSD, taking the Xeloda now could disqualify me.
Well, I'll write back when I get the specific details from the scan report later today. I'm going to have my daughters with me when I go pick it up from the hospital- I'm going to try to downplay the news, as my 10 yr old is all excited about going for a walk on the Oceanside pier today- this is my reality, but for one day I'd like to forget it (kind of hard to do on the same day I'm just finding out about it).
Needless to say, I will not be going back to Nashville to see Dr. Cantrell again- he doesn't have really anything to offer me at this point, I don't think.
Lisa
I'll be praying Lisa.
Mountain, be moved!0 -
Lisa,Aud said:Lisa, I'm holding you in the
Lisa, I'm holding you in the Light.
Love,
Audrey
I am praying for you.
Lisa,
I am praying for you. You have been such an ispiration. I'm glad that you have your next plan ready. I will be interested to hear more about Dr. Lenz. You always have so much information to offer.
Enjoy your daughter's birthday. 10 is so much fun !
Love,
Brenda0 -
I'm thinking of you!!!lisa42 said:Hi,
Thanks so much for starting this thread! I'm still in my robe (9:30 a.m.)- my kids are off school today (they get a 5 day wknd every year for Presidents' Day wknd) and today is also my youngest daughter's 10th birthday. I just finished making pancakes and eggs. I kind of don't want my kids to hear my news, as it would spoil the birthday mood. But, I know the report is ready for me to pick up and I don't want to wait another day. I was actually given a CD of the scan images when I left after getting my scan done yesterday and I did look at that. I know certain areas are normal to light up- brain, heart, kidneys, and bladder... but I definitely also saw several other lit up spots all over my lungs and on my liver, so I know it's not going to be a good report at all. I just have to go read the report for the specifics. I have my appt. w/ my oncologist on Monday. I went ahead and sent an email to Dr. Lenz at USC, upon advice of Serrana (BTW, since she hasn't posted on the board in a while- she just had an NED scan result a couple of days ago. She lives nearby and we talk a lot). Anyhow, she urged me to contact Dr. Lenz by email. Amazingly, he answered my email within an hour of me sending it. He told me to contact a particular person and try to get in earlier (I had already made an appt and the supposed first available was March 15). He also asked me if I had a certain kind of genetic testing and said they have a PARB Inhibitor clinical trial. I'm pretty sure, though, that the kind of testing he asked if I had was the one that my oncologist tried to get accomplished twice over the past few months and it kept getting hung up, disappeared, etc. Those results normally take several weeks, so I don't know if this would now exclude me, as I'm thinking whatever I do, I need to start it very soon. I have a leftover full bottle of Xeloda pills sitting in my cabinet from a few months back and was tempted to start taking them yesterday, but I know I need to wait until talking to my onc. If I were to actually start a clinical trial at USC or UCSD, taking the Xeloda now could disqualify me.
Well, I'll write back when I get the specific details from the scan report later today. I'm going to have my daughters with me when I go pick it up from the hospital- I'm going to try to downplay the news, as my 10 yr old is all excited about going for a walk on the Oceanside pier today- this is my reality, but for one day I'd like to forget it (kind of hard to do on the same day I'm just finding out about it).
Needless to say, I will not be going back to Nashville to see Dr. Cantrell again- he doesn't have really anything to offer me at this point, I don't think.
Lisa
Just wanted to let you know that I'm thinking of you. I remember walking on the Oceanside Pier with my dad when I was just a little boy and today it's still one of my all time favrite things to do. He used to take me to the diner that was on the end of the pier before it fell off into the ocean. You're 10yo has great taste if she likes to walk on the Pier too!! LOL. Then after I walk on the Pier I like to run over to "Harbor fish and chips" for lunch. Please let me know if I can do anything to help out or if you need anyone just to talk to I'm here to help!!
You enjoy the wonderful day you have with the kids
Brooks0 -
Dear Lisalisa42 said:Hi,
Thanks so much for starting this thread! I'm still in my robe (9:30 a.m.)- my kids are off school today (they get a 5 day wknd every year for Presidents' Day wknd) and today is also my youngest daughter's 10th birthday. I just finished making pancakes and eggs. I kind of don't want my kids to hear my news, as it would spoil the birthday mood. But, I know the report is ready for me to pick up and I don't want to wait another day. I was actually given a CD of the scan images when I left after getting my scan done yesterday and I did look at that. I know certain areas are normal to light up- brain, heart, kidneys, and bladder... but I definitely also saw several other lit up spots all over my lungs and on my liver, so I know it's not going to be a good report at all. I just have to go read the report for the specifics. I have my appt. w/ my oncologist on Monday. I went ahead and sent an email to Dr. Lenz at USC, upon advice of Serrana (BTW, since she hasn't posted on the board in a while- she just had an NED scan result a couple of days ago. She lives nearby and we talk a lot). Anyhow, she urged me to contact Dr. Lenz by email. Amazingly, he answered my email within an hour of me sending it. He told me to contact a particular person and try to get in earlier (I had already made an appt and the supposed first available was March 15). He also asked me if I had a certain kind of genetic testing and said they have a PARB Inhibitor clinical trial. I'm pretty sure, though, that the kind of testing he asked if I had was the one that my oncologist tried to get accomplished twice over the past few months and it kept getting hung up, disappeared, etc. Those results normally take several weeks, so I don't know if this would now exclude me, as I'm thinking whatever I do, I need to start it very soon. I have a leftover full bottle of Xeloda pills sitting in my cabinet from a few months back and was tempted to start taking them yesterday, but I know I need to wait until talking to my onc. If I were to actually start a clinical trial at USC or UCSD, taking the Xeloda now could disqualify me.
Well, I'll write back when I get the specific details from the scan report later today. I'm going to have my daughters with me when I go pick it up from the hospital- I'm going to try to downplay the news, as my 10 yr old is all excited about going for a walk on the Oceanside pier today- this is my reality, but for one day I'd like to forget it (kind of hard to do on the same day I'm just finding out about it).
Needless to say, I will not be going back to Nashville to see Dr. Cantrell again- he doesn't have really anything to offer me at this point, I don't think.
Lisa
You are such as strong and loving person.
Know that you are in my thoughts and prayers that there is a trial or treatment out there for you.
Take care. Everyone is pulling for you.
Marie0 -
Lisa-lisa42 said:Hi,
Thanks so much for starting this thread! I'm still in my robe (9:30 a.m.)- my kids are off school today (they get a 5 day wknd every year for Presidents' Day wknd) and today is also my youngest daughter's 10th birthday. I just finished making pancakes and eggs. I kind of don't want my kids to hear my news, as it would spoil the birthday mood. But, I know the report is ready for me to pick up and I don't want to wait another day. I was actually given a CD of the scan images when I left after getting my scan done yesterday and I did look at that. I know certain areas are normal to light up- brain, heart, kidneys, and bladder... but I definitely also saw several other lit up spots all over my lungs and on my liver, so I know it's not going to be a good report at all. I just have to go read the report for the specifics. I have my appt. w/ my oncologist on Monday. I went ahead and sent an email to Dr. Lenz at USC, upon advice of Serrana (BTW, since she hasn't posted on the board in a while- she just had an NED scan result a couple of days ago. She lives nearby and we talk a lot). Anyhow, she urged me to contact Dr. Lenz by email. Amazingly, he answered my email within an hour of me sending it. He told me to contact a particular person and try to get in earlier (I had already made an appt and the supposed first available was March 15). He also asked me if I had a certain kind of genetic testing and said they have a PARB Inhibitor clinical trial. I'm pretty sure, though, that the kind of testing he asked if I had was the one that my oncologist tried to get accomplished twice over the past few months and it kept getting hung up, disappeared, etc. Those results normally take several weeks, so I don't know if this would now exclude me, as I'm thinking whatever I do, I need to start it very soon. I have a leftover full bottle of Xeloda pills sitting in my cabinet from a few months back and was tempted to start taking them yesterday, but I know I need to wait until talking to my onc. If I were to actually start a clinical trial at USC or UCSD, taking the Xeloda now could disqualify me.
Well, I'll write back when I get the specific details from the scan report later today. I'm going to have my daughters with me when I go pick it up from the hospital- I'm going to try to downplay the news, as my 10 yr old is all excited about going for a walk on the Oceanside pier today- this is my reality, but for one day I'd like to forget it (kind of hard to do on the same day I'm just finding out about it).
Needless to say, I will not be going back to Nashville to see Dr. Cantrell again- he doesn't have really anything to offer me at this point, I don't think.
Lisa
praying for you lovely
Lisa-
praying for you lovely lady. the anxiety of each test and scan is so stressful. it's like we have to constantly gear up for the worst, while praying for the best. the constant attitude adjustment, expectation levelling, etc....so heavy on the heart.
HUGS to you Lisa
Peggy0
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