Now What? ........READ UPDATED INFORMATION

just4Brooks
just4Brooks Member Posts: 980 Member
edited March 2014 in Colorectal Cancer #1
CT Scan… As you already know I had my CT scan today where they pump ink up your back end and look at everything. First of all it was NOT a pleasant experience. It’s been 4 hours and I’m still cramping!! Anyways I need to go back in time from when I had my surgery last August. I don’t know if I told you or not but when they had my open the surgeon went ahead and removed my appendix in case it was to give me any problem later in life. They did a biopsy on my removed appendix and it showed to have a rare form of cancer in it. They never gave it much concern sense they removed it and thought that was that . Well on today’s CT scan it shows that the surgeon only removed half of the appendix (Something they NEVER do). Or a new cancer is growing and if it is a new cancer it will be this rare kind from my appendix. Or if it part of my appendix why did they NOT remove the whole thing?

Does this ever end?

Brooks
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Comments

  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #2
    Goodness!
    Oh, boy. You are just having way too much happen! I'm so sorry. You really, really deserve a break.

    *hugs*
    Gail
  • JDuke
    JDuke Member Posts: 438
    #3
    Brooks,
    I am so sorry to hear you are facing more uncertainty. One day at a time. As I recall I read that on your about me page. Sometimes it does seem as if before we can catch our breath from clearing one hurdle, another is in our path. Please stay strong. My positive thoughts are headed your way.
    Regards,
    Joanne
  • mom_2_3
    mom_2_3 Member Posts: 953 Member
    #4
    Brooks
    I am sorry that you had to go through such an unpleasant procedure and even more sorry that you know have to deal with this issue. Can you go back back and review the surgical notes for your operation? It seems so weird but didn't someone just post a few days ago about the DR notes saying that he/she removed the gallbladder and that person had had their gallbladder out years before? I can't remember who posted that but it was strange. It is quite possible that there is some error on someone's part here and I hope you get it resolved quickly.

    Amy
  • John23
    John23 Member Posts: 2,122 Member
    #5
    whew
    That's another reason I try to only use physicians that already have
    a house on the beach that's paid for, three brand new Lexus's
    they paid cash for, and kids that have already graduated college.


    Stand firm, man, better days -are- coming!
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #6
    I am so sorry! Uncertainty
    I am so sorry! Uncertainty is difficult, but know I am thinking positive thoughts for you.
  • JDuke
    JDuke Member Posts: 438
    #7
    mom_2_3 said:

    Brooks
    I am sorry that you had to go through such an unpleasant procedure and even more sorry that you know have to deal with this issue. Can you go back back and review the surgical notes for your operation? It seems so weird but didn't someone just post a few days ago about the DR notes saying that he/she removed the gallbladder and that person had had their gallbladder out years before? I can't remember who posted that but it was strange. It is quite possible that there is some error on someone's part here and I hope you get it resolved quickly.

    Amy

    It was my gallbladder (removed in 1989)
    that they claimed showed up on the CT scan. Still have not gotten to the bottom of what it really was that they saw. Surgeon implied that perhaps it was just a shadow. What? I will be asking again tomorrow when I see the radiation oncologist. Brooks post certainly makes me even more suspicious. Geez!

    Joanne
  • robinvan
    robinvan Member Posts: 1,012
    #8
    Good Grief!
    I suppose this means more tests and follow-up! What a drag when you should be CELEBRATING new life! I hope it is just a glitch! (a benign glitch!)

    Rob; in Vancouver
  • lizdeli
    lizdeli Member Posts: 569 Member
    #9
    Scar Tissue...
    Brooks,
    Maybe it's just scar tissue from the surgery? Like Joann said, they saw her gallbladder but that was already removed and they claim to have seen it on her CT scan.

    I'm praying for scar tissue only for you!

    Liz
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #10
    yikes
    Hi Brooks,

    I'm sorry you had such a bummer experience. Interesting about the ink up your back end for the CT- I've never had that done with getting a CT! I've just drank the yucky stuff for CT's & then wait awhile & they say it goes all through the digestive tract.

    Anyhow, how very unusual with the appendix situation. Will they be able to biopsy what's left in you to see if it's the other half of the appendix or not?

    You take care- my PET/CT is tomorrow- I'm worried what kind of "yikes" will be found in me!

    Lisa
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    #11
    Oh Brooks! No!
    I thought of you yesterday and was thinking about you this morning. I actually was remembering your day out with your friends and thought 'he's out really enjoying being well...'

    There's 2 guys on the colon cancer area of Daily Strength that have pretty rare appendix cancer. Irish Warrior is 22 and has been fighting 4 years. His was Stage IV when it was found. Mark has some condition with a bunch of letters. You can check their stories out at
    Daily Strength

    I'm so sorry to hear this. I hope all you need is the other half removed. Check out my thread on Say What about a local friend who had cancer in his appendix a couple years ago.

    Diane
  • geotina
    geotina Member Posts: 2,111 Member
    #12
    Brooks
    Like Phil, I can't believe what I am reading, only took out half the appendix, why would they only take out half, doesn't make any sense. I sincerly hope this is scar tissue. Please let us know what you find out further and you are right, does this ever end. Take care - Tina
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #13
    Whoa!
    Brooks, I can't believe what I am reading! I would seriously consider investigating WHY the "surgeon" only removed half of your appendix. That is absurd! If it is an organ that we really "don't need", why the F would he take only 1/2 of a cancerous one out???
    -phil

    I'd only pay "half of the bill"
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    #14
    Brooks, I found this when
    Brooks, I found this when looking for my friend's husband. It says one type tends to grow back. Not sure what type you had tho. Here's a link.

    Tumor that grows back here
  • coloCan
    coloCan Member Posts: 1,944 Member
    #15
    geotina said:

    Brooks
    Like Phil, I can't believe what I am reading, only took out half the appendix, why would they only take out half, doesn't make any sense. I sincerly hope this is scar tissue. Please let us know what you find out further and you are right, does this ever end. Take care - Tina

    After finishing postop chemo
    what a beach to hear this!!!!!!Are there any further tests to determine exactly what was found ??? Steve
  • just4Brooks
    just4Brooks Member Posts: 980 Member
    #16
    Copy of email sent to Onc and Surgeon
    Hello Doctor … As you may already know I had my CT scan today with the ink up my back end. It sure was no picnic!! LOL. My concern is the spot where my appendix was removed. The CT doc says that it looks like only half of my appendix was removed or I may have a new growth. As you may recall when they did the biopsy of my appendix it did show a rare cancer growing inside of it. Any chance of a cell being missed when it was removed to re-grow? Any chance only half of my appendix was removed? Can we look at my CT scans that I had in August so we can compare? I really need you doctors to look into this ASAP so we can maybe see what’s going on. What was the name of the cancer in my appendix? Somebody please email me and or call my cell phone *** *** ****
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    #17
    just4Brooks said:

    Copy of email sent to Onc and Surgeon
    Hello Doctor … As you may already know I had my CT scan today with the ink up my back end. It sure was no picnic!! LOL. My concern is the spot where my appendix was removed. The CT doc says that it looks like only half of my appendix was removed or I may have a new growth. As you may recall when they did the biopsy of my appendix it did show a rare cancer growing inside of it. Any chance of a cell being missed when it was removed to re-grow? Any chance only half of my appendix was removed? Can we look at my CT scans that I had in August so we can compare? I really need you doctors to look into this ASAP so we can maybe see what’s going on. What was the name of the cancer in my appendix? Somebody please email me and or call my cell phone *** *** ****

    Smart move
    Let us know, kiddo!
  • Crow71
    Crow71 Member Posts: 679 Member
    #18
    just4Brooks said:

    Copy of email sent to Onc and Surgeon
    Hello Doctor … As you may already know I had my CT scan today with the ink up my back end. It sure was no picnic!! LOL. My concern is the spot where my appendix was removed. The CT doc says that it looks like only half of my appendix was removed or I may have a new growth. As you may recall when they did the biopsy of my appendix it did show a rare cancer growing inside of it. Any chance of a cell being missed when it was removed to re-grow? Any chance only half of my appendix was removed? Can we look at my CT scans that I had in August so we can compare? I really need you doctors to look into this ASAP so we can maybe see what’s going on. What was the name of the cancer in my appendix? Somebody please email me and or call my cell phone *** *** ****

    Good work Brooks. Stay us
    Good work Brooks. Stay up their butts like the ink they put up yours. And tell them you've got some friends who are totally freaking out about this and won't be able to sleep until you give them some answers.
    Roger

    (Tell Leaky that Stewie says hi.)
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #19
    just4Brooks said:

    Copy of email sent to Onc and Surgeon
    Hello Doctor … As you may already know I had my CT scan today with the ink up my back end. It sure was no picnic!! LOL. My concern is the spot where my appendix was removed. The CT doc says that it looks like only half of my appendix was removed or I may have a new growth. As you may recall when they did the biopsy of my appendix it did show a rare cancer growing inside of it. Any chance of a cell being missed when it was removed to re-grow? Any chance only half of my appendix was removed? Can we look at my CT scans that I had in August so we can compare? I really need you doctors to look into this ASAP so we can maybe see what’s going on. What was the name of the cancer in my appendix? Somebody please email me and or call my cell phone *** *** ****

    Good for you, Brooks! Way
    Good for you, Brooks! Way to take charge!
  • HollyID
    HollyID Member Posts: 946 Member
    #20
    just4Brooks said:

    Copy of email sent to Onc and Surgeon
    Hello Doctor … As you may already know I had my CT scan today with the ink up my back end. It sure was no picnic!! LOL. My concern is the spot where my appendix was removed. The CT doc says that it looks like only half of my appendix was removed or I may have a new growth. As you may recall when they did the biopsy of my appendix it did show a rare cancer growing inside of it. Any chance of a cell being missed when it was removed to re-grow? Any chance only half of my appendix was removed? Can we look at my CT scans that I had in August so we can compare? I really need you doctors to look into this ASAP so we can maybe see what’s going on. What was the name of the cancer in my appendix? Somebody please email me and or call my cell phone *** *** ****

    Glad you sent this Brooks.
    Glad you sent this Brooks. I seriously can't imagine that a doc would only remove half of an appendix. That would seriously disturb me.

    Please let us know what they say.

    Wishing for the best for you!!

    Holly
  • JDuke
    JDuke Member Posts: 438
    #21
    HollyID said:

    Glad you sent this Brooks.
    Glad you sent this Brooks. I seriously can't imagine that a doc would only remove half of an appendix. That would seriously disturb me.

    Please let us know what they say.

    Wishing for the best for you!!

    Holly

    Way to go Brooks
    Glad you sent the email. They just don't realize the anxiousness associated with the unknown, do they? Positive thoughts for it to be scar tissue. Thanks for keeping us in the loop.
    Kind regards,
    Joanne

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