A little miffed..should i be?

Lisa13Q
Lisa13Q Member Posts: 677
edited March 2014 in Ovarian Cancer #1
OK, wednesday is a big day. After 6 months of what you are all familiar with: chemo, major debulking, cisplatin, kidney damage etc., my mother goes in for her CT scan results and her HUGE meeting. Onc, says CT scan shows two "somethings" where both her re-sections were, and since her previous CA-125 was high Onc's nervous, wants to watch CA-125 and bring her back from FL the second it goes up. Radiologist thinks it's scar tissue, and Mom's cancer free. Mom leaves kind of upset as she has been through all this to get what she sees as a completely ambiguous answer. yesterday, CA-125 comes back 33.Hallelujah, she starts to cry out of happiness. thats the lowest it's been in who knows how long. Now, I am totally irritated that they didn't wait to get the most recent CA-125 result before talking to Mom. We can't get a hold of the Onc. to see if that changes anything. I know I know...I am suppposed to enjoy one day at a time, but...I guess I'm pissy today...

Bonnie, how did your tests go?....PS. to all the newbies, if my mother's CA-125 can go down and she can possibly be NED (even though the doc said no way 2 months ago), ANYTHING CAN HAPPEN..Her cancer was everywhere when we found it. everywhere. Have hope!! This is a crazy disease and I think God is in total control of where it goes.

God Bless you all...

Comments

  • Barbara53
    Barbara53 Member Posts: 652
    #2
    it's the nobody knows phase
    Maybe you're in the nobody knows phase. Everybody -- all the pros, all the family, and especially your mother -- has done what they can for now. Nobody knows what happens next.

    Meanwhile, it sounds like your mom is ready to declare herself in remission, so let her. What do you have to lose?

    My mom did exactly that in September. She decided the cancer was gone, and lived cancer free for six months, at least in her mind. Strange but true, and now she can even talk about it a little. Psychologically, it was a way of taking care of herself, of slowing down time. Now she is accepting reality with much more peace, a little at a time.

    I'm so glad she gave herself those six months, and glad her doctors didn't push her to do things differently.
  • Lisa13Q
    Lisa13Q Member Posts: 677
    #3
    Barbara53 said:

    it's the nobody knows phase
    Maybe you're in the nobody knows phase. Everybody -- all the pros, all the family, and especially your mother -- has done what they can for now. Nobody knows what happens next.

    Meanwhile, it sounds like your mom is ready to declare herself in remission, so let her. What do you have to lose?

    My mom did exactly that in September. She decided the cancer was gone, and lived cancer free for six months, at least in her mind. Strange but true, and now she can even talk about it a little. Psychologically, it was a way of taking care of herself, of slowing down time. Now she is accepting reality with much more peace, a little at a time.

    I'm so glad she gave herself those six months, and glad her doctors didn't push her to do things differently.

    Thanks Barbara
    I think your perspective is perfect......So YEAH!!!!!!!!!! PS. Thinking about you and your Mom today!! It sounds like they are so similar and we are on a similar path...

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