Just a quick update, after 5 weekly low-dose taxol chemos for my recurrence of UPSC
My CT/PET will be in early February and I will also meet with the head of Women's Health, (a gyn-onc) about my idea of having them cut out the enlarged lymph node from under my arm (if it lights up again on the February PET scan!) and do a fresh tissue assay to see if my UPSC is EGRF or HER2 and chemo-resistant in some way that would make consideration of Herceptin or Avastin in my chemo cocktail worth fighting for. ((((((Big Hugs)))))) to all my UPSC Sisters! I feel good! This hasn't been too bad so far.
Comments
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Linda it was good to hear such a positive report
I am glad you are tolerating this low dose chemo so well. Your labs are keeping good. The CA 125 continuing to drop is great news. Glad you are tolerating the Neupogen shots without bone pain, too. It is good news that your digestive tract has recovered also.
I saw 3-D Avatar last week, and it is really good. I enjoyed it much more than I thought I would. So you are in the "Bald is Beautiful" group again. Your hats and wigs should feel good now that the cold weather is there. In peace and caring.0 -
Sounds like you are in pretty good spirits!
I am happy that you are tolerating all of this so well. Thanks for keeping us posted. I want to see Avatar! Sounds like you are slowing down a bit and able to take an afternoon with your hubby to enjoy a movie together. That's what life is all about! I love ya friend. Feel my great big cyber hugs and prayers! Once again grace, strength and courage.0 -
Thank you!
for sharing such good news...I'm so very glad to hear you're feeling good and the treatment hasn't put a hitch in your stride. It's always wonderful to read your posts, no matter the subject, so thanks for keeping us all updated on your journey.
Avatar in 3D, huh? I've been wanting to see it, but y'all have clinched it for me. I'm going! And soon!
Big hugs to all,
Cecile0 -
checking in again
Hi Linda, thanks for checking in. You are important on so many levels to me. I'm going to look back at some of my old notes from Dr. Schwartz at Yale about HER2. This group is so on top of things that I don't know if I have anything new to add but I will surely look. I can certainly agree to the good medicine a movie like Avatar can bring. I saw it yesterday. It was impressive. I don't understand all the controversy around it. I just enjoyed entering an alternative world for a few hours.
Barb0 -
Your treatment
I think of you every day. You are such a fighter. I am glad the chemo hasn't been too bad. I had such a hard time with taxol it scares me to take it weekly. But then the steroids were so helpful I know I could do it. Love and think of you every day. ((((hugs)))))
Diane0 -
Linda,Songflower said:Your treatment
I think of you every day. You are such a fighter. I am glad the chemo hasn't been too bad. I had such a hard time with taxol it scares me to take it weekly. But then the steroids were so helpful I know I could do it. Love and think of you every day. ((((hugs)))))
Diane
It's great to hear
Linda,
It's great to hear how well things are going for you - and I'm sure your positive attitude provides a booster to your chemo treatments.
My thoughts are with you -- and thank you for sharing your experiences.
Annette0 -
Linda,upsofloating said:Linda,
It's great to hear
Linda,
It's great to hear how well things are going for you - and I'm sure your positive attitude provides a booster to your chemo treatments.
My thoughts are with you -- and thank you for sharing your experiences.
Annette
Thanks for the update. You are an inspiration. Hang in there.
All the best. With prayers, Mary Ann0 -
Another small drop from weekly taxol #6.daisy366 said:Linda,
Thanks for the update. You are an inspiration. Hang in there.
All the best. With prayers, Mary Ann
My Ca-125 dropped another 5 points when I had my labs yesterday before my 7th weekly taxol, so I guess this chemo continues to work! It’s working SLOWER than I want it to, but at 50.5 it is getting closer to the magic ‘under 35’ it needs to be before my next PET/CT-scan. If I can get it under 35 and get a good scan with no disease progression, I think they’ll give me a 3-month chemo break. So it’s a goal!
My regular blood counts were lower than ideal but still good enough to get chemo. The WEEKLY physical exams (eternal palpitation) and the WEEKLY blood labs are really reassuring. As much as I LONG for the blissful ignorance of NOT being constantly monitored, it is nice to be reassured so often that I'm doing fine.0 -
Always happy to hear you arelindaprocopio said:Another small drop from weekly taxol #6.
My Ca-125 dropped another 5 points when I had my labs yesterday before my 7th weekly taxol, so I guess this chemo continues to work! It’s working SLOWER than I want it to, but at 50.5 it is getting closer to the magic ‘under 35’ it needs to be before my next PET/CT-scan. If I can get it under 35 and get a good scan with no disease progression, I think they’ll give me a 3-month chemo break. So it’s a goal!
My regular blood counts were lower than ideal but still good enough to get chemo. The WEEKLY physical exams (eternal palpitation) and the WEEKLY blood labs are really reassuring. As much as I LONG for the blissful ignorance of NOT being constantly monitored, it is nice to be reassured so often that I'm doing fine.
Always happy to hear you are doing well!!!!0 -
Glad to hear the CA 125 continues to droplindaprocopio said:Another small drop from weekly taxol #6.
My Ca-125 dropped another 5 points when I had my labs yesterday before my 7th weekly taxol, so I guess this chemo continues to work! It’s working SLOWER than I want it to, but at 50.5 it is getting closer to the magic ‘under 35’ it needs to be before my next PET/CT-scan. If I can get it under 35 and get a good scan with no disease progression, I think they’ll give me a 3-month chemo break. So it’s a goal!
My regular blood counts were lower than ideal but still good enough to get chemo. The WEEKLY physical exams (eternal palpitation) and the WEEKLY blood labs are really reassuring. As much as I LONG for the blissful ignorance of NOT being constantly monitored, it is nice to be reassured so often that I'm doing fine.
Linda I am so glad you continue to tolerate the weekly chemo, and you continue to get results. I hope you reach that magic number soon. Glad you continue to be reassured that you are doing okay. You remain in my prayers. In peace and caring.0 -
Happy Linda's CA 125 continues to dropRo10 said:Glad to hear the CA 125 continues to drop
Linda I am so glad you continue to tolerate the weekly chemo, and you continue to get results. I hope you reach that magic number soon. Glad you continue to be reassured that you are doing okay. You remain in my prayers. In peace and caring.
Linda, happy to hear your CA 125 continues to drop , hope you reach that magic number so you can have a break from chemo.Always thinking about you......
Ro, have you thought about signing up on facebook? I think you would like it.... hope all is well for you on your appointment in Feb.0 -
Hi Teresa!Teresa 61 said:Happy Linda's CA 125 continues to drop
Linda, happy to hear your CA 125 continues to drop , hope you reach that magic number so you can have a break from chemo.Always thinking about you......
Ro, have you thought about signing up on facebook? I think you would like it.... hope all is well for you on your appointment in Feb.
Good to see you on. How are you doing?0 -
Teresa so good to hear from youTeresa 61 said:Happy Linda's CA 125 continues to drop
Linda, happy to hear your CA 125 continues to drop , hope you reach that magic number so you can have a break from chemo.Always thinking about you......
Ro, have you thought about signing up on facebook? I think you would like it.... hope all is well for you on your appointment in Feb.
I have been wondering how you have been doing. It has been a while since you posted. Did your back pain go away? Is everything else going okay for you? Have your check-ups been good? I hope so.
What is the advantage of facebook? My husband has an account on facebook, but I did not see the advantage of being on it. Some things I post here, I would not want everyone to read. In peace and caring.0 -
Hello....Ro10 said:Teresa so good to hear from you
I have been wondering how you have been doing. It has been a while since you posted. Did your back pain go away? Is everything else going okay for you? Have your check-ups been good? I hope so.
What is the advantage of facebook? My husband has an account on facebook, but I did not see the advantage of being on it. Some things I post here, I would not want everyone to read. In peace and caring.
Had my 2nd post chemo check up Jan. 20th. Had a chest xray and blood work , plus the usual vaginal rectal that we all love.. Ugh! Dr. said everything looks great and to come back in 4 months.
I'am still having pain in my legs and hips and have nerve damage on my upper right leg. Not near as bad as it was in July when it started.I'am sure it was caused by the chemo and radiation.
Ro, I love facebook. Alot of the girls are on there. We all post pictures and for me it makes me feel closer to everyone. Mostly everyone just posts everyday living stuff. I do not go in to detail on facebook like I would on this site.
I'am not very good at writing my thoughts down so don't post very often. I do come here often to see how everyone is doing.Feel like we have all known each other forever. I also get worried when I don't see a post from one of you when some time has past.......0 -
Good news!lindaprocopio said:Another small drop from weekly taxol #6.
My Ca-125 dropped another 5 points when I had my labs yesterday before my 7th weekly taxol, so I guess this chemo continues to work! It’s working SLOWER than I want it to, but at 50.5 it is getting closer to the magic ‘under 35’ it needs to be before my next PET/CT-scan. If I can get it under 35 and get a good scan with no disease progression, I think they’ll give me a 3-month chemo break. So it’s a goal!
My regular blood counts were lower than ideal but still good enough to get chemo. The WEEKLY physical exams (eternal palpitation) and the WEEKLY blood labs are really reassuring. As much as I LONG for the blissful ignorance of NOT being constantly monitored, it is nice to be reassured so often that I'm doing fine.
Hi Linda, hadn't seen an update from you and so popped over and was happy to see your good news. I hope that CA continues to go into the basement!!!!
Hugs,
Kathleen:)0 -
Today's pre-chemo blood lab: CA125 was down to 44.6kayandok said:Good news!
Hi Linda, hadn't seen an update from you and so popped over and was happy to see your good news. I hope that CA continues to go into the basement!!!!
Hugs,
Kathleen:)
I've had 9 rounds of the weekly taxol now for my recurrance; and the PRE-chemo lab (so after 8 rounds) has my CA-125 down from its high of 155 to 44.6. That's still a long way from my CA125 low of 11, but it appears the weak dose of taxol is still working and that we will stick with this treatment schedule as long as it continues to drop (although the drop is so SMALL each week that this seems to be taking FOREVER!) I am still getting taxol every Monday and neupogen shots every Tuesday, Wednesday, and Thursday. I schedule all my face-to-face business meetings and phone conferences for Fridays and try to have a sleepover with my grandkids each weekend.
I get very fatigued each day now, and it is hard to do meaningful grant work unless I pick my times when I am at my best. But my business is thriving as my staff and sons have really stepped up and I have promoted some key people and am training everyone as fast as I can to take over my responsibilities.
I feel blessed that I still have no pain, no nausea, no neuropathy, and I STILL HAVE A FEW EYELASHES !! HA! I am bald, of course, and I get frustrated when I need to lay down when I really WANT (and NEED!) to so something else. But otherwise I'm hanging in there.
I read all the posts even when I don't respond. I think my recurrance is a downer most of you don't need right now, and not something I want people in their initial battle to even think about, and it sort of invalidates my opinion since you may no longer want to do anything the way I did it, in hindsight. But I love you and support you all and pray for you. And I wanted to get an update here for anyone worrying about me. I'll be having a CT?PET scan sometime in February and then will have some real news to share, good or bad.
PS: Did you hear about FRAN??? Mets to the brain and now she's NED!! NED!!
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Keeping you in my prayerslindaprocopio said:Today's pre-chemo blood lab: CA125 was down to 44.6
I've had 9 rounds of the weekly taxol now for my recurrance; and the PRE-chemo lab (so after 8 rounds) has my CA-125 down from its high of 155 to 44.6. That's still a long way from my CA125 low of 11, but it appears the weak dose of taxol is still working and that we will stick with this treatment schedule as long as it continues to drop (although the drop is so SMALL each week that this seems to be taking FOREVER!) I am still getting taxol every Monday and neupogen shots every Tuesday, Wednesday, and Thursday. I schedule all my face-to-face business meetings and phone conferences for Fridays and try to have a sleepover with my grandkids each weekend.
I get very fatigued each day now, and it is hard to do meaningful grant work unless I pick my times when I am at my best. But my business is thriving as my staff and sons have really stepped up and I have promoted some key people and am training everyone as fast as I can to take over my responsibilities.
I feel blessed that I still have no pain, no nausea, no neuropathy, and I STILL HAVE A FEW EYELASHES !! HA! I am bald, of course, and I get frustrated when I need to lay down when I really WANT (and NEED!) to so something else. But otherwise I'm hanging in there.
I read all the posts even when I don't respond. I think my recurrance is a downer most of you don't need right now, and not something I want people in their initial battle to even think about, and it sort of invalidates my opinion since you may no longer want to do anything the way I did it, in hindsight. But I love you and support you all and pray for you. And I wanted to get an update here for anyone worrying about me. I'll be having a CT?PET scan sometime in February and then will have some real news to share, good or bad.
PS: Did you hear about FRAN??? Mets to the brain and now she's NED!! NED!!
I am so glad you posted how you are doing. I find it very helpful to see that there is treatment if I do have a recurrance after my inital treatment. Thanks for sharing your journey. I think you are inspirational.
I am new here, and hate to ask but, who is FRAN? I am glad she is NED. I just learned that term and it sings to me like a Green siren's song.
Will be thinking of you and praying. I had chemo today and thought of you guys here.0 -
Lindanorma2 said:Keeping you in my prayers
I am so glad you posted how you are doing. I find it very helpful to see that there is treatment if I do have a recurrance after my inital treatment. Thanks for sharing your journey. I think you are inspirational.
I am new here, and hate to ask but, who is FRAN? I am glad she is NED. I just learned that term and it sings to me like a Green siren's song.
Will be thinking of you and praying. I had chemo today and thought of you guys here.
Happy to hear that you CA125 is coming down, I know it's frustrating that it's happening slowly. You are an amazing women and take that nap! You are in my thoughts are prayers everyday. Love you girl!!!!
MIND, BODY AND SOUL
Hugs, Marge0 -
Great newslindaprocopio said:Today's pre-chemo blood lab: CA125 was down to 44.6
I've had 9 rounds of the weekly taxol now for my recurrance; and the PRE-chemo lab (so after 8 rounds) has my CA-125 down from its high of 155 to 44.6. That's still a long way from my CA125 low of 11, but it appears the weak dose of taxol is still working and that we will stick with this treatment schedule as long as it continues to drop (although the drop is so SMALL each week that this seems to be taking FOREVER!) I am still getting taxol every Monday and neupogen shots every Tuesday, Wednesday, and Thursday. I schedule all my face-to-face business meetings and phone conferences for Fridays and try to have a sleepover with my grandkids each weekend.
I get very fatigued each day now, and it is hard to do meaningful grant work unless I pick my times when I am at my best. But my business is thriving as my staff and sons have really stepped up and I have promoted some key people and am training everyone as fast as I can to take over my responsibilities.
I feel blessed that I still have no pain, no nausea, no neuropathy, and I STILL HAVE A FEW EYELASHES !! HA! I am bald, of course, and I get frustrated when I need to lay down when I really WANT (and NEED!) to so something else. But otherwise I'm hanging in there.
I read all the posts even when I don't respond. I think my recurrance is a downer most of you don't need right now, and not something I want people in their initial battle to even think about, and it sort of invalidates my opinion since you may no longer want to do anything the way I did it, in hindsight. But I love you and support you all and pray for you. And I wanted to get an update here for anyone worrying about me. I'll be having a CT?PET scan sometime in February and then will have some real news to share, good or bad.
PS: Did you hear about FRAN??? Mets to the brain and now she's NED!! NED!!
Linda, I am so glad to hear that you are doing well in spite of the fatigue. No Nausea and NO neuropathy and a steadily declining CA-125 is GREAT news!! Also was so thrilled to hear the good news about Fran! WOW!!!! I am so happy for her and her family!!!
Karen0
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