Just a quick update, after 5 weekly low-dose taxol chemos for my recurrence of UPSC

Ro10

kkstef said:

Great news
Linda, I am so glad to hear that you are doing well in spite of the fatigue. No Nausea and NO neuropathy and a steadily declining CA-125 is GREAT news!! Also was so thrilled to hear the good news about Fran! WOW!!!! I am so happy for her and her family!!!

Karen

Linda great news that CA 125 continues to drop
Glad the taxol continues to work for you. Sorry you are so fatigued. Listen to your body and take that nap when needed. In peace and caring.

daisy366

Ro10 said:

Linda great news that CA 125 continues to drop
Glad the taxol continues to work for you. Sorry you are so fatigued. Listen to your body and take that nap when needed. In peace and caring.

Dearest Linda,
Hey, wait a minute. Please don't censor yourself in an attempt to protect us. This is a forum for everyone. If you want to post, I want you to post. I think your journey is very important and I, for one, am here to support YOU. I'm sure many others join me in those sentiments.

I have no grand delusions about the future - hope yes, delusions no!!

It sounds like you are making the most of everything. I'm happy that you are enjoying your grandchildren so much.

My thoughts are prayers are with you and all here. Many blessings, Mary Ann

deanna14

daisy366 said:

Dearest Linda,
Hey, wait a minute. Please don't censor yourself in an attempt to protect us. This is a forum for everyone. If you want to post, I want you to post. I think your journey is very important and I, for one, am here to support YOU. I'm sure many others join me in those sentiments.

I have no grand delusions about the future - hope yes, delusions no!!

It sounds like you are making the most of everything. I'm happy that you are enjoying your grandchildren so much.

My thoughts are prayers are with you and all here. Many blessings, Mary Ann

Linda
I whole heartedly agree with Mary Ann!! We are here to support one another for better or worse... so to speak. Please DO NOT censor yourself! You are a very important link in this support system we have going on here and we need you to continue to be real. It's important for us to all face this monster... makes us fight even harder. Crappy cancer monster needs to stop messing with my sisters!!!!

lindaprocopio

deanna14 said:

Linda
I whole heartedly agree with Mary Ann!! We are here to support one another for better or worse... so to speak. Please DO NOT censor yourself! You are a very important link in this support system we have going on here and we need you to continue to be real. It's important for us to all face this monster... makes us fight even harder. Crappy cancer monster needs to stop messing with my sisters!!!!

Round 10 of weekly taxol this morning: CA-125 went up a little
Prior to my 10th weekly taxol infusion, I had labs that included a CA-125 blood draw. My CA-125 went UP from 44.6 to 47.1, which isn't a significant increase, but still a move in the wrong direction. The oncologist had already decided to schedule a PET-CT scan for me next Monday before I ever got my CA125 results, based on the fact that today was 10 chemo rounds in, so roughly half of the rounds he expects me to have with this initial recurrence. (He said today that typically taxol chemo for 1st recurrence goes on for 6 months minimum. ARGH! That was news to me.) He said if my CA-125 went up today that he'd wait until the PET/CT scan results were in and we'd probably switch to Doxil or add carbpoplatin to my taxol. Soooo, I don't have to go in for any Nuepopgen shots this week. & Monday instead of chemo, I will be getting a whole-body CT/PET scan.

I am also to see my gynecologic-oncologist for his opinion after the CT/Pet scan. I haven't seen him since November, since I have been under the care of my chemo oncologist. If Doxil is the chosen next chemo, I'll need to have a MUGGA test after the PET/CT to see if my heart is strong enough for the Doxil. I have always had a strong heart. So I won't know anything until after my scan.

So the GOOD NEWS is 'No Nuepogen shots this week' and 'no chemo on Monday' (Because of the scan), so a tiny break for me! I don't need to tell you how HUGE Monday's PET/Ct scan will be! GULP!!

fuzzytrouble

lindaprocopio said:

Round 10 of weekly taxol this morning: CA-125 went up a little
Prior to my 10th weekly taxol infusion, I had labs that included a CA-125 blood draw. My CA-125 went UP from 44.6 to 47.1, which isn't a significant increase, but still a move in the wrong direction. The oncologist had already decided to schedule a PET-CT scan for me next Monday before I ever got my CA125 results, based on the fact that today was 10 chemo rounds in, so roughly half of the rounds he expects me to have with this initial recurrence. (He said today that typically taxol chemo for 1st recurrence goes on for 6 months minimum. ARGH! That was news to me.) He said if my CA-125 went up today that he'd wait until the PET/CT scan results were in and we'd probably switch to Doxil or add carbpoplatin to my taxol. Soooo, I don't have to go in for any Nuepopgen shots this week. & Monday instead of chemo, I will be getting a whole-body CT/PET scan.

I am also to see my gynecologic-oncologist for his opinion after the CT/Pet scan. I haven't seen him since November, since I have been under the care of my chemo oncologist. If Doxil is the chosen next chemo, I'll need to have a MUGGA test after the PET/CT to see if my heart is strong enough for the Doxil. I have always had a strong heart. So I won't know anything until after my scan.

So the GOOD NEWS is 'No Nuepogen shots this week' and 'no chemo on Monday' (Because of the scan), so a tiny break for me! I don't need to tell you how HUGE Monday's PET/Ct scan will be! GULP!!

update
Hey Linda, sorry to hear about your number going up a bit I kind of wish you went on Doxil first, but since it was your first recurrence I guess that's what they do. I hate some of the side effects of Doxil but from what my ct scan says my nodules are shrinking and no sign of progression. I have had only four treatments with it. I haven't talked with the Dr. yet about how long I will be on Doxil hopefully this week sometime we will have a chat. I have never been given a MUGGA test. Every time I have a ct scan they see if the heart is in a normal range I will ask the Dr. why I haven't had one. I wish the best with the PET/Ct scan. The waiting game is just so hard and we all know what you are going through.
Hugs from Oregon

TiggersDoBounce

lindaprocopio said:

Round 10 of weekly taxol this morning: CA-125 went up a little
Prior to my 10th weekly taxol infusion, I had labs that included a CA-125 blood draw. My CA-125 went UP from 44.6 to 47.1, which isn't a significant increase, but still a move in the wrong direction. The oncologist had already decided to schedule a PET-CT scan for me next Monday before I ever got my CA125 results, based on the fact that today was 10 chemo rounds in, so roughly half of the rounds he expects me to have with this initial recurrence. (He said today that typically taxol chemo for 1st recurrence goes on for 6 months minimum. ARGH! That was news to me.) He said if my CA-125 went up today that he'd wait until the PET/CT scan results were in and we'd probably switch to Doxil or add carbpoplatin to my taxol. Soooo, I don't have to go in for any Nuepopgen shots this week. & Monday instead of chemo, I will be getting a whole-body CT/PET scan.

I am also to see my gynecologic-oncologist for his opinion after the CT/Pet scan. I haven't seen him since November, since I have been under the care of my chemo oncologist. If Doxil is the chosen next chemo, I'll need to have a MUGGA test after the PET/CT to see if my heart is strong enough for the Doxil. I have always had a strong heart. So I won't know anything until after my scan.

So the GOOD NEWS is 'No Nuepogen shots this week' and 'no chemo on Monday' (Because of the scan), so a tiny break for me! I don't need to tell you how HUGE Monday's PET/Ct scan will be! GULP!!

Round 10 of weekly taxol this morning: CA-125 went up a little
Linda,

Sending you hugs and positive vibes for a quick turnaround in the other direction for those damn numbers

Stay strong!

Laurie

thank you

lindaprocopio said:

Round 10 of weekly taxol this morning: CA-125 went up a little
Prior to my 10th weekly taxol infusion, I had labs that included a CA-125 blood draw. My CA-125 went UP from 44.6 to 47.1, which isn't a significant increase, but still a move in the wrong direction. The oncologist had already decided to schedule a PET-CT scan for me next Monday before I ever got my CA125 results, based on the fact that today was 10 chemo rounds in, so roughly half of the rounds he expects me to have with this initial recurrence. (He said today that typically taxol chemo for 1st recurrence goes on for 6 months minimum. ARGH! That was news to me.) He said if my CA-125 went up today that he'd wait until the PET/CT scan results were in and we'd probably switch to Doxil or add carbpoplatin to my taxol. Soooo, I don't have to go in for any Nuepopgen shots this week. & Monday instead of chemo, I will be getting a whole-body CT/PET scan.

I am also to see my gynecologic-oncologist for his opinion after the CT/Pet scan. I haven't seen him since November, since I have been under the care of my chemo oncologist. If Doxil is the chosen next chemo, I'll need to have a MUGGA test after the PET/CT to see if my heart is strong enough for the Doxil. I have always had a strong heart. So I won't know anything until after my scan.

So the GOOD NEWS is 'No Nuepogen shots this week' and 'no chemo on Monday' (Because of the scan), so a tiny break for me! I don't need to tell you how HUGE Monday's PET/Ct scan will be! GULP!!

My prayers for you
Linda, I am sure that everybody in this site will be praying for you. We all need to hear that these lymph nodes aren't there any more.

TiggersDoBounce

lindaprocopio said:

Round 10 of weekly taxol this morning: CA-125 went up a little
Prior to my 10th weekly taxol infusion, I had labs that included a CA-125 blood draw. My CA-125 went UP from 44.6 to 47.1, which isn't a significant increase, but still a move in the wrong direction. The oncologist had already decided to schedule a PET-CT scan for me next Monday before I ever got my CA125 results, based on the fact that today was 10 chemo rounds in, so roughly half of the rounds he expects me to have with this initial recurrence. (He said today that typically taxol chemo for 1st recurrence goes on for 6 months minimum. ARGH! That was news to me.) He said if my CA-125 went up today that he'd wait until the PET/CT scan results were in and we'd probably switch to Doxil or add carbpoplatin to my taxol. Soooo, I don't have to go in for any Nuepopgen shots this week. & Monday instead of chemo, I will be getting a whole-body CT/PET scan.

I am also to see my gynecologic-oncologist for his opinion after the CT/Pet scan. I haven't seen him since November, since I have been under the care of my chemo oncologist. If Doxil is the chosen next chemo, I'll need to have a MUGGA test after the PET/CT to see if my heart is strong enough for the Doxil. I have always had a strong heart. So I won't know anything until after my scan.

So the GOOD NEWS is 'No Nuepogen shots this week' and 'no chemo on Monday' (Because of the scan), so a tiny break for me! I don't need to tell you how HUGE Monday's PET/Ct scan will be! GULP!!

Linda- Tomorrow :0
Linda,

Sending you well wishes for your Pet Scan tomorrow....

Hang in and keep us posted..

Laurie