Side effects - Cysplatin

Hi Patty
Ratface hit the nail on the head with the chemo brain word. I can’t remember anything anymore, it is really bad when I need to go and ask my wife if she seen me because I can’t remember where I left myself. What I do hate most is when I am preaching and forgot what I am talking about, these days I keep my sermon with me to keep me on track, anyway Jesus is there and will someday give me a new body & brain.

After treatment our bodies goes through many changes and for years to come, my last radiation & chemo was in March 2005 and I am just now having new side affects from it. One of the reasons might be because I had to have radiation twice. I am always cold and can’t get warm enough, all the vents in my office at work are plugged and I live with a space heater under my desk.

I am having nerve problems mostly in my jaw, a lot of pain and numbness, to where I can’t speak or swallow. The pain under the neck get so bad it is like a very bad Charlie horse and all I can do is hold my neck and sit sown. I tell my doctor and ENT about it but they don’t seam to know what to do about.

I am thinking about acupuncture to help the nerves Scambuster is trying it in the land down under so I am praying it works for him.

Take care Patty and I will keep you in my prayers.

Kent Cass said:

Cisplatin and nerves
pattyanny- no nerve damage with me. Did experience a week of Cranial Nerve pain, but it went away. No other nerve damage symptoms with me. Have noticed a little hearing lost in the one ear.

My Cisplatin treatment may be such that I can rightly advise you to consider that the cause of your nerve problems may be a secondary issue. Were I you, I would consider going to your regular Dr. It may or may not be related to your C. Might be a separate issue brought to light by the chemo, which is a lot for the body to deal with. The nerves on the lower torso trace to the lower spine, and an area there might be the problem. Just a suggestion.

And, Hondo- the cold feeling is with me, too. May be the thyroid, you know, but it does make this winter even colder than it is, and the summer not as hot as it is- which is a good thing.

Chemo brain: multi-tasking is my chemo brain problem. Very real. My research tells me the med community does recognize it as fact, but can't get a handle on it.

kcass

Hay Big brother
I was going through an Audit last years in my office; the auditor was getting so hot the sweat was dripping down his face. He looked at me and said why it is so hot in here; I told him sorry but I don’t feel a thing. When he looked at me I was as cool as I could be, no sweat or signs of every being hot, my 2 hour audit only lasted ½ hour. I did not have the heart to tell him I have all the A/C vents plugged and my space heater going under my desk. I have my thyroids check every 6 months last check-up was in October everything was OK then.

Take care and God bless

pattyanny said:

Good Idea Kent! After my
Good Idea Kent! After my 1st PET, I will see a neurologist then. As for your cranial nerve pain - could you explain that? I had (in the past) severe pain in the back of my head,on both sides, behind the ears that lasted for quite a few days. Was it like that?
Thanks for you input Kent. I appreciate picking your brain! God Bless You!

cranial
My pain was a bit different: ran horizontal in left-upper cheek from my ear to about an inch away from my nose, and vertical down to my left upper-neck a couple inches below my chin. Again, I feel fortunate it went away. Couple days were kinda bad.

Believe.

kcass

pattyanny said:

Hi Hondo
Hi Hondo, well - if I have been experiencing "Chemo Brain" - I don't remember! Hee hee!
I can't depend on my teens because they have always said to me, "oh I told you that Mom!"
I am always cold, but being 5'9 and 120lbs does not help. If I turn sideways, and stick out my tongue - I look like a zipper! But I am eating again, I feel I have turned a corner on the taste thing.
I am sorry to hear about your jaw and neck pain, you would think someone would have an answer. I get frustrated because I know everyone is affected differently, but someone MUST
have had a similar problem. Arghhh! Have you tried a mild muscle relaxer? I only say this because my Sis suffers with severe nerve and muscle back pain, and a little helps her.
Yes, I read Scambusters' posts too, and acupuncture sounds like a viable and promising option instead of drugs. I wish him well.
When I read how Jesus suffered and died on the cross for our sins, I am truly humbled.
I know he is preparing me to do greater things for Him on this earth.
Thank you for your wisdom & prayers Hondo. God Bless You! As always, you are in mine, as
is the rest of the "club".

I'm freezing all the time too!
Hondo

Same here , I'm always cold. Prior to treatment I was always the one in the room who was hot first. I have been keeping a fire going in the fireplace anytime that I'm home, really going through some wood this year. I suppose I should ask for a thyroid test. I was hoping it was this horrible Chicago winter. If I am fortunate enough to survive this long term I am going to have to move to somewhere warmer, perhaps to Louisiana?

pattyanny said:

Hi Hondo
Hi Hondo, well - if I have been experiencing "Chemo Brain" - I don't remember! Hee hee!
I can't depend on my teens because they have always said to me, "oh I told you that Mom!"
I am always cold, but being 5'9 and 120lbs does not help. If I turn sideways, and stick out my tongue - I look like a zipper! But I am eating again, I feel I have turned a corner on the taste thing.
I am sorry to hear about your jaw and neck pain, you would think someone would have an answer. I get frustrated because I know everyone is affected differently, but someone MUST
have had a similar problem. Arghhh! Have you tried a mild muscle relaxer? I only say this because my Sis suffers with severe nerve and muscle back pain, and a little helps her.
Yes, I read Scambusters' posts too, and acupuncture sounds like a viable and promising option instead of drugs. I wish him well.
When I read how Jesus suffered and died on the cross for our sins, I am truly humbled.
I know he is preparing me to do greater things for Him on this earth.
Thank you for your wisdom & prayers Hondo. God Bless You! As always, you are in mine, as
is the rest of the "club".

Pattyanny
You are so right when I think of all that Jesus did for me how can I complain about the little problems I have to bare. I look forward to that day when I will see my savoir and friend who has carried me through all my trials when I could not walk by my self.

Take care and may the light of His love shine on you always