Dr. recommended Sir spheres

ittapp
ittapp Member Posts: 383 Member
edited March 2014 in Colorectal Cancer #1
Hello everyone, went to my Interventional Radiologist today and he is recommending Sir Spheres, although it is not a cure it should slow down progression. I am having to come off of Avastin for 2 months which is risky. However, my Folfox with avastan stopped working when I was switched to cpt11. I still have to qualify for this healthwise and financially so I will keep all of you posted. Thanks, Patti

Comments

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #2
    Watching and Waiting :)
    OK, Patti

    I sure want to know how things go for you! I hope you qualify for the procedures...I'm about to learn from you now.

    -Craig
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #3
    Good luck with the spheres.
    Good luck with the spheres. I met someone who has been treated with these & has had much sucess. You will be teaching many of us!
  • lizbiz
    lizbiz Member Posts: 120
    #4
    Similar situation
    Hi Patti,

    Chemo doesn't work for me and no doctor seems to know what to do, so we decided to try TheraSpheres (similar to SirSpheres). I had the procedure about 1 month ago and since then my pain has diminished considerably and I'm able to eat and keep down solid food. I'm actually now gaining some sorely needed weight.

    If you have any questions, PM me.

    Good Luck,
    Elizabeth
  • jen58
    jen58 Member Posts: 34
    #5
    best of luck
    sure seems like an amazing procedure/treatment, i hope it is successful for you!
  • sfmarie
    sfmarie Member Posts: 602
    #6
    Patti
    My sister and I met with an Interventional Radiologist and he thought she only needed to miss one cycle of Avastin. Now, i could be wrong, but I am pretty sure it was just one cycle, she cycles every two weeks, so that would only be one month. Maybe you can ask. Good luck with the insurance portion. We are still fighting ours to get approval, it was denied as "experimental" by Blue Cross of CA. Now it's in the appeals process and there is no way we could afford to pay for it on our own. I'm told it is ridiculously expensive.
  • ittapp
    ittapp Member Posts: 383 Member
    #7
    sfmarie said:

    Patti
    My sister and I met with an Interventional Radiologist and he thought she only needed to miss one cycle of Avastin. Now, i could be wrong, but I am pretty sure it was just one cycle, she cycles every two weeks, so that would only be one month. Maybe you can ask. Good luck with the insurance portion. We are still fighting ours to get approval, it was denied as "experimental" by Blue Cross of CA. Now it's in the appeals process and there is no way we could afford to pay for it on our own. I'm told it is ridiculously expensive.

    Dr. york said that by
    Dr. york said that by standards and safety we needed to wait two months off of Avastan. This procedure is approved by the FDA so no way it should be looked at as experimental surgery (procedure) I have to go through medicaid and not sure what they will say. I am on Medicaid spindown so, I may have a deductable to pay not sure yet. Wish me luck and keep up the prayers.I hope you get your procedure done, it is very expensive! God Bless, Patti
  • sfmarie
    sfmarie Member Posts: 602
    #8
    ittapp said:

    Dr. york said that by
    Dr. york said that by standards and safety we needed to wait two months off of Avastan. This procedure is approved by the FDA so no way it should be looked at as experimental surgery (procedure) I have to go through medicaid and not sure what they will say. I am on Medicaid spindown so, I may have a deductable to pay not sure yet. Wish me luck and keep up the prayers.I hope you get your procedure done, it is very expensive! God Bless, Patti

    Thank you Patti
    I do wish all the best for you and I continue to pray every night for everyone here! It just breaks my heart. Take care and hope you are keeping warm. It is freeezing in California (but we're wimps when it comes to the weather). Marie
  • Shayenne
    Shayenne Member Posts: 2,342
    #9
    sfmarie said:

    Thank you Patti
    I do wish all the best for you and I continue to pray every night for everyone here! It just breaks my heart. Take care and hope you are keeping warm. It is freeezing in California (but we're wimps when it comes to the weather). Marie

    Good Luck Patti!
    I'm' glad they're going to try something for you! I'm interested in this procedure, but will wait when I can afford the opinions, and hear how it has worked for you! I can't wait to hear about it, and hope it just does you well!! Best Wishes!!

    Hugsss!
    ~Donna
  • suzanne-yes
    suzanne-yes Member Posts: 24
    #10
    Sir-spheres (Patti)
    Patti, Just read your post and wanted to wish you great success. I had the procedure 5 years ago and it has given me not only hope, but much appreciated time and quality of life. I wouldn't be here had it not been for these little magic beads. If I can answer any questions or help in any way, please don't hesitate to let me know. You can also find more information at www.beatlivertumors.org and read stories from others. Good luck! Suzanne
  • ittapp
    ittapp Member Posts: 383 Member
    #11
    suzanne-yes said:

    Sir-spheres (Patti)
    Patti, Just read your post and wanted to wish you great success. I had the procedure 5 years ago and it has given me not only hope, but much appreciated time and quality of life. I wouldn't be here had it not been for these little magic beads. If I can answer any questions or help in any way, please don't hesitate to let me know. You can also find more information at www.beatlivertumors.org and read stories from others. Good luck! Suzanne

    That is so awesome, where
    That is so awesome, where did you have it done. were their any complication? what was the recovery time?
  • robinvan
    robinvan Member Posts: 1,012
    #12
    Good to Hear
    I don't know much about this but it sounds hopeful. I hope you qualify.
    All the best... Rob; in Vancouver

    love your family picture BTW
  • Fight for my love
    Fight for my love Member Posts: 1,522 Member
    #13
    Hi Patti,best luck to you
    Hi Patti,best luck to you and you are in my prayers,I hope all goes well.Take care.
  • Unknown
    Unknown
    #14
    This comment has been removed by the Moderator
  • iluvmms
    iluvmms Member Posts: 134 Member
    #15
    unknown said:

    This comment has been removed by the Moderator

    theraspheres
    I am having the work up for these tomorrow and the "DRY RUN" on wednesday. They are telling me it is a curative treatment, and there has been a lot of possitive outcomes. It is very interesting, and scary at the same time!!

    Christy in FLorida
  • ittapp
    ittapp Member Posts: 383 Member
    #16
    iluvmms said:

    theraspheres
    I am having the work up for these tomorrow and the "DRY RUN" on wednesday. They are telling me it is a curative treatment, and there has been a lot of possitive outcomes. It is very interesting, and scary at the same time!!

    Christy in FLorida

    You are having the Sir
    You are having the Sir Spheres prodedure? they did not say curative to me, just to hold off the cancer and get shrinkage.Patti
  • geotina
    geotina Member Posts: 2,111 Member
    #17
    lizbiz said:

    Similar situation
    Hi Patti,

    Chemo doesn't work for me and no doctor seems to know what to do, so we decided to try TheraSpheres (similar to SirSpheres). I had the procedure about 1 month ago and since then my pain has diminished considerably and I'm able to eat and keep down solid food. I'm actually now gaining some sorely needed weight.

    If you have any questions, PM me.

    Good Luck,
    Elizabeth

    TheraSpheres
    Elizabeth where did you have this done? Did your insurance cover it? What was the name of your doctor? I've been researching this a bit and look forward to your response as well as everyone elses resonses. Take care - Tina
  • coloCan
    coloCan Member Posts: 1,944 Member
    #18
    Patti:SIR Spheres
    From what I've just read off their web site,treatment sounds very effective and causes less harm to healthy cells. Good luck with your treatment....Steve
  • ittapp
    ittapp Member Posts: 383 Member
    #19
    unknown said:

    This comment has been removed by the Moderator

    Hey Kathy, I am taking cpt11
    Hey Kathy, I am taking cpt11 with avastan now had one treatment last week. I had one visit with the Interventional Radiologist while I was on Folfox and he said that as long as that was working to keep on with it, but if it failed to come back and talk with him regarding Sir Spheres. So, that is what I did and he decided I was a good candidate but still need to qualify. Patti

Discussion Boards