Big "D" is back

BlownAway60
BlownAway60 Member Posts: 851
edited March 2014 in Breast Cancer #1
Big "D" is back. Onc says if he cannot get it under control he may have to stop my Chemo. Taking 2 Lomotal every 4 hours. If I have "D" tomorrow they want me to come in and get another bag of fluids.

I also noticed I have welts on my head. They hurt and itch a lot. Has any one else had this? Is it another side effect of the Chemo or could I be having an algeric reaction? I will have to call onc tomorrow and see what he says.

Donna
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Comments

  • Sunrae
    Sunrae Member Posts: 808
    #2
    I can't help you much
    I can't help you much because I'm not on chemo but I'm sorry that your problem is back. I do have that every once in awhile. I have IBS, and seems like it hits and I can't seem to figure out what irritates it. I'm sure you drinking tons of liquids. Hope everything goes away and quickly. Let us know how you're doing.
  • xskeetshooter
    xskeetshooter Member Posts: 169
    #3
    what the heck is the big d
    ?
  • BlownAway60
    BlownAway60 Member Posts: 851
    #4
    xskeetshooter said:

    what the heck is the big d
    ?

    Big "D" is Severe Diarrhea
    Big "D" is Severe Diarrhea
  • Jadie
    Jadie Member Posts: 723
    #5
    Hi Donna
    Sorry that you are having so many problems. The welts on your head are probably an alergic reaction to the chemo. I had that a couple of times except mine was on my hands and arms. Itched really bad. I would call dr and just tell them what is going on. I didn't have trouble with the big "D".Sorry can't help you there.

    Take care and keep hydrated
    Jadie<3
  • elizarose
    elizarose Member Posts: 124
    #6
    Jadie said:

    Hi Donna
    Sorry that you are having so many problems. The welts on your head are probably an alergic reaction to the chemo. I had that a couple of times except mine was on my hands and arms. Itched really bad. I would call dr and just tell them what is going on. I didn't have trouble with the big "D".Sorry can't help you there.

    Take care and keep hydrated
    Jadie<3</p>

    I've been told bye a couple
    I've been told bye a couple doctors to use benefiber, even for diarrhea. It might help!
  • carkris
    carkris Member Posts: 4,553 Member
    #7
    elizarose said:

    I've been told bye a couple
    I've been told bye a couple doctors to use benefiber, even for diarrhea. It might help!

    yes you can take benefiber
    yes you can take benefiber with diahrea and constipation. Talk to a dietician they seem to have good ideas ask to see a GI doc too. the dietician told me I need more soluable fiber what is your diet like? I am slowly adding that like oatmeal. I am nervous to go the other way. also ask them to check your electrolytes with all the D Your potassium could be low. My GI doc put me on a low residual diet dont know how much it helped, also have them check a stool culture.
  • BlownAway60
    BlownAway60 Member Posts: 851
    #8
    carkris said:

    yes you can take benefiber
    yes you can take benefiber with diahrea and constipation. Talk to a dietician they seem to have good ideas ask to see a GI doc too. the dietician told me I need more soluable fiber what is your diet like? I am slowly adding that like oatmeal. I am nervous to go the other way. also ask them to check your electrolytes with all the D Your potassium could be low. My GI doc put me on a low residual diet dont know how much it helped, also have them check a stool culture.

    Trying to stick mostly with BRAT Diet
    Trying to stick mostly with BRAT Diet. Drinking lots of Gatorade, water and decaffinated tea. Lomotal worked from 945am yesterday until 0530pm today. My potassium was low when they checked my blood on Wed. Will try the Benefiber tomorrow. I have already had 2 stool cultures done.

    Breakfast - 2 boiled eggs and a slice of white toast
    Snack - Yogurt or banana
    Lunch - Chix Noodle or Chix Rice Soup
    Snack - 2 Pretzel Rods or applesauce
    Dinner - Chix Pot Pie or more soup

    Trying to throw in some real food wherever I can.

    Donna
  • newbiefromcananda
    newbiefromcananda Member Posts: 234
    #9
    BlownAway60 said:

    Trying to stick mostly with BRAT Diet
    Trying to stick mostly with BRAT Diet. Drinking lots of Gatorade, water and decaffinated tea. Lomotal worked from 945am yesterday until 0530pm today. My potassium was low when they checked my blood on Wed. Will try the Benefiber tomorrow. I have already had 2 stool cultures done.

    Breakfast - 2 boiled eggs and a slice of white toast
    Snack - Yogurt or banana
    Lunch - Chix Noodle or Chix Rice Soup
    Snack - 2 Pretzel Rods or applesauce
    Dinner - Chix Pot Pie or more soup

    Trying to throw in some real food wherever I can.

    Donna

    me too
    Hi Donna

    I have been having this problem too , called the dr and he stated that if it did not clear up soon (before my butt falls off)to have some tests done? I feel better today but everyday is taken when I wake up and see how I feel, I started taking immodium, the brat dite and powerade drinks... today is a good day xoxoxox lisa
  • carkris
    carkris Member Posts: 4,553 Member
    #10
    newbiefromcananda said:

    me too
    Hi Donna

    I have been having this problem too , called the dr and he stated that if it did not clear up soon (before my butt falls off)to have some tests done? I feel better today but everyday is taken when I wake up and see how I feel, I started taking immodium, the brat dite and powerade drinks... today is a good day xoxoxox lisa

    yes my big D is back for
    yes my big D is back for three days and my butt is going to fall off. nothing gets me more depressed than the pain. I take oxycodone and 2 butt creams and lots of baths and Immodium I dont eat much. today I ordered a clear liquid drink, that has protein in it on line.I had it when I was hospitalized in oct I tried boost I think it makes it worse. What you ate is what I attain to eat. today I had toast and soup, tried a little rice. I do try to get all the fluid in, when I feel like this it is a struggle. I have a fissure so i never know what to do as I am afraid of getting constipated because of the fissure. if not for this i would have done very well.
  • sausageroll
    sausageroll Member Posts: 415
    #11
    carkris said:

    yes my big D is back for
    yes my big D is back for three days and my butt is going to fall off. nothing gets me more depressed than the pain. I take oxycodone and 2 butt creams and lots of baths and Immodium I dont eat much. today I ordered a clear liquid drink, that has protein in it on line.I had it when I was hospitalized in oct I tried boost I think it makes it worse. What you ate is what I attain to eat. today I had toast and soup, tried a little rice. I do try to get all the fluid in, when I feel like this it is a struggle. I have a fissure so i never know what to do as I am afraid of getting constipated because of the fissure. if not for this i would have done very well.

    Sorry
    I really do know how you feel. My chemo was finally stopped because of the big D. I was upset, but understood. I lived in Depends for ages!!! Taking meds for this can also make you constipated and that is the last thing you need. I hope it sorts itself out...thinking of you.
  • dyaneb123
    dyaneb123 Member Posts: 950
    #12
    Hey Donna
    Been there! During
    Hey Donna
    Been there! During my chemo I'd have to pull over every ten minutes at different fast food joints to use the bathroom, just trying to get back and forth to appointments! I was popping immodium 2 0r 3 times a day. It was usually severe just the week after chemo when I'd have to go in for my blood tests. Then , while still bad, it was manageable the rest of the time.I never had to stop chemo for it though, so it may be a matter of which chemo cocktail you are on. I was on TAC. And it will stop when your chemo is over, so try to hang in there sister.
    Dee
  • carkris
    carkris Member Posts: 4,553 Member
    #13
    dyaneb123 said:

    Hey Donna
    Been there! During
    Hey Donna
    Been there! During my chemo I'd have to pull over every ten minutes at different fast food joints to use the bathroom, just trying to get back and forth to appointments! I was popping immodium 2 0r 3 times a day. It was usually severe just the week after chemo when I'd have to go in for my blood tests. Then , while still bad, it was manageable the rest of the time.I never had to stop chemo for it though, so it may be a matter of which chemo cocktail you are on. I was on TAC. And it will stop when your chemo is over, so try to hang in there sister.
    Dee

    yes I am seriously
    yes I am seriously considering getting depends I wear pads now.
    this has been going on since I started chemo and its getting old. Its nice to know that it sorts out because I am afraid it wont after chemo. Its one day at a time. I get yelled at because i dont eat and drink prior to chemo on chemo day because it is a long drive and no where to stop on the highway. Ohhhhhh its so fun. donna it looks like you are on track with what you should do. I ope it clears up for us all.
  • carkris
    carkris Member Posts: 4,553 Member
    #14
    carkris said:

    yes I am seriously
    yes I am seriously considering getting depends I wear pads now.
    this has been going on since I started chemo and its getting old. Its nice to know that it sorts out because I am afraid it wont after chemo. Its one day at a time. I get yelled at because i dont eat and drink prior to chemo on chemo day because it is a long drive and no where to stop on the highway. Ohhhhhh its so fun. donna it looks like you are on track with what you should do. I ope it clears up for us all.

    ok guys I have had it, 6
    ok guys I have had it, 6 days of D not always alot but frequent, food intake going down, struggling to get the fluids in. I want to quit so bad I am gritting my teeth. Please tell me what I should be telling myself because I cant right now.
  • newbiefromcananda
    newbiefromcananda Member Posts: 234
    #15
    carkris said:

    ok guys I have had it, 6
    ok guys I have had it, 6 days of D not always alot but frequent, food intake going down, struggling to get the fluids in. I want to quit so bad I am gritting my teeth. Please tell me what I should be telling myself because I cant right now.

    i guess i was lucky I had it
    i guess i was lucky I had it too every day 4-5 times some days I finally took 2 immodium , then 1 more the next bowel movement and I ahve not had it for 3 days now..:) ate oatmeal with bananas in am, then toast , rice etc and my nurse suggessted powerade to put the electrolytes back into my system.....hope this helps...good luck...lisa
  • BlownAway60
    BlownAway60 Member Posts: 851
    #16
    carkris said:

    ok guys I have had it, 6
    ok guys I have had it, 6 days of D not always alot but frequent, food intake going down, struggling to get the fluids in. I want to quit so bad I am gritting my teeth. Please tell me what I should be telling myself because I cant right now.

    The only thing that has come close to working for me
    CarKris

    The only thing that has come close to working for me is Lomotal. The Onc has me taking 2 pills every 4 hours. It hasn't stopped the "D" but has slowed it down to where I only have it 2 to 3 times a day. I am trying to eat more normal food now and see how my system tollerates it.

    Sending hugs and prayers your way.

    Donna
  • Kristin N
    Kristin N Member Posts: 1,968 Member
    #17
    BlownAway60 said:

    The only thing that has come close to working for me
    CarKris

    The only thing that has come close to working for me is Lomotal. The Onc has me taking 2 pills every 4 hours. It hasn't stopped the "D" but has slowed it down to where I only have it 2 to 3 times a day. I am trying to eat more normal food now and see how my system tollerates it.

    Sending hugs and prayers your way.

    Donna

    I am
    praying that Big D goes away forever! Hang in there! Kristin ♥
  • carkris
    carkris Member Posts: 4,553 Member
    #18
    Kristin N said:

    I am
    praying that Big D goes away forever! Hang in there! Kristin ♥

    I would just like one day
    I would just like one day away from pooping. my rear is hurting. I never know what to eat anymore, seems the minute I eat then I have to go. then I dont want to eat. Is this what happens to you ? it is so frustrating. sometimes its not alot but my rear needs a rest!!!!!
  • carkris
    carkris Member Posts: 4,553 Member
    #19
    carkris said:

    I would just like one day
    I would just like one day away from pooping. my rear is hurting. I never know what to eat anymore, seems the minute I eat then I have to go. then I dont want to eat. Is this what happens to you ? it is so frustrating. sometimes its not alot but my rear needs a rest!!!!!

    went to a colorectal surgeon
    went to a colorectal surgeon today for a second opinion, she recommends surgery between chemo and rads. feels I will be in better shape and my onc would want me to finish chemo first. I n one way its good to get something definative in another its one more thing. One day a t a time.
  • carkris
    carkris Member Posts: 4,553 Member
    #20
    carkris said:

    I would just like one day
    I would just like one day away from pooping. my rear is hurting. I never know what to eat anymore, seems the minute I eat then I have to go. then I dont want to eat. Is this what happens to you ? it is so frustrating. sometimes its not alot but my rear needs a rest!!!!!

    went to a colorectal surgeon
    went to a colorectal surgeon today for a second opinion, she recommends surgery between chemo and rads. feels I will be in better shape and my onc would want me to finish chemo first. I n one way its good to get something definative in another its one more thing. One day a t a time.
  • fauxma
    fauxma Member Posts: 3,577 Member
    #21
    carkris said:

    went to a colorectal surgeon
    went to a colorectal surgeon today for a second opinion, she recommends surgery between chemo and rads. feels I will be in better shape and my onc would want me to finish chemo first. I n one way its good to get something definative in another its one more thing. One day a t a time.

    What type of surgery are you
    What type of surgery are you having? Is this for the fissure? I think I missed something. I know you were having horrible issues with the Big D but when did the colorectal surgeon come into play. I hope that all turns out well in the end (no pun intended). Good thoughts and prayers are beaming out to you.
    Stef

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