Vitamin D results

aurora2009
aurora2009 Member Posts: 544 Member
edited March 2014 in Breast Cancer #1
Because of all the great information I've read here, I thought it was important to have my vitamin D levels checked and just as I suspect mine were low. I encourge everyone to have there's checked as my doctor said new research it proving that there is a huge corrilation (sp?) between low vitamin D levels and breast cancer, while she didn't say it was a cause or could prevent future reoccurances, she did say that research is being done.

In my opinion, it seems so many of us are low, and that's got to mean something, so I'm now being told to take 1000mg a day and than we'll be checking my levels again in 3 months.

I just wanted to share and add another tool or question for you all to talk to your own doctors about, remember everyone is different and so are their doctors recommendations! :)

God Bless

Aurora

Comments

  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #2
    Thanks Aurora. It seems
    Thanks Aurora. It seems that most of us are low in Vitamin D. I try to get in the sun everyday and get mine if possible. So, LET THE SUNSHINE IN! lol

    Sue :)
  • aurora2009
    aurora2009 Member Posts: 544 Member
    #3
    Ritzy said:

    Thanks Aurora. It seems
    Thanks Aurora. It seems that most of us are low in Vitamin D. I try to get in the sun everyday and get mine if possible. So, LET THE SUNSHINE IN! lol

    Sue :)

    You know what Sue
    If you had asked me 6 months ago if I got enough sun for the vitamins D aspect I would of said yes. I mean I run the garden center at Walmart!

    I'm out in the sun every day plus I live in sunny San Diego, but after everything I read here, I stated getting curious, so I asked mt doctor to test me, and lo and behold, I am also low.

    What got me started wondering was a post I saw here some time back, that asked if others had been tested and what thier results were, and everyone who responded said theirs were low.

    I don't know what it means but something to think about foe sure.

    Aurora
  • roseann4
    roseann4 Member Posts: 992 Member
    #4
    aurora2009 said:

    You know what Sue
    If you had asked me 6 months ago if I got enough sun for the vitamins D aspect I would of said yes. I mean I run the garden center at Walmart!

    I'm out in the sun every day plus I live in sunny San Diego, but after everything I read here, I stated getting curious, so I asked mt doctor to test me, and lo and behold, I am also low.

    What got me started wondering was a post I saw here some time back, that asked if others had been tested and what thier results were, and everyone who responded said theirs were low.

    I don't know what it means but something to think about foe sure.

    Aurora

    I agree with you!
    Hi Aurora,

    I haven't had my D levels checked but I read lots about it and started taking it right away. I see my doc on Oct 31st and will ask for a test. From what I read, what I'm taking is safe for anyone (1000 units). He said there is not toxicity at 10,000 but I'll wait for the test as I don't think I'm THAT low. We'll see. One of my staff members had 2 children in 2 years. She was losing hair and having a difficult time with her skin and other issues. Her doc tested her and everything came out normal except her D levels which were 19. That is extrememly low. He told her 45 would be the goal. I told her that from my reading, 80 - 100 was actually normal. She went back and he checked the updated info and agreed. Good for the doc for checking but do we REALLY need to teach our doctors? The nutritional misinformation that many doctors have is sad. They are educated on a regular basis by the drug companies but I don't think anyone is keeping them up to date on nutritional issues. What were your levels?

    Roseann
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    #5
    My onc recommended that I
    My onc recommended that I take Vitamin D3 and Calcium. She said that the reason so many people are deficient nowadays is because so many people use lotions with sunscreens and/or sunscreen when they go out in the sun. I'm a little older than some of you, 55, so that may be the reason for the calcium too.
  • jikaras
    jikaras Member Posts: 58
    #6
    vit. D
    My sister, who has MS-went to her regular doctors appointment. They highly suggested that she start taking daily Vit. D. He then said, "we recommend it for MS patients and for breast cancer patients" - their siblings and children.

    I live in Wisconsin. He said that folks in the northern part of the hemisphere are not getting as much sun as folks in the southern portion. Having the vitamin D helps.

    When I discussed this with my plastic surgeon, she also had heard about the study and she had started taking hers. I went for my regular 6 month follow up with my regular doctor, and she had bloodwork run for cholestrol and threw in the vit. D check. I've been taking the vit. D since my mastecomy (January); and the tests found that my levels are great....

    Jill
  • m_azingrace
    m_azingrace Member Posts: 399
    #7
    jikaras said:

    vit. D
    My sister, who has MS-went to her regular doctors appointment. They highly suggested that she start taking daily Vit. D. He then said, "we recommend it for MS patients and for breast cancer patients" - their siblings and children.

    I live in Wisconsin. He said that folks in the northern part of the hemisphere are not getting as much sun as folks in the southern portion. Having the vitamin D helps.

    When I discussed this with my plastic surgeon, she also had heard about the study and she had started taking hers. I went for my regular 6 month follow up with my regular doctor, and she had bloodwork run for cholestrol and threw in the vit. D check. I've been taking the vit. D since my mastecomy (January); and the tests found that my levels are great....

    Jill

    Vitamin D
    My oncologist also recommended Vitamin D along with calcium, when he started me on Femara. I'll get my level checked when I see my PCP again. That will be fairly soon. Does anyone know if the chemo-drugs (oral or IV) cause vitamin D levels to be lower?
  • aurora2009
    aurora2009 Member Posts: 544 Member
    #8
    roseann4 said:

    I agree with you!
    Hi Aurora,

    I haven't had my D levels checked but I read lots about it and started taking it right away. I see my doc on Oct 31st and will ask for a test. From what I read, what I'm taking is safe for anyone (1000 units). He said there is not toxicity at 10,000 but I'll wait for the test as I don't think I'm THAT low. We'll see. One of my staff members had 2 children in 2 years. She was losing hair and having a difficult time with her skin and other issues. Her doc tested her and everything came out normal except her D levels which were 19. That is extrememly low. He told her 45 would be the goal. I told her that from my reading, 80 - 100 was actually normal. She went back and he checked the updated info and agreed. Good for the doc for checking but do we REALLY need to teach our doctors? The nutritional misinformation that many doctors have is sad. They are educated on a regular basis by the drug companies but I don't think anyone is keeping them up to date on nutritional issues. What were your levels?

    Roseann

    Roseann
    I got my results over the phone and if I remember right she said it was 21 and that I should be over 30 something, I'm seeing her this coming Wednesday so I'll go over it more when I see her.

    This time when I go I want to get a copy of all my test results and computations on reoccurance etc.

    I keep forgeting to do that, but she did say she to start taking 1000 units a day and that she would retest me in 3 months.
  • aurora2009
    aurora2009 Member Posts: 544 Member
    #9
    m_azingrace said:

    Vitamin D
    My oncologist also recommended Vitamin D along with calcium, when he started me on Femara. I'll get my level checked when I see my PCP again. That will be fairly soon. Does anyone know if the chemo-drugs (oral or IV) cause vitamin D levels to be lower?

    Grace
    I can't answer your question about the chemo drugs causing low vitamin D, thats something you have to ask you doctor.

    But what the studies are showing is a colilation between low vitamin D and breat cancer. Meaning that most weomen being Dx'd with BC are found to be low already.

    I think it's great that some of you have just started taking the vitamin on your own, but remember to always talk to and ask your doctor what they think, I just wanted to put another tool/question on your list.

    Aurora
  • roseann4
    roseann4 Member Posts: 992 Member
    #10
    aurora2009 said:

    You know what Sue
    If you had asked me 6 months ago if I got enough sun for the vitamins D aspect I would of said yes. I mean I run the garden center at Walmart!

    I'm out in the sun every day plus I live in sunny San Diego, but after everything I read here, I stated getting curious, so I asked mt doctor to test me, and lo and behold, I am also low.

    What got me started wondering was a post I saw here some time back, that asked if others had been tested and what thier results were, and everyone who responded said theirs were low.

    I don't know what it means but something to think about foe sure.

    Aurora

    I watched a recommended seminar on You Tube about Vit D
    I posted the link but I don't have it anymore. It was long but VERY infomative. The doctor was teaching other doctors about Vit. D. He also answered some of their questions. He had charts and studies and other convincing evidence. He is the one who set the levels I spoke of in my previous post. I will continue to look for it and post it if I find it.

    Roseann
  • aurora2009
    aurora2009 Member Posts: 544 Member
    #11
    roseann4 said:

    I watched a recommended seminar on You Tube about Vit D
    I posted the link but I don't have it anymore. It was long but VERY infomative. The doctor was teaching other doctors about Vit. D. He also answered some of their questions. He had charts and studies and other convincing evidence. He is the one who set the levels I spoke of in my previous post. I will continue to look for it and post it if I find it.

    Roseann

    Oh
    That would be great, I'll look for it too. I've been away so long, I must have missed the post. Sounds like great info, this is very interesting to me.

    Aurora
  • blazytracy
    blazytracy Member Posts: 157
    #12
    You are right!
    I have been taking the same dose for about 6 mos now since I was also low. My levels will be checked soon. Thanks Aurora!

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