Putting us on a map. And giving the stage you were diagnosed with as some are doing now.

24

Comments

  • kkstef
    kkstef Member Posts: 688 Member
    #22
    unknown said:

    This comment has been removed by the Moderator

    Additional info for the Map
    Sorry....I forgot to include diagnosis... SO...here is the info

    Currently reside in Overland Park, KS
    Grew up in North Dakota

    Diagnosed May 2008 with Grade ii/iii, Stage 3A Endometroid Adenocarcinoma.
    Had radiation (30 treatments) and then 5 rounds of Carbo/Taxol.

    Finished treatment Dec. 31, 2008.
  • kansasgal
    kansasgal Member Posts: 122 Member
    #23
    unknown said:

    This comment has been removed by the Moderator

    Additional info for map
    kansasgal
    Sally
    Wichita, Kansas - originally from SE Pennsylvania outside of Philadelphia

    Feb 2009 - annual PAP - suspicious for endometrioid adenocarcinoma
    March 2009 - D&C - endometroid adenocarcinoma grade 2
    April 2009 - open incision hysterectomy - removal of cervix, uterus, fallopian tubes, ovaries, 9 lymph nodes - no cancer cells detected in pelvic cavity wash

    Dx April 2009 (post-surgery staging) - stage 1b grade 2 endometrioid carcinoma.
    (Tx - no further treatment needed)

    Dx May 2009 (quality review staging) - ADDITIONALLY with stage 1a grade 3 UPSC.
    (Tx - 6 rounds carbo/taxol plus 3 rounds brachytherapy - so far chemo is 4 down, 2 to go; brachy is 2 down, 1 to go)
  • cathyK
    cathyK Member Posts: 93
    #24
    kansasgal said:

    Additional info for map
    kansasgal
    Sally
    Wichita, Kansas - originally from SE Pennsylvania outside of Philadelphia

    Feb 2009 - annual PAP - suspicious for endometrioid adenocarcinoma
    March 2009 - D&C - endometroid adenocarcinoma grade 2
    April 2009 - open incision hysterectomy - removal of cervix, uterus, fallopian tubes, ovaries, 9 lymph nodes - no cancer cells detected in pelvic cavity wash

    Dx April 2009 (post-surgery staging) - stage 1b grade 2 endometrioid carcinoma.
    (Tx - no further treatment needed)

    Dx May 2009 (quality review staging) - ADDITIONALLY with stage 1a grade 3 UPSC.
    (Tx - 6 rounds carbo/taxol plus 3 rounds brachytherapy - so far chemo is 4 down, 2 to go; brachy is 2 down, 1 to go)

    Additional info for map
    houghton lake mi

    got stage 4 grade 3 endometrial cancer
    May pap
    June biopsy was told I had cervical cancer need a d and c
    july second opinion was diagnosed with uterin cancer
    july historectomy was told I had endometrial cancer
    treatment cislplatin, adriamycin, taxol . every 21 days 6 treatments, just past #3
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #25
    cathyK said:

    Additional info for map
    houghton lake mi

    got stage 4 grade 3 endometrial cancer
    May pap
    June biopsy was told I had cervical cancer need a d and c
    july second opinion was diagnosed with uterin cancer
    july historectomy was told I had endometrial cancer
    treatment cislplatin, adriamycin, taxol . every 21 days 6 treatments, just past #3

    map
    stage 3a UPSC diagnosed 9/08 at age 61. Treatment - surgery, 6 rounds carboplatin/taxol, in surveillance since Feb 09.

    Lived in upstate NY -Rochester & Finger Lakes until 1994. Now in SW Florida.
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #26
    Gunhild said:

    On the map
    Gunhild
    Finger Lakes Region - NYS

    finger lakes
    Gunhild, I lived in Geneva for 22 years before moving to FL in 1994. Beautiful area.
    Mary Ann
  • lindaprocopio
    lindaprocopio Member Posts: 1,980 Member
    #27
    daisy366 said:

    map
    stage 3a UPSC diagnosed 9/08 at age 61. Treatment - surgery, 6 rounds carboplatin/taxol, in surveillance since Feb 09.

    Lived in upstate NY -Rochester & Finger Lakes until 1994. Now in SW Florida.

    central Pennsylvania, Stage III-c
    July 2008: 'highly suspicious' PAP test results
    Aug 2008: numerous inconclusive biopsies, & inconclusive D&C. referred to gyn-onc.
    Sept. 2008: gyn-onc does more biopsies and diagnosis UPSC from last month's D&C slides
    Oct. 10, 2008: optimal de-bulking hysterectomy & staging surgery: pathology: UPSC Stage 3-c (microscopic UPSC cells found in 1 of 25 lymph nodes sampled & in 'wash', and had travelled into 1 fallopian tube prior to surgery.)
    Nov. 10, 2008 to March 26, 2009: 6 rounds of carbo taxol chemo (complications included 3 blood transfusions and 3 delays in getting chemo due to low platelets & anemia.)
    May & June 2009, treatment ending 7/01/09: 28 rounds external pelvic IMRT & 3 vaginal brachys (no complications other than diahrea during the external rads.)

    Currently in remission with a NED CT-scan and CA-125 of 26 as of August 2009. Only on-going treatment: vaginal dilator daily plus calcium and multi-vitamin daily.)

    I live in central Pennsylvania in a rural area outside Shamokin.

    Surgery at Hershey Medical Center, Hershey, PA
    Chemo & radiation & all monitoring at Geisinger Medical Center, Danville, PA
  • Reddie
    Reddie Member Posts: 72
    #28
    lindaprocopio said:

    central Pennsylvania, Stage III-c
    July 2008: 'highly suspicious' PAP test results
    Aug 2008: numerous inconclusive biopsies, & inconclusive D&C. referred to gyn-onc.
    Sept. 2008: gyn-onc does more biopsies and diagnosis UPSC from last month's D&C slides
    Oct. 10, 2008: optimal de-bulking hysterectomy & staging surgery: pathology: UPSC Stage 3-c (microscopic UPSC cells found in 1 of 25 lymph nodes sampled & in 'wash', and had travelled into 1 fallopian tube prior to surgery.)
    Nov. 10, 2008 to March 26, 2009: 6 rounds of carbo taxol chemo (complications included 3 blood transfusions and 3 delays in getting chemo due to low platelets & anemia.)
    May & June 2009, treatment ending 7/01/09: 28 rounds external pelvic IMRT & 3 vaginal brachys (no complications other than diahrea during the external rads.)

    Currently in remission with a NED CT-scan and CA-125 of 26 as of August 2009. Only on-going treatment: vaginal dilator daily plus calcium and multi-vitamin daily.)

    I live in central Pennsylvania in a rural area outside Shamokin.

    Surgery at Hershey Medical Center, Hershey, PA
    Chemo & radiation & all monitoring at Geisinger Medical Center, Danville, PA

    On the Map
    Reddie
    March 09' diagnosis endometrical cancer
    May 4th total hysterectomy and removed 32 lymph nodes
    June 26th first round of chemo then stopped

    I have stage IIIc grade 2

    Now I'm on antibiotics for stomach infection but no tx

    born and raised in central coast Calif. but live near Philadelphia, PA.
  • Kris Ann
    Kris Ann Member Posts: 26
    #29
    Kris Ann said:

    My mom has uspc stage 4..
    My mom has uspc stage 4.. she goes to dana=farber for treatment.. are you familiar with that place?

    My mom has stage 4
    My mom has stage 4 uspc/clear cell.

    Treated at Dana-Farber in Boston.

    From Sturbridge MA.
  • nursey420
    nursey420 Member Posts: 52 Member
    #30
    The MAP
    Oakdale MN grow up in small town south of Pgh PA.
    Stage 2b endometral dignosis 1/09 DeVinic robot surgery 2/09
    25 IMRT treatment 4 HDR treaments
    just had 6 month check up waiting for results
    Lisa
  • barb55
    barb55 Member Posts: 91
    #31
    nursey420 said:

    The MAP
    Oakdale MN grow up in small town south of Pgh PA.
    Stage 2b endometral dignosis 1/09 DeVinic robot surgery 2/09
    25 IMRT treatment 4 HDR treaments
    just had 6 month check up waiting for results
    Lisa

    The Map
    I live in Pawtucket, Rhode Island
    Stage 3C Uterine Papillary serous carcinoma
    Treated (surgery, chemo, radiation) at Beth Israel Hospital, Boston
    2 years NED!
    Barbara
  • california_artist
    california_artist Member Posts: 816 Member
    #32
    2 years cancer free
    Don't we just LOVE TO HEAR FROM WOMEN LIKE YOU. GIVE US ALL HOPE. THANK YOU VERY MUCH FOR SHARING, AND LOOKING TO WONDERFULLY HEALTHY.

    LOVE, HOPE, HEALTH, SUCCESS AND FANTASTIC JOY TO US ALL
  • susie1143
    susie1143 Member Posts: 105
    #33
    california_artist said:

    2 years cancer free
    Don't we just LOVE TO HEAR FROM WOMEN LIKE YOU. GIVE US ALL HOPE. THANK YOU VERY MUCH FOR SHARING, AND LOOKING TO WONDERFULLY HEALTHY.

    LOVE, HOPE, HEALTH, SUCCESS AND FANTASTIC JOY TO US ALL

    Diagnosed July
    I live in Holiday, FL (near Tampa Bay). I grew up in New Jersey.

    First pathology report was Grade 3 cell in July 09.

    After surgery (Robotics on Aug 26th), Stage 1C, Grade 2 Cell. At this time no further treatment. (I am in process of getting 2nd opinion)

    Susie
  • california_artist
    california_artist Member Posts: 816 Member
    #34
    susie1143 said:

    Diagnosed July
    I live in Holiday, FL (near Tampa Bay). I grew up in New Jersey.

    First pathology report was Grade 3 cell in July 09.

    After surgery (Robotics on Aug 26th), Stage 1C, Grade 2 Cell. At this time no further treatment. (I am in process of getting 2nd opinion)

    Susie

    susie
    Regarding your stage and grade. While I understand Stage lC, could you say if its uterine papillary serous, clear cell or the usual aden something or another. I think you mean clear cell grade 2, but am not sure.

    Where in New Jersey? and do you have the wonderful accent that just brings tears to my eyes whenever I hear it. I lived in Leonia and then on the Island as well as a peach farm in New Jersey.

    Second opinion sounds like an absolute necessity.

    Good Luck and love,

    claudia
  • shortmarge
    shortmarge Member Posts: 291
    #35
    Gunhild said:

    On the map
    Gunhild
    Finger Lakes Region - NYS

    On The Map
    shortmarge
    Charlotte, NC

    Stage IIA
    uterine papillary serous found in biopsy before surgery not afterwards
    clear cell found after surgery
  • susie1143
    susie1143 Member Posts: 105
    #36
    california_artist said:

    susie
    Regarding your stage and grade. While I understand Stage lC, could you say if its uterine papillary serous, clear cell or the usual aden something or another. I think you mean clear cell grade 2, but am not sure.

    Where in New Jersey? and do you have the wonderful accent that just brings tears to my eyes whenever I hear it. I lived in Leonia and then on the Island as well as a peach farm in New Jersey.

    Second opinion sounds like an absolute necessity.

    Good Luck and love,

    claudia

    Second Opinion
    Hi Claudia:
    I grew up in Pequannock, NJ which is northern NJ about 45 minutes from New York City. During college I went to Springfield, MA and got married and came back to NJ. We lived in Sussex County for a long time. For those who don't know much about NJ, it not just cities but has a lot of farming areas. Once the kids graduated, we came down to Florida for the sunshine. I still have my NJ accent with a touche of southern. A few words will always be NJ such as water.

    As far as Grade 2, I'm being told that it's not mixed or clear cell but Endometrial Endometrioid Adenocarcinoma. My first path report was Grade 3, Endometrial Adenocarcinoma, mixed serous and endometriod type. The gyn/onc said prior to the surgery that sometimes the first pathology report (during the D&C) is not always correct. He did think mine was a Grade 3 and was surprised that it came back a Grade 2. Has anyone else had this happen?

    I'm in the process of going to a cancer center in Orlando, FL.

    Susie
  • shortmarge
    shortmarge Member Posts: 291
    #37
    susie1143 said:

    Second Opinion
    Hi Claudia:
    I grew up in Pequannock, NJ which is northern NJ about 45 minutes from New York City. During college I went to Springfield, MA and got married and came back to NJ. We lived in Sussex County for a long time. For those who don't know much about NJ, it not just cities but has a lot of farming areas. Once the kids graduated, we came down to Florida for the sunshine. I still have my NJ accent with a touche of southern. A few words will always be NJ such as water.

    As far as Grade 2, I'm being told that it's not mixed or clear cell but Endometrial Endometrioid Adenocarcinoma. My first path report was Grade 3, Endometrial Adenocarcinoma, mixed serous and endometriod type. The gyn/onc said prior to the surgery that sometimes the first pathology report (during the D&C) is not always correct. He did think mine was a Grade 3 and was surprised that it came back a Grade 2. Has anyone else had this happen?

    I'm in the process of going to a cancer center in Orlando, FL.

    Susie

    Jersey Girl
    I too grew up in NJ. Robbinsville (central Jersey) just outside of Trenton. Exit 7A hahahaha! I know Pequannock, I have family in Pompton Plains.
  • Teresa 61
    Teresa 61 Member Posts: 84 Member
    #38
    fuzzytrouble said:

    The Map
    Fuzzytrouble- Hillsboro Oregon Right outside the Portland area grew up in Cambridge Ma.

    The Map
    Teresa
    Fontana, California
    Stage 2A endometrial serous/high grade
    Diagnosed Dec.22,2008
  • Unknown
    Unknown
    #39
    california_artist said:

    The Map
    maryln3--Philadelphia area

    This comment has been removed by the Moderator
  • cleo
    cleo Member Posts: 144
    #40
    shortmarge said:

    Jersey Girl
    I too grew up in NJ. Robbinsville (central Jersey) just outside of Trenton. Exit 7A hahahaha! I know Pequannock, I have family in Pompton Plains.

    On the map
    Ngunguru, Whangarei, NZ. Most appreciative of this informative site.

    Stage 3/4 carcino/sarcoma of endrometrium with pelvic and para-aortic lymph nodes and left VUJ bladder metastates. Just received unchanged scan...two years and dancing!
    Celia
  • california_artist
    california_artist Member Posts: 816 Member
    #41
    Celia what great news!
    People are always looking for good news. I am going to post is as a thread so everyone can be happier with the hope this brings to all of us out here.

    Claudia

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