One week since diagnosis
Well it has been one week since my diagnosis and I have gotten a lot done. Last week I went saw the surgeon again, the radiologist as well as a plastic surgeon. I decided that I really felt uncomfortable with both surgeons. I was fortunate to have a friend to contact a friend who is a DR here in Raleigh and she got a referral for me to where that Dr would take his wife. I have appointment with the new surgeon, a new plastic surgeon as well as the oncologist this week. Next week I also have a marathon of appointments at Duke. I feel like I am making good progress so far.
Tomorrow I have my PET scan and an MRI on Friday. So far the surgeon and radiologist can't feel any lymph involvement, but we wont know for sure until the surgery. I have had an ache in my thigh on and off for the last couple of months. I should also add that I threw my knee out on that side before my thigh started bothering me. I am trying so hard no to panic, but I am so afraid this stuff has gotten into my bones. I plan on telling the oncologist Wednesday to get his take on what that pain might be from. I supposed I am just nervous because we just don't know the full extent of everything yet. Once we do and formulate an action plan, I think I will be fine as we can just go forward.
Thanks for letting me vent....
-Carolyn
Comments
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Hi Carolyn
Just wanted to welcome you to the boards...Sounds like you have been busy with appointments. I remember that this phase you are in was the worst for me because everything was unknown and no decisions have been made. Every ache or pain seemed like it was related to the beast. Remember, everyone gets aches and pains and it has nothing to do with the beast its just aches and pains.
Try not to panic too much and let us know how you are doing
Hugs
Linda T0 -
Hi Carolyn, Just to let youchickad52 said:Carolyn
Waiting is the hardest part of this whole thing!! Good luck with your scan. You will be in my prayers. Hugs, Diane
Hi Carolyn, Just to let you know we all panic, every pain, every ache, turns into panic. I think this may be with us for the rest of our lives. I was dx last April. I have had surgery,and am now doing Chemo and the will have to do Rads. All the test and everything they do there is a wait and its very hard to wait. I wish you the best and Pray for you as well. Good luck0 -
Good luck Carolyn with allchickad52 said:Carolyn
Waiting is the hardest part of this whole thing!! Good luck with your scan. You will be in my prayers. Hugs, Diane
Good luck Carolyn with all of your tests. Let us know!
Hugs!0 -
Hi, Carolyn
I too remember the beginning stages of this journey. The waiting and unknown was quite unbearable at times. My mind would go to places I really didn't want to be. Just take it one day at a time and see all your doctors and come up with a treatment plan based on facts. Then, the journey through that phase begins and eventually we come out on the other side. I'm still in the journey phase (chemo) right now but truly looking forward to the other side. Take care and I'll be thinking of you.0 -
Good luck Carolyn. Be sureMyTurnNow said:Hi, Carolyn
I too remember the beginning stages of this journey. The waiting and unknown was quite unbearable at times. My mind would go to places I really didn't want to be. Just take it one day at a time and see all your doctors and come up with a treatment plan based on facts. Then, the journey through that phase begins and eventually we come out on the other side. I'm still in the journey phase (chemo) right now but truly looking forward to the other side. Take care and I'll be thinking of you.
Good luck Carolyn. Be sure and post and let us know how what your tests show.
Lex♥0 -
You did the right thing
Carolyn:
Comfort level with doctors, onc and surgeron's is top on my list. I am so sorry for your thigh pain.
getting formula's and plan of action will help you sleep a bit.
Wishing you the best on Wednesday, ask as many questions as possible.
Good luck,
VickiSam0 -
CarolynVickiSam said:You did the right thing
Carolyn:
Comfort level with doctors, onc and surgeron's is top on my list. I am so sorry for your thigh pain.
getting formula's and plan of action will help you sleep a bit.
Wishing you the best on Wednesday, ask as many questions as possible.
Good luck,
VickiSam
First i want to welcome you to this site. Good for you for sticking to your feelings and finding a different doc. Its important to like them and feel comfortable with them. When we have to wait for tests, appt ect it is so aggravating and depressing. You just want to get things rolling and you cant, its like your lifes on hold. Thats how i felt anyway. I had a double mastectomy with tissue expanders placed at same time and am now on chemo. It felt like forever getting that far, but now im here and its never ending. I know exactly how you feel when you think you are being paranoid. I feel the same way. Every knot or pain i have i think its something related to cancer. I havent had any tests like a pet scan or mri or anything else though, but plan to ask my onc about a pet scan next appt. Things will move along for you soon. I will have you in my thoughts and pray for you. Keep us posted and welcome again. Take care
laura0 -
Welcome and Hi Carolyn.Tux said:Welcome, Carolyn. Sounds
Welcome, Carolyn. Sounds like you have been very busy. Also sounds like you are making some good decisions. Let us know what happens...
Hugs & prayers sent your way...
Welcome and Hi Carolyn. Post and inform us of what your tests show.
♥ Kylez ♥0 -
Carolyn--WelcomeKylez said:Welcome and Hi Carolyn.
Welcome and Hi Carolyn. Post and inform us of what your tests show.
♥ Kylez ♥
Welcome to this wonderful site.
Hugs,
Margo0
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