Can we do a ROLL CALL with everyone posting their name, cancer diagnosis, & where they are in treatm

danielleambr said:

just got the word
I am not sure if I am replying to this right.. My name is Danielle I am a 30 year old single mother of four. I was diagnosed with uterine cancer and will have a hystrectomy (if i spelled it right) august 4th

bonniesue said:

again concerns over my mom- nurse lisa and those with this
I know you have responded in the past, but I am still anxious and I think you have about the same as my mom--Grade 1 stage 1C or 2B depending on which path report I look at and plus or minus lymphovascular invasion. Neg pelvic nodes and washings but only six pelvic lymph nodes taken. My concern is still that some are recommending just brachtherapy and some both. One plan was 27 txs of IMRT and two brachy so 4800 dose of rad plus brachy to add to 6000 as I understood it. My mom has started with this but I again am worried she will have bad complications like fistulas or small bowel problems and even though she is otherwise healthy(still working) very social she is 71 yo. These different recommendations come even as a difference within the rad. oncs and even between gyne oncs. I do not want a complication nor recurrence but it sounds like pelvic rad can give up to 5-15% complication rate. any advice?? my mom will be compliant and just feels frustrated and worried which is not helping her recovery and she was up post op day 1 and home after the robotic-- told all was well and then got the news two weeks later that the path report was more invasive which caused a frenzy of us getting other thoughts and opinions which takes a lot of time which cuts into your treatment and makes you jump to a decision. thanks bonnie

kkstef said:

So glad you connected....
Danielle

Am so sorry to hear about your diagnosis. Know you have a full plate with also having 4 children to care for. Am so glad you connected with this site. There are so many knowledgeable and caring women who are here to share info and support each other. Ask lots of questions. Are you having a gyn oncologist do your surgery?

Best to you! Karen

danielleambr said:

my Gyn is doing the surgery.
my Gyn is doing the surgery. I really trust her she delivered two of my children and one of those was by an emergancy c- cection and My son and I turned out fine then..She wanted to try to preform the surgery vaginaly but a friend of mine who is a gyn doc said she should just go through the c-cection scar to avoid any complications. I also know that on august 4th i will be on my period and I am such a heavy bleeder ( which started the symptoms) and have become anemic because of the heavy bleeding for a year and that scares me alot getting this done. I will be seeing an oncologist afterwords to make sure that they did get everything since it only seems to be in the lining of the uterus. I will see her the 27th for pre op but not sure what questions i need to ask since this is all so much. I am scared of surgery in general I guess the whole thing of dying while being but to sleep and not knowing anyone who has been through this. As for the treatment afterwords I am not worried I can get through that whatever it may end up being. thanks for replying to me it does make me feel better talking to those who have been through this

daisy366 said:

Kathy,
I worked during my
Kathy,

I worked during my chemo and hated wearing a wig. I advise that you ask your oncologist about working in the setting you describe. Mine said "good" when I told him I was working - I'm a clinical social worker - I probably was not as exposed as you to the general public. I think we need to be practical but not paranoid or else we will make ourselves sick emotionally. I ditched the wig and went to work and everywhere else BALD. It eventually was "normal". I wish you the best with your treatment. Hang in there and be strong. You will do fine.

Mary Ann

JENILENE said:

thanks for the help
thanks for responding and for your help. i heard rad is worse than chemo, and watched my grandmother struggle with her uterine cancer and continuous chemo treatments, so im kind of scared of how bad it really will be. i guess im really struggling with the fact that im going thru all this. its hard to talk to my fiancee or family about this. i feel like theyre being burdened. and the truth is, i think i'm taking this so hard because ive been isolating myself from everyone, trying to spare them and yet,trying not to feel so alone. i guess i just want everyone to come around and say that they are in it with me and not going anywhere, as opposed to the "if i dont see it it isnt really there" attitude people in south texas have, and my family especially. i tried to find support groups in my area and only found one. It was sponsored by a local hospital, but it was like going to a seminar on breast cancer awareness, which is okay but not what i need. im just tired from what i thought was 6 months of worry and doctors, but now seems never ending. is it just me and my bad coping skills that is making it this hard, or is it like this for everyone? i feel so overwhelmed lately, worrying about my little boy and his future, about what this is doing to my parents, about my siblings and about being too tired or in too much pain to have a normal life with my fiancee. i see everyone frustrated with me not being myself, but its like im not allowed to tell them im scared or anything, because thats just being negative or feeling sorry for myself. i guess my question is.... how long am i expected to be in treatments, until i can say im cancer free? did you go thru this for years or is it more recent? do you have a strong support system? are their resources for emotional support? am i just going insane and handling the whole thing really wrong? thanks for letting me vent and for replying yesterday. it helps to not feel so alone. all my love . . . jen

Gunhild said:

Not sure how to post
Am doing a reply because I'm not sure how to post to the board. I was diagnosed with papillary serous adenocarcinoma of the uterus in April. Had the usual total surgery by a gyn oncologist. First I developed hematomas under the incision and had to have two sets of sutures removed the second day post op. This had to heal from the inside out so had a wound vac for a while. Then developed a MRSA urinary tract infection. Went home for four days and developed sterile pelvic abcesses. Back in the hospital for drainage. Was there for two more weeks. Lots of antibiotics later, one of the abdominal wounds has developed a tunnel. I pack this every day. Now I have had my first carbo/taxol treatment. Lots of joint pain after. Am also having five weeks of radiation five days per week starting next Monday. Then two sessions of brachytherapy. The cancer had extended almiost through the uterine wall. I am grateful for this board. It is good to know one is not alone.

Gunhild said:

Not sure how to post
Am doing a reply because I'm not sure how to post to the board. I was diagnosed with papillary serous adenocarcinoma of the uterus in April. Had the usual total surgery by a gyn oncologist. First I developed hematomas under the incision and had to have two sets of sutures removed the second day post op. This had to heal from the inside out so had a wound vac for a while. Then developed a MRSA urinary tract infection. Went home for four days and developed sterile pelvic abcesses. Back in the hospital for drainage. Was there for two more weeks. Lots of antibiotics later, one of the abdominal wounds has developed a tunnel. I pack this every day. Now I have had my first carbo/taxol treatment. Lots of joint pain after. Am also having five weeks of radiation five days per week starting next Monday. Then two sessions of brachytherapy. The cancer had extended almiost through the uterine wall. I am grateful for this board. It is good to know one is not alone.

Gunhild said:

Not sure how to post
Am doing a reply because I'm not sure how to post to the board. I was diagnosed with papillary serous adenocarcinoma of the uterus in April. Had the usual total surgery by a gyn oncologist. First I developed hematomas under the incision and had to have two sets of sutures removed the second day post op. This had to heal from the inside out so had a wound vac for a while. Then developed a MRSA urinary tract infection. Went home for four days and developed sterile pelvic abcesses. Back in the hospital for drainage. Was there for two more weeks. Lots of antibiotics later, one of the abdominal wounds has developed a tunnel. I pack this every day. Now I have had my first carbo/taxol treatment. Lots of joint pain after. Am also having five weeks of radiation five days per week starting next Monday. Then two sessions of brachytherapy. The cancer had extended almiost through the uterine wall. I am grateful for this board. It is good to know one is not alone.