Can we do a ROLL CALL with everyone posting their name, cancer diagnosis, & where they are in treatm

1568101121

Comments

  • Katrinka123
    Katrinka123 Member Posts: 51
    cathyK said:

    Can we do a ROLL CALL with everyone posting their name,
    hello all
    I am new here, got diagnosed with cervical cancer and was due to have a D and C, the week after this I could not get a hold of the doctor, so got worried and had a second opinion, this time it was worse, the specialist said I had uterine cancer and had to have a total hysterectomy june 15. after the operation was told I have endometrial cancer stage 4 b, and he added that this was the worst he had seen in a while, and survival rate is only 1 to 2 years with chemo. I dont like this diagnosis of course and this has shocked me as I have been a very healthy person.
    after my first chemo treatment july 13th 14th I am feeling healthy with very few side effects. the worst was the white blood cell shot, got very tired and very sore.
    I have been looking for anyone with similar diagnosis who has a success story, and have found none. I am worried about what is coming up. I am on a 21 day chemo schedule, was told over and over again to cut my waist length hair and finally did. it is still intact. wondering if I am just lucky with no side effects or it will get worse after each chemo?
    any help out there?

    Hi Cathy! I'm sorry you have
    Hi Cathy! I'm sorry you have had to join us here, but I am glad to hear you are doing well after your first chemo treatment. It sounds like I had a different course of chemo than you are having, so I can't quite comment on your side effects, perhaps someone else here can be more helpful.

    I don't like that you were given survival "dates" - I think there is so much that is individual with cancer and treatments, I just don't believe in that.

    Stay strong and I hope you continue to do well with your treatments!

    -Kat
  • daisy366
    daisy366 Member Posts: 1,458 Member
    cathyK said:

    Can we do a ROLL CALL with everyone posting their name,
    hello all
    I am new here, got diagnosed with cervical cancer and was due to have a D and C, the week after this I could not get a hold of the doctor, so got worried and had a second opinion, this time it was worse, the specialist said I had uterine cancer and had to have a total hysterectomy june 15. after the operation was told I have endometrial cancer stage 4 b, and he added that this was the worst he had seen in a while, and survival rate is only 1 to 2 years with chemo. I dont like this diagnosis of course and this has shocked me as I have been a very healthy person.
    after my first chemo treatment july 13th 14th I am feeling healthy with very few side effects. the worst was the white blood cell shot, got very tired and very sore.
    I have been looking for anyone with similar diagnosis who has a success story, and have found none. I am worried about what is coming up. I am on a 21 day chemo schedule, was told over and over again to cut my waist length hair and finally did. it is still intact. wondering if I am just lucky with no side effects or it will get worse after each chemo?
    any help out there?

    Cathy
    Sorry to hear your story. Do you have a gynecological oncologist? If not, this is the best specialist to have.

    I am not an expert in any of this, but am continuing to learn. At first I was blissfully ignorant - fully trusting my doctor. I think doctors would prefer us to be quietly accepting of their recommendations. But I'm glad I have and continue to learn about my cancer and treatment and have started to ask questions and obtain answers. This discussion board has been very helpful.

    I have stage 3a uterine papillary serous carcinoma (UPSC for short)- diagnosed last Sept. It is rare and aggressive and highly recurrent. My regime was 6 rounds of taxol and carboplatin which I finished in Feb. I had few side effects and handled treatment well. My hair started falling out at the 2 week mark (right on schedule). I finally shaved my head - it was less depressing for me than looking at the few strands that remained.

    Are they checking and monitoring your CA125 (an ovarian cancer marker that is also used for some uterine cancers like mine)? I also recommend you get COPIES of all your medical records now and along the way. You may need this for second opinions, fighting insurance companies (like I've had to do), and for your own knowledge and tracking of your progress. Also check the NCCN guidelines for treatment guidelines. See if functional profile, oncogene, and hormone testing was done on your cancerous tissue. You may be eligible for a clinical trial. ASK LOTS OF QUESTIONS.

    I recommend you read O. Carl Simonton's "Getting Well Again". This will give you HOPE that you can be cured and/or get in remission. Stay positive and strong. Your mind is so powerful. And remember that new treatments are being developed to give all of us better odds.

    Best wishes. Keep us posted. Prayers are being sent to you.

    Mary Ann
  • cathyK
    cathyK Member Posts: 93
    daisy366 said:

    Cathy
    Sorry to hear your story. Do you have a gynecological oncologist? If not, this is the best specialist to have.

    I am not an expert in any of this, but am continuing to learn. At first I was blissfully ignorant - fully trusting my doctor. I think doctors would prefer us to be quietly accepting of their recommendations. But I'm glad I have and continue to learn about my cancer and treatment and have started to ask questions and obtain answers. This discussion board has been very helpful.

    I have stage 3a uterine papillary serous carcinoma (UPSC for short)- diagnosed last Sept. It is rare and aggressive and highly recurrent. My regime was 6 rounds of taxol and carboplatin which I finished in Feb. I had few side effects and handled treatment well. My hair started falling out at the 2 week mark (right on schedule). I finally shaved my head - it was less depressing for me than looking at the few strands that remained.

    Are they checking and monitoring your CA125 (an ovarian cancer marker that is also used for some uterine cancers like mine)? I also recommend you get COPIES of all your medical records now and along the way. You may need this for second opinions, fighting insurance companies (like I've had to do), and for your own knowledge and tracking of your progress. Also check the NCCN guidelines for treatment guidelines. See if functional profile, oncogene, and hormone testing was done on your cancerous tissue. You may be eligible for a clinical trial. ASK LOTS OF QUESTIONS.

    I recommend you read O. Carl Simonton's "Getting Well Again". This will give you HOPE that you can be cured and/or get in remission. Stay positive and strong. Your mind is so powerful. And remember that new treatments are being developed to give all of us better odds.

    Best wishes. Keep us posted. Prayers are being sent to you.

    Mary Ann

    mary ann
    I am getting day 1 Cisplatin day 2 Taxol and the third day white blood cell shot.
    my doc is a gynecological oncologist and very obnoxious, he has to always be right. started with infection in my staples, urgent care doc said WOW that must hurt! and gave me antibiotics, seen my doc the next day and he said , "that is not infected, that doc doesnt know what he is talking about" so I said well I guess I should stop taking the antibiotics!? , well no was his answer.
    that is the smallest problem, problem 2 I am on medicaid , this is good in some respects that I am not worrying about bills so far. bad thing, I am not sure what is or is not prescribed due to the "rules" medicaid has, like generic for everything.
    not sure what the ca125 is, the doc has a nurse that does EVERYTHING except operate and exams, she says there is no way to know if the chemo is working for quite a while. I am not accepting that. but again all I have to deal with is the doc and nurse, I do have the chemo nurses but they are just nurses. so not many to discuss this. the doc does not want to talk to me, I have to pry everything out of him and it is usually tecnical jargon I can not understand. I have a check up with him next week. any questions I should ask. or try to ask?
  • cathyK said:

    mary ann
    I am getting day 1 Cisplatin day 2 Taxol and the third day white blood cell shot.
    my doc is a gynecological oncologist and very obnoxious, he has to always be right. started with infection in my staples, urgent care doc said WOW that must hurt! and gave me antibiotics, seen my doc the next day and he said , "that is not infected, that doc doesnt know what he is talking about" so I said well I guess I should stop taking the antibiotics!? , well no was his answer.
    that is the smallest problem, problem 2 I am on medicaid , this is good in some respects that I am not worrying about bills so far. bad thing, I am not sure what is or is not prescribed due to the "rules" medicaid has, like generic for everything.
    not sure what the ca125 is, the doc has a nurse that does EVERYTHING except operate and exams, she says there is no way to know if the chemo is working for quite a while. I am not accepting that. but again all I have to deal with is the doc and nurse, I do have the chemo nurses but they are just nurses. so not many to discuss this. the doc does not want to talk to me, I have to pry everything out of him and it is usually tecnical jargon I can not understand. I have a check up with him next week. any questions I should ask. or try to ask?

    This comment has been removed by the Moderator
  • kkstef
    kkstef Member Posts: 688
    unknown said:

    This comment has been removed by the Moderator

    Patricia

    I know it is frightening to read about all of the "possible" side effects, but everyone reacts differently. I had very few side effects.... (I had taxol and carbo after I completed radiation.) The gyn onc. told me that I would have more difficulty keeping my counts good since it was following radiation, which can do a number on the bone marrow.I had virtually no nausea and absolutely NO vomiting. I did feel a little "quesey" a few times. Yes, I lost my hair and that was hard for me, but it is growing back in. Mostly what I felt was fatigue....just not much zip. About day 5 I was pretty much back to normal, except when my hemoglobin got too low...then I was REALLY tired. A couple of units of packed cells later and I was good to go! I did have a few treatments delayed as my white count and/or platelets were too low. I did take Neulasta shots 24 hours after each chemo treatment but I had very little bone pain and that was gone in 24-48 hours. My biggest issue has been numb and/or painful toes....But overall, in one's fight to cure this nasty stuff, it has been a very small price to pay.

    Please don't give up! Keep asking lots of questions.

    You can do it!!
    Karen
  • maryln3
    maryln3 Member Posts: 62
    cathyK said:

    mary ann
    I am getting day 1 Cisplatin day 2 Taxol and the third day white blood cell shot.
    my doc is a gynecological oncologist and very obnoxious, he has to always be right. started with infection in my staples, urgent care doc said WOW that must hurt! and gave me antibiotics, seen my doc the next day and he said , "that is not infected, that doc doesnt know what he is talking about" so I said well I guess I should stop taking the antibiotics!? , well no was his answer.
    that is the smallest problem, problem 2 I am on medicaid , this is good in some respects that I am not worrying about bills so far. bad thing, I am not sure what is or is not prescribed due to the "rules" medicaid has, like generic for everything.
    not sure what the ca125 is, the doc has a nurse that does EVERYTHING except operate and exams, she says there is no way to know if the chemo is working for quite a while. I am not accepting that. but again all I have to deal with is the doc and nurse, I do have the chemo nurses but they are just nurses. so not many to discuss this. the doc does not want to talk to me, I have to pry everything out of him and it is usually tecnical jargon I can not understand. I have a check up with him next week. any questions I should ask. or try to ask?

    ca125
    you can goggle anything you want to know about

    i am like you ...i know no one who had cancer or has cancer...i depend on blogs like this

    i belong to another blog email me at [email protected] i will send you all the research you need on stage 4....i have stage 1c with a agressive tumor....my doctor
    never did a lymoph node biosy so i am haveing another surgery with another surgeon on 8/6/09...

    when i get your email i will help you
  • daisy366
    daisy366 Member Posts: 1,458 Member
    unknown said:

    This comment has been removed by the Moderator

    Patricia, I'll try to
    Patricia, I'll try to answer the best I can.

    According to the NCCN Guidelines (which my GYN/ONC group uses), after surgical debulking adjuvant treatment is decided by the patient's STAGE. Chemo is a primary treatment for UPSC - papillary serous carcinoma. I didn't question whether to have this or not. EVERYTHING has side effects and I guess we just weigh the pros and cons. My head spins just reading the inserts for prescriptions. I also had fatigue and some neurapathy. I still have some in my toes after 5 months but it is getting better with time.

    Radiation is another adjuvant treatment and there are side effects with this. I have stage 3a UPSC and my doctor in so many words thinks the benefits do not outweigh the risks FOR ME. He thinks that I have very good odds NOT to have a recurrence and if I do have one in the vaginal cuff he said he has a 90% cure rate for this. He is very well respected in the field so I am going with his thinking. I think we all need to make these decisions with the best info and discussions with our doctors. Many women here have stage 3c for which radiation may make more sense.

    Re: CA125- a blood test. In my case, it was believed to be an indicator of treatment response. Mine dropped dramatically after the first chemo and the level was checked before each treatment. CA125 may not be a reliable indicator for all of us.

    Re: hormone testing. My first doctor moved and my new doctor (in same practice) ordered hormone testing on my original tissue just to gather info for future possible treatment. I really do not know much about this but there has been some posting on this subject somewhere on this discussion board. Others have more info on this than me.

    The body has great healing capabilities and so does the MIND. I pursued other non-medical treatments. I had weekly "healing touch" sessions during the months of chemo and meditated several times daily. I went to a counselor to deal with stressors in my life and how I could change the way I handled them. The book, Getting Well Again by O. Carl Simonton really helped me and continues to - sorry I'm such a broken record about this.

    For what it is worth this is my 2 cents. As many have said here, we are all different and not statistics. We all are faced with making these decisions. I wish us all the very best in this journey. We need all the strength, HOPE, and positive thinking we can muster. God bless.

    Mary Ann
  • linda66
    linda66 Member Posts: 3
    Hello again
    Thanks to everyone for their friendly welcome to me on this site.

    I started losing my hair at the end of the second week after 1st chemo. I took others' advice and got all my hair buzzed & now have a short stubble. It wasn't so bad. I took a before and after picture and then used a turban at first. I now wear my wig for some occasions, but at home or general activities I am wearing a hat or turban. I'm surprised that I am getting into it and am getting out all my old dangling earrings.

    I go for my second chemo this coming Wednesday and am trying to prepare for it so I don't have times of fainting, vomiting, and dehydration as I did after the first chemo. I am drinking lots of fluids and have started varying the types. Has anyone heard of eating salty foods to try to keep from dehydrating with salt helping your body to hold water? I thought I was drinking lots of water after my first chemo but still got dehydrated.
  • cathyK
    cathyK Member Posts: 93
    unknown said:

    This comment has been removed by the Moderator

    new doc
    thanks all for the welcome and Patricia, well I this is the second doctor. first one general gyn did biopsy and diagnosis of cervical cancer, then disapeared for a week, couldnt contact him and he had no one else to answer my questions, so on came second doctor a specialist. I am on medicade. and I am told there are 2 other specialists in michigan, detroit and ann arbor which are 4 hrs away, I am 1 1/2 hr away from this doctor and hospital where I get the chemo! and 45 min from the closest hospital where I get the white blood cell shot. so to answer your question, no there is no other doc I could go to that has the knowledge this doc has, I just have to get him on the same page as myself. which may be quite a job.
  • ro_NJ
    ro_NJ Member Posts: 11
    linda66 said:

    Hello again
    Thanks to everyone for their friendly welcome to me on this site.

    I started losing my hair at the end of the second week after 1st chemo. I took others' advice and got all my hair buzzed & now have a short stubble. It wasn't so bad. I took a before and after picture and then used a turban at first. I now wear my wig for some occasions, but at home or general activities I am wearing a hat or turban. I'm surprised that I am getting into it and am getting out all my old dangling earrings.

    I go for my second chemo this coming Wednesday and am trying to prepare for it so I don't have times of fainting, vomiting, and dehydration as I did after the first chemo. I am drinking lots of fluids and have started varying the types. Has anyone heard of eating salty foods to try to keep from dehydrating with salt helping your body to hold water? I thought I was drinking lots of water after my first chemo but still got dehydrated.

    Wow - this is amazing
    I came to this site to find others who have endometrial cancer - I've spoken to a lot of women at work who had hysterectomies, but none had cancer along with it. July 1st I was diagnosed with Stage 2 Endometrial / Cervix cancer. MRI shows the tumor is half way through the wall. Dr is recommending radiation treatments first, which I will start mid August - then internal radiation, followed by a hysterectomy. I'm just trying to learn what others have experienced in this arena. What type of supplements are you taking to keep your body strong through this experience?


    It's amazing to see such a support group. it's mind boggling how many of us are experiencing this disease. My heart goes out to all of you.
  • daisy366
    daisy366 Member Posts: 1,458 Member
    ro_NJ said:

    Wow - this is amazing
    I came to this site to find others who have endometrial cancer - I've spoken to a lot of women at work who had hysterectomies, but none had cancer along with it. July 1st I was diagnosed with Stage 2 Endometrial / Cervix cancer. MRI shows the tumor is half way through the wall. Dr is recommending radiation treatments first, which I will start mid August - then internal radiation, followed by a hysterectomy. I'm just trying to learn what others have experienced in this arena. What type of supplements are you taking to keep your body strong through this experience?


    It's amazing to see such a support group. it's mind boggling how many of us are experiencing this disease. My heart goes out to all of you.

    Supplements
    Welcome Ro,

    Yes, this is a great place, isn't it!!

    I just took my multivitamins. But my chemo nurse recommended Purity brand vitamins because they are better at providing nutrients - She said the regular ones don't absorb as well as these. I am considering buying these special ones but haven't yet. I'd be interested to know what others are using and where they get them.

    Glad you joined us. Mary Ann
  • daisy366
    daisy366 Member Posts: 1,458 Member
    cathyK said:

    new doc
    thanks all for the welcome and Patricia, well I this is the second doctor. first one general gyn did biopsy and diagnosis of cervical cancer, then disapeared for a week, couldnt contact him and he had no one else to answer my questions, so on came second doctor a specialist. I am on medicade. and I am told there are 2 other specialists in michigan, detroit and ann arbor which are 4 hrs away, I am 1 1/2 hr away from this doctor and hospital where I get the chemo! and 45 min from the closest hospital where I get the white blood cell shot. so to answer your question, no there is no other doc I could go to that has the knowledge this doc has, I just have to get him on the same page as myself. which may be quite a job.

    My mother used to say, "KIll him with kindness!!"
    Cathy,

    Maybe a little homemade goodie the next time you see him might warm up his heart a little. He may remember you and appreciate you. The best way to a man's heart, etc....

    Just a thought. Mary Ann
  • maryln3
    maryln3 Member Posts: 62
    ro_NJ said:

    Wow - this is amazing
    I came to this site to find others who have endometrial cancer - I've spoken to a lot of women at work who had hysterectomies, but none had cancer along with it. July 1st I was diagnosed with Stage 2 Endometrial / Cervix cancer. MRI shows the tumor is half way through the wall. Dr is recommending radiation treatments first, which I will start mid August - then internal radiation, followed by a hysterectomy. I'm just trying to learn what others have experienced in this arena. What type of supplements are you taking to keep your body strong through this experience?


    It's amazing to see such a support group. it's mind boggling how many of us are experiencing this disease. My heart goes out to all of you.

    SOUNDS LIKE A GREAT DOC...
    I NEVER HEARD OF THAT BEFORE RADIATION AND THEN A HYSTERECTOMY BUT IT SOUNDS VERY LOGICAL TO ME....

    MY TUMOR WAS THE SAME AS YOURS...BUT I GET RADIATION AFTER THE HYSTERECTOMY
  • bella09
    bella09 Member Posts: 37 Member

    just got the word
    I am not sure if I am replying to this right.. My name is Danielle I am a 30 year old single mother of four. I was diagnosed with uterine cancer and will have a hystrectomy (if i spelled it right) august 4th

    Welcome Danielle
    Welcome to this site. I am sorry to hear about your diagnosis. The ladies here have been very helpful and encouraging to me. I know that you have a lot going on now with your upcoming surgery, but we are here for you. Try to take it one day at a time. You and your family are in my prayers.

    Jean
  • bella09
    bella09 Member Posts: 37 Member
    JENILENE said:

    ROLL CALL
    MY NAME IS JEN ILENE AND AM 30 YEARS OLD, DIAGNOSED WITH STAGE 1B UTERINE ADENOCARCINOMA. IM FROM SOUTH TEXAS, NOT A LOT OF SUPPORT GROUPS HERE. WAS DIAGNOSED OCT 16,2008 AND HAD TOTAL ABD HYSTERECTOMY AND RIGHT OVARY REMOVAL(PCD)AND BILATERAL FALLOPIAN TUBE REMOVAL(SEVERE ENDOMETRIOSIS)IN LATE JANUARY 2009. MY CA-125 CAME OUT ALITTLE HIGH AND FOUND POSSIBLE REOCCURANCE DURING HYSTOSCOPY LAST FRIDAY. NOW TRYING TO PREPARE FOR 4 WEEK ROUND OF EXT.RAD AND POSSIBLE SIDE EFFECTS. HOW BAD IS IT? IS THERE ANY SUPPORT SYSTEM SET UP FOR PEOPLE MY AGE? PLEASE CONTACT ([email protected]) OR ON THIS POST. THANKS

    Welcome Jenilene
    Welcome to this site. You have come to the right place for support. We all vary in age and diagnosis, but I have found that there are many knowledgeable, caring people here. It is very easy to relate to each other. With your surgery behind you now you begin your radiation. I had 5 weeks of external IMRT radiation and 3 days of internal radiation. The only side effect that I had was being tired all the time. Everyone that helped me with my treatments were very kind. Unfortunetly it is something that we have to go through to get well. I hope that you do not have any side effects and are able to tolerate the treatments.

    Jean
  • bella09
    bella09 Member Posts: 37 Member
    ro_NJ said:

    Wow - this is amazing
    I came to this site to find others who have endometrial cancer - I've spoken to a lot of women at work who had hysterectomies, but none had cancer along with it. July 1st I was diagnosed with Stage 2 Endometrial / Cervix cancer. MRI shows the tumor is half way through the wall. Dr is recommending radiation treatments first, which I will start mid August - then internal radiation, followed by a hysterectomy. I'm just trying to learn what others have experienced in this arena. What type of supplements are you taking to keep your body strong through this experience?


    It's amazing to see such a support group. it's mind boggling how many of us are experiencing this disease. My heart goes out to all of you.

    Welcome Ro_NJ
    Welcome to this site and I am glad that you found it. I did not take any supplements during my radiation treatment. I tolerated the treatments well and the only side effect was tiredness. I did get a lot more rest. I had my DaVinci surgery before my radiation. I think that you are the first that I have read that is getting it after treatment. I hope that your treatments and surgery go well with no side effects and that you heal quickly. Like you, I did not know of anyone who had uterine cancer, but lots of women who had an hysterectomy. This site has been very helpful. My stage and grade was determined after my surgery. You are in my prayers.
  • ro_NJ
    ro_NJ Member Posts: 11
    maryln3 said:

    SOUNDS LIKE A GREAT DOC...
    I NEVER HEARD OF THAT BEFORE RADIATION AND THEN A HYSTERECTOMY BUT IT SOUNDS VERY LOGICAL TO ME....

    MY TUMOR WAS THE SAME AS YOURS...BUT I GET RADIATION AFTER THE HYSTERECTOMY

    radiation first
    The oncologyst recommended it because he said that if we kill off the cancer, or shrink the tumor - it'll be safer for him to operate - plus we all know what happens if the dr accidentally cuts into the cancer - I'll have it more places than I want it. It made sense to me.

    As for vitamins - I'm taking "over 50" Garden of Life - whole foods have it - it also has probiotics in it - my chiro, who is into holistic healing - recommended it to me... I don't usualy take vitamins, as they make me sick, but so far, they haven't bothered my stomach or made me nausious. Post surgery, he's suggesting - goldenrod / echenisia drops under your tongue to promote healing - and yogurt for your stomach as well - have to put the good bacteria back in your body. (p.s. pardon my spelling)

    Ro
  • ro_NJ
    ro_NJ Member Posts: 11
    bella09 said:

    Welcome Ro_NJ
    Welcome to this site and I am glad that you found it. I did not take any supplements during my radiation treatment. I tolerated the treatments well and the only side effect was tiredness. I did get a lot more rest. I had my DaVinci surgery before my radiation. I think that you are the first that I have read that is getting it after treatment. I hope that your treatments and surgery go well with no side effects and that you heal quickly. Like you, I did not know of anyone who had uterine cancer, but lots of women who had an hysterectomy. This site has been very helpful. My stage and grade was determined after my surgery. You are in my prayers.

    thanks Bella09
    Thanks Bella - I think we're all rooting for each other. I'm sure once I begin the radiation treatments I'll meet more women experiencing the same thing. I've read a lot about the DaVinci surgery - did they also check your lymph nodes with that type of surgery? Where I'm going, they're not offering that method - they're saying I'll need another "bikini cut". But I have time before I even need to think about that.
  • california_artist
    california_artist Member Posts: 816 Member
    lociee said:

    Thanks Claudia
    I appreciate your concern. I do have friends who are extremely helpful. My daughter lives in New York City,
    but calls daily and comes to visit when she gets a chance. Sometimes, I'm okay with my prognosis, but there
    are also times when I feel lost and scared. I stopped radiation last week and the tumor pain is increasing daily.
    I see my oncologist tomorrow, but he said I have to wait a few weeks before I can have any chemo - he's
    talking about some trials - but I don't know if I want to do that. Basically you have to stay in the hospital and
    they pump you with strong chemo for days. It burns your skin off! Anyway, tomorrow he will prescribe a stronger
    pain killer - I have percocet, but it does not help much. I'm still working so have to take something that reduces
    the pain, but doesn't make me loopy. Anyway, thanks for your note - it means a lot to me.
    What is your situation? Mia

    Mia re: your post on June 4
    I have to apologize. I had a PET/CT right after I wrote that post to you and then I went to California for month to deal with a 10x10x20 foot storage space, where i had to decide how to let go of half of the stuff,and I apparently lost my mind somewhere in those storages. At one point I had four storage spaces so I could keep track of what was going where. The PET/Ct came back with no metablic activity. So I just allowed myself to not think about cancer, very much for a month.

    As for my story. I have UPSC, surgery April 08, no lymph nodes taken, confusion, keeping an eye on things, CT, PET/CT, pap type tests every four months, lots of lifestyle and diet changes, and just really hoping for that shoe not to drop. I am going to keep reading the posts to see how you are doing. I hope everything is going well for you now.
    I offer my number to anyone 9475179417 or you can email me at [email protected] if you have some thoughts. Sometimes talking to a friendly voice is much more comforting than a computer. Some of these gals are very funny and refreshing on the phone.

    As always, love and hope,

    Claudia
  • california_artist
    california_artist Member Posts: 816 Member
    liocee--Sorry, I was gone for a month
    Mia
    In response to your post of June 4
    I have to apologize. I had a PET/CT right after I wrote that post to you and then I went to California for month to deal with a 10x10x20 foot storage space, where i had to decide how to let go of half of the stuff,and I apparently lost my mind somewhere in those storages. At one point I had four storage spaces so I could keep track of what was going where. The PET/Ct came back with no metablic activity. So I just allowed myself to not think about cancer, very much for a month.

    As for my story. I have UPSC, surgery April 08, no lymph nodes taken, confusion, keeping an eye on things, CT, PET/CT, pap type tests every four months, lots of lifestyle and diet changes, and just really hoping for that shoe not to drop. I am going to keep reading the posts to see how you are doing. I hope everything is going well for you now.
    I offer my number to anyone 9475179417 or you can email at [email protected] me if you have some thoughts. Sometimes talking to a friendly voice is much more comforting than a computer. Some of these gals are very funny and refreshing on the phone.

    As always, love and hope to us all,

    Claudia