PET SCAN RESULTS

dorookie
dorookie Member Posts: 1,731 Member
edited March 2014 in Colorectal Cancer #1
He everybody, well it was an interesting day. Wendy and I went to my ONC office to get a copy of the results. I asked one of the girls there that I know and like very much if I could get a copy of the scan results. She said wait a minute and I will get back to you. Well we waited for about 10 minutes, and a different lady I had never spoken to before come out and calls me in to the back. She starts to tell me that its their policy not to give out results until a doctor has reviewed them and that my ONC said to just wait and keep the appointment until next week. I then told her that those results are mine, they are in my file and I have the right to see them and get a copy of them , she again trying to tell me about their policy when I interrupted her and said, listen you don't understand, I am going to get a copy of that report if I have to sit in your waiting room till closing time. I told her I cant wait another 8 days not knowing what the results were, and by you not letting me have a copy leads me to believe they are bad and I want to know now. SHe said she would check with the doctor and get back to me. Well back to the waiting room I went. Not 5 minutes later she called me up to the desk and handed me an envelope with the scan results in it. I said thank you. Wendy and I then sat down right there and started to try and interrupt the scan results. From what I could read everyting look good.

Then we got to the last page and it said this:

1. There is no evidence of locally recurrent disease as athe level of the rectosigmoid anastomosis or evidence of enlarged adenopathy in the abdomen or pelvis with hypermetabolic activity to suggest metastases.

2. No new solid organ metastases or Foci of Hypemetabolic activity with the lungs bilaterally.

3. Improved right-sided loculated pleural fluid, trace left sided pleural fluid and areas of sub segmental atelectasis as described above. Right middle lobe wedge resection was performed, and there are no foci of FDG activity at that site.

4. No additional sites of distant metastases, the bony structures appear intact.

5. Routine follow-up as clinically indicated.

So I dont know all that means exactly but I would pretty much say I just met Mr. NED...

WHat do all of you think????????

Comments

  • CanadaSue
    CanadaSue Member Posts: 339 Member
    WOW
    Beth I think Mr. Ned welcomes you with open arms!

    Great News!

    Sue
  • angelsbaby
    angelsbaby Member Posts: 1,165 Member
    Beth
    I think you are right is sounds like ned to me too, goooood news i would say. I am glad it was good news.

    michelle
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Sounds good
    I'm not a doctor...but that certainly sounds very promising. I did not read anything negative in there. Hoping your oncologist confirms when you talk.

    Way to go...Craig
  • lisa42
    lisa42 Member Posts: 3,625 Member
    yay for you!!
    Beth,

    I'm so glad you were persistent- wow- hard to believe they're such sticklers on "their policy"- pretty ridiculous, I think. Anyhow, I'm so glad you got the report! (suggestion for next time: bypass the Dr's office and go straight to the records room at the hospital or wherever you actually had the scan done- they won't give you any trouble at all- that's what I've done the past couple of times).
    Yes, it sounds to me like you've met Mr. NED!!! Sooo glad for you!!

    God bless,
    Lisa
  • eric38
    eric38 Member Posts: 583
    Sundanceh said:

    Sounds good
    I'm not a doctor...but that certainly sounds very promising. I did not read anything negative in there. Hoping your oncologist confirms when you talk.

    Way to go...Craig

    I think you and NED just
    I think you and NED just made friends. Here`s to you having a long and healthy relationship with NED.

    Eric
  • paulette S
    paulette S Member Posts: 42
    lisa42 said:

    yay for you!!
    Beth,

    I'm so glad you were persistent- wow- hard to believe they're such sticklers on "their policy"- pretty ridiculous, I think. Anyhow, I'm so glad you got the report! (suggestion for next time: bypass the Dr's office and go straight to the records room at the hospital or wherever you actually had the scan done- they won't give you any trouble at all- that's what I've done the past couple of times).
    Yes, it sounds to me like you've met Mr. NED!!! Sooo glad for you!!

    God bless,
    Lisa

    wow
    and horray for you. be well
  • grandma2selena
    grandma2selena Member Posts: 199
    Good News
    It sure sounds like you are joining the NED team! Yea! Way to go! Glad you stuck up for your rights and got the report early!

    Debbie
  • Fight for my love
    Fight for my love Member Posts: 1,522 Member
    Hi Beth,none of us is a
    Hi Beth,none of us is a doctor,but I am sure you are FINE.Nothing could be better than being cancer free!Thanks for your update.
  • dorookie
    dorookie Member Posts: 1,731 Member
    lisa42 said:

    yay for you!!
    Beth,

    I'm so glad you were persistent- wow- hard to believe they're such sticklers on "their policy"- pretty ridiculous, I think. Anyhow, I'm so glad you got the report! (suggestion for next time: bypass the Dr's office and go straight to the records room at the hospital or wherever you actually had the scan done- they won't give you any trouble at all- that's what I've done the past couple of times).
    Yes, it sounds to me like you've met Mr. NED!!! Sooo glad for you!!

    God bless,
    Lisa

    if they would
    have given me a really hard time the records room was were i was headed next but I got the feeling that lady knew i meant business...lol
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Great
    Sounds to me like that is one great report. I can't imagine that person being so rude to you. She has no clue what it feels like to wait for a report like that and if she did, she would have been more sympathetic. I'm glad you stuck to your grounds. I would talk to your oncologist when you go see them and let them know you would like the results when they come back. You are right, they are your records.

    Congratulations!

    Kim
  • ADKer
    ADKer Member Posts: 147

    Great
    Sounds to me like that is one great report. I can't imagine that person being so rude to you. She has no clue what it feels like to wait for a report like that and if she did, she would have been more sympathetic. I'm glad you stuck to your grounds. I would talk to your oncologist when you go see them and let them know you would like the results when they come back. You are right, they are your records.

    Congratulations!

    Kim

    Terrific news!
    That is wonderful news! I am very happy for you.
  • Shayenne
    Shayenne Member Posts: 2,342
    ADKer said:

    Terrific news!
    That is wonderful news! I am very happy for you.

    Awesome!
    I just did the Nakked Happy Dance with Beth on the phone, it was wonderful...

    So glad and proud of you, sounds likes its alllll good to me as well! Keep doing what ya do to stay NED....I think not stressing so much and relax more would be good for you, it's all in the mind as well :)

    I hope you stay like this forever!

    Hugssss!
    ~Donna
  • VickiCO
    VickiCO Member Posts: 917
    Wowsers Beth!
    Good for you sticking to your guns. They are YOUR files...and I am proud of you.

    NED!!! Yippee!!! Now, go plant a tree! LOL!

    Many hugs tonight to you and Wendy. Vicki
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Woohoo!
    Sounds great to me! I'm glad you hung in there and got the results. Ridiculous to have to wait that long for results! Dance, girl, dance!

    *hugs*
    Gail
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    yes - NED!
    Hi Beth,
    That sounds like wonderful NED news!!! Good for you for knowing your rights and getting your scan when you wanted it! It is yours.
    I hope you have a beautiful day, week, month..... forever!
    Aloha,
    Kathleen
  • dorookie
    dorookie Member Posts: 1,731 Member
    I cant thank you all enough
    I dont know what I would have done without this board and all you wonderful people. You have been there for me in my darkest hours and now in my hours of shine, I feel like we are all family here even if we havent ever really meet. I continue to keep all of you in my prayers even the ones that have been healed. I also pray for those who dont even know about this monster, I wish I could afford to put a billboard sign up to have everyone get screened. I just heard on the news the the CEO of Atena is working with the President on the new health care reform. I would be happy to see them lower the testing age to 40, that would be such a big start. Anyway thats my soapbox.....Thanks to all of you for everything you have done for me, whether you new it or not.

    THank you from the bottom of my heart and soul

    Beth
  • dixchi
    dixchi Member Posts: 431
    News
    A little late.....but congrats on being NED; sounds like
    a great report....am sure you can actually sense that you
    are much lighter now that the onerous burden is off your
    shoulders.....praying it stays that way.

    Huggs,
    Barbara
  • luv3jay
    luv3jay Member Posts: 533 Member
    Well, I don't have the
    Well, I don't have the letters "MD" behind my name, but that sounds pretty darn good to me! Congratulations and I hope you get the NED confirmation from your doctor!!