PET SCAN RESULTS

dorookie

He everybody, well it was an interesting day. Wendy and I went to my ONC office to get a copy of the results. I asked one of the girls there that I know and like very much if I could get a copy of the scan results. She said wait a minute and I will get back to you. Well we waited for about 10 minutes, and a different lady I had never spoken to before come out and calls me in to the back. She starts to tell me that its their policy not to give out results until a doctor has reviewed them and that my ONC said to just wait and keep the appointment until next week. I then told her that those results are mine, they are in my file and I have the right to see them and get a copy of them , she again trying to tell me about their policy when I interrupted her and said, listen you don't understand, I am going to get a copy of that report if I have to sit in your waiting room till closing time. I told her I cant wait another 8 days not knowing what the results were, and by you not letting me have a copy leads me to believe they are bad and I want to know now. SHe said she would check with the doctor and get back to me. Well back to the waiting room I went. Not 5 minutes later she called me up to the desk and handed me an envelope with the scan results in it. I said thank you. Wendy and I then sat down right there and started to try and interrupt the scan results. From what I could read everyting look good.

Then we got to the last page and it said this:

1. There is no evidence of locally recurrent disease as athe level of the rectosigmoid anastomosis or evidence of enlarged adenopathy in the abdomen or pelvis with hypermetabolic activity to suggest metastases.

2. No new solid organ metastases or Foci of Hypemetabolic activity with the lungs bilaterally.

3. Improved right-sided loculated pleural fluid, trace left sided pleural fluid and areas of sub segmental atelectasis as described above. Right middle lobe wedge resection was performed, and there are no foci of FDG activity at that site.

4. No additional sites of distant metastases, the bony structures appear intact.

5. Routine follow-up as clinically indicated.

So I dont know all that means exactly but I would pretty much say I just met Mr. NED...

WHat do all of you think????????

CanadaSue

WOW
Beth I think Mr. Ned welcomes you with open arms!

Great News!

Sue

angelsbaby

Beth
I think you are right is sounds like ned to me too, goooood news i would say. I am glad it was good news.

michelle

Sundanceh

Sounds good
I'm not a doctor...but that certainly sounds very promising. I did not read anything negative in there. Hoping your oncologist confirms when you talk.

Way to go...Craig

lisa42

yay for you!!
Beth,

I'm so glad you were persistent- wow- hard to believe they're such sticklers on "their policy"- pretty ridiculous, I think. Anyhow, I'm so glad you got the report! (suggestion for next time: bypass the Dr's office and go straight to the records room at the hospital or wherever you actually had the scan done- they won't give you any trouble at all- that's what I've done the past couple of times).
Yes, it sounds to me like you've met Mr. NED!!! Sooo glad for you!!

God bless,
Lisa

eric38

Sundanceh said:

Sounds good
I'm not a doctor...but that certainly sounds very promising. I did not read anything negative in there. Hoping your oncologist confirms when you talk.

Way to go...Craig

I think you and NED just
I think you and NED just made friends. Here`s to you having a long and healthy relationship with NED.

Eric

paulette S

lisa42 said:

yay for you!!
Beth,

I'm so glad you were persistent- wow- hard to believe they're such sticklers on "their policy"- pretty ridiculous, I think. Anyhow, I'm so glad you got the report! (suggestion for next time: bypass the Dr's office and go straight to the records room at the hospital or wherever you actually had the scan done- they won't give you any trouble at all- that's what I've done the past couple of times).
Yes, it sounds to me like you've met Mr. NED!!! Sooo glad for you!!

God bless,
Lisa

wow
and horray for you. be well

grandma2selena

Good News
It sure sounds like you are joining the NED team! Yea! Way to go! Glad you stuck up for your rights and got the report early!

Debbie

Fight for my love

Hi Beth,none of us is a
Hi Beth,none of us is a doctor,but I am sure you are FINE.Nothing could be better than being cancer free!Thanks for your update.

dorookie

lisa42 said:

yay for you!!
Beth,

I'm so glad you were persistent- wow- hard to believe they're such sticklers on "their policy"- pretty ridiculous, I think. Anyhow, I'm so glad you got the report! (suggestion for next time: bypass the Dr's office and go straight to the records room at the hospital or wherever you actually had the scan done- they won't give you any trouble at all- that's what I've done the past couple of times).
Yes, it sounds to me like you've met Mr. NED!!! Sooo glad for you!!

God bless,
Lisa

if they would
have given me a really hard time the records room was were i was headed next but I got the feeling that lady knew i meant business...lol

Annabelle41415

Great
Sounds to me like that is one great report. I can't imagine that person being so rude to you. She has no clue what it feels like to wait for a report like that and if she did, she would have been more sympathetic. I'm glad you stuck to your grounds. I would talk to your oncologist when you go see them and let them know you would like the results when they come back. You are right, they are your records.

Congratulations!

Kim

ADKer

Annabelle41415 said:

Great
Sounds to me like that is one great report. I can't imagine that person being so rude to you. She has no clue what it feels like to wait for a report like that and if she did, she would have been more sympathetic. I'm glad you stuck to your grounds. I would talk to your oncologist when you go see them and let them know you would like the results when they come back. You are right, they are your records.

Congratulations!

Kim

Terrific news!
That is wonderful news! I am very happy for you.

Shayenne

ADKer said:

Terrific news!
That is wonderful news! I am very happy for you.

Awesome!
I just did the Nakked Happy Dance with Beth on the phone, it was wonderful...

So glad and proud of you, sounds likes its alllll good to me as well! Keep doing what ya do to stay NED....I think not stressing so much and relax more would be good for you, it's all in the mind as well

I hope you stay like this forever!

Hugssss!
~Donna

VickiCO

Wowsers Beth!
Good for you sticking to your guns. They are YOUR files...and I am proud of you.

NED!!! Yippee!!! Now, go plant a tree! LOL!

Many hugs tonight to you and Wendy. Vicki

tootsie1

Woohoo!
Sounds great to me! I'm glad you hung in there and got the results. Ridiculous to have to wait that long for results! Dance, girl, dance!

*hugs*
Gail

Kathleen808

yes - NED!
Hi Beth,
That sounds like wonderful NED news!!! Good for you for knowing your rights and getting your scan when you wanted it! It is yours.
I hope you have a beautiful day, week, month..... forever!
Aloha,
Kathleen

dorookie

I cant thank you all enough
I dont know what I would have done without this board and all you wonderful people. You have been there for me in my darkest hours and now in my hours of shine, I feel like we are all family here even if we havent ever really meet. I continue to keep all of you in my prayers even the ones that have been healed. I also pray for those who dont even know about this monster, I wish I could afford to put a billboard sign up to have everyone get screened. I just heard on the news the the CEO of Atena is working with the President on the new health care reform. I would be happy to see them lower the testing age to 40, that would be such a big start. Anyway thats my soapbox.....Thanks to all of you for everything you have done for me, whether you new it or not.

THank you from the bottom of my heart and soul

Beth

dixchi

News
A little late.....but congrats on being NED; sounds like
a great report....am sure you can actually sense that you
are much lighter now that the onerous burden is off your
shoulders.....praying it stays that way.

Huggs,
Barbara

luv3jay

Well, I don't have the
Well, I don't have the letters "MD" behind my name, but that sounds pretty darn good to me! Congratulations and I hope you get the NED confirmation from your doctor!!