Info That May Help You / Trial Drug Pill

green50
green50 Member Posts: 312
edited March 2014 in Ovarian Cancer #1
Hi Ladies,
I will let you know whats happening and how this trial works that may benefit someone else out there. I have been draining cancer fluid off causing low sodium and low blood pressure so I am taking sodium cholride tabs. When I get it up hopefully this week I will go to IU for the trial. My Liver and kidneys are strong enough and when I get to IU (Indiana University Medical Center) new cancer center there, I will get a magnetic MRI( just go under magenet slowly), cat scan, ekg, blood test urine test, and then give me taxol for one hour. I stay all night do test next day. Then take the pill or pills of trial drug SORAFENIB. This is a pill I will take 2 in morning and 2 and night continuously,If it makes me sick I call them immediately and they re look at it and reduce dosage. The next week I take avastin I believe an hour and they moniter me for 24 hours. The next week they do the same as first week but scans will see if anything shrunk. The whole idea is for chemo to shrink and the pill to help keep from coming back. Which is the trial drug. They have had great success with bladder patients. Wish me luck and if anyone wants to inform you dr about it need info its at IU where they do research and trials as well as chemo. They are the Center that saved my friend gave her a new liver and she is now real good. She was in a different dept. didnt have cancer another disease. Yes it is a hospital with a new cancer center and they have a research dept. Usually they pick those who have been on different chemos and cancer comes back or your stablized but still have cancer or chemos didnt work well. Taxol and Taxitere and worked but as you know its came back seven years and the others have failed. My cancer is in lymphnodes, spleen and little ones on omentem. Its worth a try for some of you out there. Dont give up.
Prayers and Hugs
Talk to ya soon.
Sandy

Comments

  • kayandok
    kayandok Member Posts: 1,202 Member
    #2
    Thanks Sandy
    Thanks Sandy for the info and I wish you all the best. My prayers are with you!
    Kathleen:)
  • saundra
    saundra Member Posts: 1,370 Member
    #3
    Thanks for the report
    We'll be waiting for your results and praying that this really does the job on your cancer cells. Post when you can...(I know you will). (((HUGS and PRAYERS))))) Saundra
  • LPack
    LPack Member Posts: 645
    #4
    update
    Sandy,

    Thanks for the update. We will keep you in our prayers.

    Teal Hugs,
    Libby ☺
  • green50
    green50 Member Posts: 312
    #5
    LPack said:

    update
    Sandy,

    Thanks for the update. We will keep you in our prayers.

    Teal Hugs,
    Libby ☺

    It may take awhile 4 to 6 months but Thank You for you prayers
    I forgot to tell you ladies, they have 4 different dosage ways to do this and it depends on person. But thats basically what they will give me. If everything goes well I will be sure and tell you. Should know in 3 or 4 weeks. It may help people or someone where it comes back or just stablizes and doesnt go away anyway I am sure there are plenty of us out there, I know there is a trial at Chicago too. Again I am praying for all of us and that maybe they found something that will stop this awful nightmare for all of us. God Bless Ya. Talk to ya soon
    Prayers and Hugs
    Sandy
  • carol2dogs
    carol2dogs Member Posts: 132
    #6
    green50 said:

    It may take awhile 4 to 6 months but Thank You for you prayers
    I forgot to tell you ladies, they have 4 different dosage ways to do this and it depends on person. But thats basically what they will give me. If everything goes well I will be sure and tell you. Should know in 3 or 4 weeks. It may help people or someone where it comes back or just stablizes and doesnt go away anyway I am sure there are plenty of us out there, I know there is a trial at Chicago too. Again I am praying for all of us and that maybe they found something that will stop this awful nightmare for all of us. God Bless Ya. Talk to ya soon
    Prayers and Hugs
    Sandy

    Thanks for your courage
    Sandy,
    Thanks for trying out a new regimen. We all will hope and pray that it is successful for you. It certainly gives me hope to see research continuing. God bless you. Love and hugs, Carol
  • green50
    green50 Member Posts: 312
    #7
    carol2dogs said:

    Thanks for your courage
    Sandy,
    Thanks for trying out a new regimen. We all will hope and pray that it is successful for you. It certainly gives me hope to see research continuing. God bless you. Love and hugs, Carol

    Thank You Carol
    I will be the first one to jump for joy and be telling all of you if at least it puts me in remission. I am sure with taxol I will have a little tough time but been there done that. This fluid is worse. Cant do anything for myself. Except walk to a few feet to bathroom huffing and puffing but chemo will help that. Never thought I would be anxious to take that. hmm. Thank all of you for your prayers and special ones to our friend Bonnie who has a fever and in hospital. God bless her.
    Prayers and Hugs
    Sandy
  • softD
    softD Member Posts: 69
    #8
    green50 said:

    Thank You Carol
    I will be the first one to jump for joy and be telling all of you if at least it puts me in remission. I am sure with taxol I will have a little tough time but been there done that. This fluid is worse. Cant do anything for myself. Except walk to a few feet to bathroom huffing and puffing but chemo will help that. Never thought I would be anxious to take that. hmm. Thank all of you for your prayers and special ones to our friend Bonnie who has a fever and in hospital. God bless her.
    Prayers and Hugs
    Sandy

    Good luck Sandy

    Hi Sandy,
    just wanted to wish you all the best with this trial treatment. You certainly are a trouper!
    I'm hoping the treatment regime is not going to be too tough on you, and you will be rewarded with a remission at the end of it :)
    Hope all goes well for you, lots of love and good vibes...Carolyn xxxxxxxxxxxxx
  • ladyjogger31
    ladyjogger31 Member Posts: 289
    #9
    softD said:

    Good luck Sandy

    Hi Sandy,
    just wanted to wish you all the best with this trial treatment. You certainly are a trouper!
    I'm hoping the treatment regime is not going to be too tough on you, and you will be rewarded with a remission at the end of it :)
    Hope all goes well for you, lots of love and good vibes...Carolyn xxxxxxxxxxxxx

    Good Luck
    Thanks for the update Sandy . I will be praying that it does the job and kills all the cancer cells. Please keep us posted. Your always in my prayers.
    Hugs, Terry
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    #10
    Sorafenib also know as nexavar
    This is the pill I just finished taking. It seemed to help hold things for steady for me for awhile. I know it is being tried more and more against ovarian cancer.

Discussion Boards