I can't do the mammogram

tasha_111
tasha_111 Member Posts: 2,072
edited March 2014 in Breast Cancer #1
I have my follow-up with my onco next week. He gave me a requisition for a mamo last meeting and I just know I can't go through with it. my operated on breast is so tender I can't even touch it so how would I stand that without fainting?. I'm just going to tell him (Chemo brain) I forgot to have it done. I know I just can't handle this... Jxx
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Comments

  • creampuff91344
    creampuff91344 Member Posts: 988
    Tasha, I felt the same as
    Tasha, I felt the same as you did about having a mammo done after six months. My lumpectomy breast was so tender that I didn't think I could stand having it "squashed" by the machine. However, I held my breath and went through with it. Lo and behold, it really wasn't that bad. It was sore to the touch before the mammo, but during the procedure, the pressure was all that I felt. You migth at least give it a try. If you can't stand it, tell the technician and hopefully they will get you more comfortable. It is very important that these scans be done to help with recurrence detection. Good luck, and hugs your way.

    Judy
  • mmontero38
    mmontero38 Member Posts: 1,510
    Can you get an ultrasound
    Can you get an ultrasound instead? Hugs, Lili
  • GreeneyedGirl
    GreeneyedGirl Member Posts: 1,077

    Can you get an ultrasound
    Can you get an ultrasound instead? Hugs, Lili

    check your paperwork
    Maybe you have a few weeks to extend the request for the mammo giving you that time to heal a little more, sometimes it just takes a few more days/weeks to feel like things are healed up. Or, call and ask him if you can stretch it out just a little longer due to sensitivity. Im' sorry you are still tender.
    M
  • tasha_111
    tasha_111 Member Posts: 2,072

    check your paperwork
    Maybe you have a few weeks to extend the request for the mammo giving you that time to heal a little more, sometimes it just takes a few more days/weeks to feel like things are healed up. Or, call and ask him if you can stretch it out just a little longer due to sensitivity. Im' sorry you are still tender.
    M

    Mamo
    Hey.........thanks all. I'm going to pretend that I forgot about the mammogram..........I am sure with the pain, I would pass-out, and from a standing position with your breast trapped in that medieval contraption.........noway!!!!!!!!!!!!!!! J xxxxxxxxxxxx
  • chenheart
    chenheart Member Posts: 5,159
    OUCH
    Tasha! You don't have to tell him you forgot to have it done, tell him what pain you are in! Perhaps they will/can schedule you an MRI or an Ultrasound...no ouchies involved, ya know? Regardless, tell him about the pain!!!! Call your dr NOW~ before you appointment with him, so he knows there will be no mammo film to look out. Perhaps he will have a suggestion.

    Hugs,
    Claudia
  • sausageroll
    sausageroll Member Posts: 415
    chenheart said:

    OUCH
    Tasha! You don't have to tell him you forgot to have it done, tell him what pain you are in! Perhaps they will/can schedule you an MRI or an Ultrasound...no ouchies involved, ya know? Regardless, tell him about the pain!!!! Call your dr NOW~ before you appointment with him, so he knows there will be no mammo film to look out. Perhaps he will have a suggestion.

    Hugs,
    Claudia

    Tasha
    Tasha...don't say you forgot the appointment. This is too important! Certainly tell you doctor of you are in pain..but it's very important you get this test or another substitute.
    My elderly MIL used to say.."You can stand on your head for a week if you need to!!"
    Maybe a dose of valium beforehand would help.
  • cabbott
    cabbott Member Posts: 1,039 Member
    What to do
    You know that the truth is your strongest position. Be brutally honest both with them and with yourself. You absolutely can't miss this test but it hurts! Start by calling the techs where the mammogram is given and ask what they recommend. Call the radiologist in charge if you have to and explain the problem. Radiologists are doctors and can recommend what to take beforehand so that you can manage this dilema. If a Tylenol isn't going to cut it, tell them. They don't want you to pass out or pass up this test. (Or do something messy to their machine when you faint!). So tell them the truth and get the help you need. I have a neck pain problem and didn't think I'd manage a second stereotactic biopsy a few years ago. They ended the test early because the spot was too small to sample adequately (don't ask!), but my neck was killing me in spite of the early ending. I wasn't sure I could come back again should the need arise. The radiologist said that if it happens again, he could give me an epidural type med if I'd sign for it. There are also pain meds you swallow, acupuncture, hypnotism, other possible tests and who knows what else. So start telling the folks who are taking care of you what you need.

    C. Abbott
  • Joycelouise
    Joycelouise Member Posts: 482
    My first mammo was when they
    My first mammo was when they found the cancer. With the tumor it hurt. Plus I was scared cuz I knew something was wrong. Anyway, I almost did faint. I had to be wheeled out in a chair. Very dramatic for my poor husband in the waiting room who sent in a healthy wife and gets back a BC dx and a wheelchair.
    For my after TX, first year mammo. I did some visualization work. I read a book that says you may stay traumatically stuck in a situation unless you resolve it. So, when I took the mammo I envisioned myself releasing my power, victim no longer. I saw myself in my mind smashing the mammogram machine with a powerful karate kick. Kapow. Don't know if it helped, but is WAS kind of fun!
    You know, if we stub our toe it can be D*&% painful. But we don't live in dread of it because we don't schedule it. You CAN get past this, just like we curse and jump up and down and indeed get passed that stupid stubbed toe. We are all there with you.
    love, Joyce
  • Irishwhispers
    Irishwhispers Member Posts: 96
    Sweet Tashhhhhhhhhhhhhhh...
    Do you know anyone that may need to go and is somewhat ...putting it off...
    Maybe that would help you ....if you are focusing on getting them there... and being their
    "strength" you then in turn could lean on them ... for strength...

    My "Daught" is going to be 32 this year and I have been gently nudging her to have a Mammo ~ I just made her appointment this morning with mine... May 26, 2009 at 8:30 AM...of course .. I was already scheduled being diagnostic .. She's "skeered" ... and promise not to tell her... so am I ... but not much in this journey hasnt been frightening...

    I too am still very sore and tender on my Left side - and I imagine it will be that way for a while... but, I look at it this way ... "IF" I can go through all the stuff I have gone through so far... I can do this too... and like it has been suggested by some of our great "Posters" here... get something to ease your fear and pain... a valium would make a perfect match to that machine .. if you ask me..

    I do wish I could go with you... I would make sure you didnt feel a thing!!!

    Love ya more than my luggage!!
    ~Trish~
  • mimivac
    mimivac Member Posts: 2,143 Member
    Mammogram
    Tasha, I am with the other ladies here. Don't tell the doctor you forgot; tell him the truth. No need to be ashamed that you are in pain and fearful of being in more pain. Telling the truth and knowing that you have nothing to feel guilty about will empower you in many ways. It will give the doctors a chance to help you and give you strength. There is a solution to everything if you let others help and tell them what you are going through. You are so strong already. Don't let this get you down.

    Mimi
  • tasha_111
    tasha_111 Member Posts: 2,072
    mimivac said:

    Mammogram
    Tasha, I am with the other ladies here. Don't tell the doctor you forgot; tell him the truth. No need to be ashamed that you are in pain and fearful of being in more pain. Telling the truth and knowing that you have nothing to feel guilty about will empower you in many ways. It will give the doctors a chance to help you and give you strength. There is a solution to everything if you let others help and tell them what you are going through. You are so strong already. Don't let this get you down.

    Mimi

    Thank You
    Thank you all for your comments, but I am just so stressed about this mammo business I have decided not to have another appointment with the onco, he's horrible anyway. I'll carry on getting regular check ups' with my dr and my surgeon, but I won't have to put up with Dr Charisma Bypass again....I have no intention of going through all this again anyway, so why put up with this miserable man and his tortuous tests. Thanks again, but I have made up my mind. Jxxxxxxxxxxxxxxxxxxx
  • RE
    RE Member Posts: 4,591 Member
    tasha_111 said:

    Thank You
    Thank you all for your comments, but I am just so stressed about this mammo business I have decided not to have another appointment with the onco, he's horrible anyway. I'll carry on getting regular check ups' with my dr and my surgeon, but I won't have to put up with Dr Charisma Bypass again....I have no intention of going through all this again anyway, so why put up with this miserable man and his tortuous tests. Thanks again, but I have made up my mind. Jxxxxxxxxxxxxxxxxxxx

    (((((HUGS)))))
    Tasha,

    If you dislike your onco so much perhaps you could see another one in your surrounding area. GP's and surgeons are good yes, but they do not have the expertise an oncologist has. It pains me to think you could have a recurrence and not get the help that you need because you dislike your current onco. These gals are right, brutal honesty is important right now, your doctor cannot possibly know how sore your are (especially since he has never had breasts and has no idea what getting them smashed is like) unless you tell him. MRI of the breast area is a painless option with even better results. I know you say you have made up your mind, however you are of great value to me and I felt compelled to add my two cents. There is only one Tasha, unique, witty and charming in your own way please please please do not give up on yourself because of a poor relationship with your onco.

    Many many Hugs,

    RE
  • mimivac
    mimivac Member Posts: 2,143 Member
    tasha_111 said:

    Thank You
    Thank you all for your comments, but I am just so stressed about this mammo business I have decided not to have another appointment with the onco, he's horrible anyway. I'll carry on getting regular check ups' with my dr and my surgeon, but I won't have to put up with Dr Charisma Bypass again....I have no intention of going through all this again anyway, so why put up with this miserable man and his tortuous tests. Thanks again, but I have made up my mind. Jxxxxxxxxxxxxxxxxxxx

    What RE said
    Don't let that miserable man keep you from getting the care you need and deserve. You should have a good relationship with the person who is entrusted with your life. Definitely find someone new. It's your right. He should be the one unhappy that he has not met your needs. At least don't make up your mind yet, Julia. Just take some time to think about this.
  • sausageroll
    sausageroll Member Posts: 415
    mimivac said:

    What RE said
    Don't let that miserable man keep you from getting the care you need and deserve. You should have a good relationship with the person who is entrusted with your life. Definitely find someone new. It's your right. He should be the one unhappy that he has not met your needs. At least don't make up your mind yet, Julia. Just take some time to think about this.

    Don't Make Your Decision Yet!
    Julia, please don't make this decision because you dislike your oncologist..there are plenty more where he came from. However, only an oncologist really has the expertise to help you have a successful outcome. If the pain is what is holding you up..there are plenty of different tests and plenty of drugs to help you through.
    Think about it and keep talking to us. We are here for you and will help in any way we can.
  • tasha_111
    tasha_111 Member Posts: 2,072

    Don't Make Your Decision Yet!
    Julia, please don't make this decision because you dislike your oncologist..there are plenty more where he came from. However, only an oncologist really has the expertise to help you have a successful outcome. If the pain is what is holding you up..there are plenty of different tests and plenty of drugs to help you through.
    Think about it and keep talking to us. We are here for you and will help in any way we can.

    OK
    I rang them tonight to cancel my appointment, his nurse (who is nice) came on the line and said to please keep my appointment and I didn't have to have a mammogram.........just talk to him about it. She said maybe I could have ultrasound..which I can handle. Thanks again for all your imput. Jxxxxxxxxxxxxxx
  • mimivac
    mimivac Member Posts: 2,143 Member
    tasha_111 said:

    OK
    I rang them tonight to cancel my appointment, his nurse (who is nice) came on the line and said to please keep my appointment and I didn't have to have a mammogram.........just talk to him about it. She said maybe I could have ultrasound..which I can handle. Thanks again for all your imput. Jxxxxxxxxxxxxxx

    Happy
    I am so glad you made this decision. The nurse sounds like a person who is doing her job right.
  • Cindy54
    Cindy54 Member Posts: 452
    mimivac said:

    Happy
    I am so glad you made this decision. The nurse sounds like a person who is doing her job right.

    So Glad
    I am so glad to hear you are going to see the doctor. Please be honest with him. I just had my one year after mammo and it still hurt. The nurse kept asking if I was okay and if I needed any pain meds, they would give me something. Speak up. Sometimes there is a remedy for things we think have none. higs, Cindy
  • RE
    RE Member Posts: 4,591 Member
    tasha_111 said:

    OK
    I rang them tonight to cancel my appointment, his nurse (who is nice) came on the line and said to please keep my appointment and I didn't have to have a mammogram.........just talk to him about it. She said maybe I could have ultrasound..which I can handle. Thanks again for all your imput. Jxxxxxxxxxxxxxx

    Thank you!
    Thank you Tasha for not canceling, sounds like your onco has a good and caring nurse in his office! Please keep us posted you are in my heart and in my prayers!!!

    RE
  • Marcia527
    Marcia527 Member Posts: 2,729
    tasha_111 said:

    OK
    I rang them tonight to cancel my appointment, his nurse (who is nice) came on the line and said to please keep my appointment and I didn't have to have a mammogram.........just talk to him about it. She said maybe I could have ultrasound..which I can handle. Thanks again for all your imput. Jxxxxxxxxxxxxxx

    You know I was going to
    You know I was going to suggest an ultrasound instead! I really was!
  • fauxma
    fauxma Member Posts: 3,577 Member
    Marcia527 said:

    You know I was going to
    You know I was going to suggest an ultrasound instead! I really was!

    I can relate
    Tasha/Julia,
    I can relate to your fear. I have no problems with mammos and I am not afraid of my follow up appointments even though I am still sore. But 9 years ago I had uterine cancer. I hated, no I was always deathly afraid of pelvic exams (had a bad accident when I was 3 or 4 and was traumatized and injured in that region) so I just never had them. Well, I had two, one when I was pregnant and one at delivery. The delivery one was so painful and freaked me out so bad that I decided I would never have another one. The doctor that delivered me was not my regular ob-gyn and actually said I'm surprised you got pregnant. My husband told him that a pelvic isn't sex and that he had no right to tell me that. I never had another pelvic until I had severe bleeding and clotting when I was 52. I went to that appointment and told the gynocologist that I just couldn't do the exam but I knew something was wrong. She did the exam and a d&C as an outpatient under sedation. When the cancer diagnosis came in I was referred to a gyn-onc group. When I walked in the room for my first visit he asked what was I most afraid of (found out later that he always asks this so his patients can know that his first concern is them and what is happening to them). I told him it was that he was going to want to do a pelvic exam. I knew that if he was going to do one I was leaving and I didn't care about the consequences. He reached over and took my hands and patted them and said that he usually heard fear of dying, what was the treatment going to be, everything to do with the cancer and that he had never heard pelvic fear being the worst fear. He also assured me that he would do all that while doing the hysterectomy and that we would go from there for future exams. He didn't make me feel stupid or unreasonable but treated this fear with respect. When I had to have my exam for the radiation I was freaking out but they gave me light sedation and I got through it and through the internal radiation as well. No one made me feel uncomfortable or embarassed by this fear. At my 1st follow up 3 months later, the nurse practioner in his department met with me and we decided to take it slow. She tried to gently do the exam but it didn't work. The next one was better and by the end of my 2nd year we were getting through them without much difficulty. I still dread them but I can do them and I never an appointment. So I know what you mean about the whole invasion of self and discomfort. But you did the right thing by talking with the nurse. You should go to this appointment and then take it from there. Like all the others said, there are ways around this. Alternate tests, MRI, ultrasounds, etc. And they can do a mammo while you are sitting in a chair. That's how I did the wire placements. Please do your follow ups the best you can and work with the doctors and nurses to get these done in a way that works for you. Don't let your doctor make you feel that you are being a baby. Sometimes our fears are not about the big things but the rest of the stuff. But there are solutions to nearly everything if you look for them. And in your heart you know that ignoring this is not the best solution. You have conquered so much, you can conquer this too. Trust me, as the biggest, scaredy cat baby in the whole world, you can do it.
    Stef