Dysgerminoma

lupeann
lupeann Member Posts: 9
edited March 2014 in Ovarian Cancer #1
I am hoping to get in contact with other people who have done the BEP treatment. I finished in June and am looking for support.

Comments

  • Bstrange
    Bstrange Member Posts: 87
    #2
    I haven't had the treatment
    I haven't had the treatment you speak of; actually I don't even know what it is. But I wanted to say I will pray someone will answer you that can answer your questions.
    God Bless,
    Barbara (bstrange)
  • Cindy54
    Cindy54 Member Posts: 452
    #3
    Bstrange said:

    I haven't had the treatment
    I haven't had the treatment you speak of; actually I don't even know what it is. But I wanted to say I will pray someone will answer you that can answer your questions.
    God Bless,
    Barbara (bstrange)

    Please Explain
    I also have not heard of this. Could you let us know what it is exactly? Cindy
  • saundra
    saundra Member Posts: 1,370 Member
    #4
    ????
    I don't know what BEP is. What is dysgerminoma? Need more information.
  • lupeann
    lupeann Member Posts: 9
    #5
    saundra said:

    ????
    I don't know what BEP is. What is dysgerminoma? Need more information.

    Dysgerminoma
    Hello Saundra,

    Dysgerminoma is the rare type of Ovarian Cancer - it is a germ cell tumor. Even though it is Ovarian (it starts from an egg cell hence the name germ cell) it is treated very differently. You get the BEP treatment - also known as Bleomycin, Etoposide and Cisplatin. I figure there has to be more people out there like me (I am 32) who have had this but so far I have had no luck.
  • lupeann
    lupeann Member Posts: 9
    #6
    Bstrange said:

    I haven't had the treatment
    I haven't had the treatment you speak of; actually I don't even know what it is. But I wanted to say I will pray someone will answer you that can answer your questions.
    God Bless,
    Barbara (bstrange)

    Thanks
    I will take whatever help I can get!
  • lupeann
    lupeann Member Posts: 9
    #7
    Cindy54 said:

    Please Explain
    I also have not heard of this. Could you let us know what it is exactly? Cindy

    Sure
    Cindy,

    Dysgerminoma is the rare type of Ovarian Cancer - it is a germ cell tumor. Even though it is Ovarian (it starts from an egg cell hence the name germ cell) it is treated very differently. You get the BEP treatment - also known as Bleomycin, Etoposide and Cisplatin. I figure there has to be more people out there like me (I am 32) who have had this but so far I have had no luck.

    Lupe
  • saundra
    saundra Member Posts: 1,370 Member
    #8
    lupeann said:

    Dysgerminoma
    Hello Saundra,

    Dysgerminoma is the rare type of Ovarian Cancer - it is a germ cell tumor. Even though it is Ovarian (it starts from an egg cell hence the name germ cell) it is treated very differently. You get the BEP treatment - also known as Bleomycin, Etoposide and Cisplatin. I figure there has to be more people out there like me (I am 32) who have had this but so far I have had no luck.

    search
    You will find several posts by going to the upper right hand side of this site and type in germ cell or dysgerminoma and click on the "go" button. Try this for help. Hugs, Saundra
  • germcellmom
    germcellmom Member Posts: 4
    #9
    Germ Cell
    Hi - my daughter is 14 years old and was diagnosed with this cancer the week before her 11th birthday. She is strong and healthy and I am here if you want to talk.
  • MitziDawn
    MitziDawn Member Posts: 14
    #10
    BEP
    I was diagnosed last Sept after months of tests with Ovarian cancer . I was Stage 1B ..Dysgerminoma.. and recieved Cisplatin,Etopside and Bleomycin. I had 3 rounds ..my last day of chemo was New Years Day ...i truly didnt think i was going to make it ..but i did. I had to go thru chemo because of the cancer rupturing when my hysterectomy was done . I lost all of my hair and most of my eyelashes and eyebrows. I now have toxic neuropathy ..extreme fatigue ..acid reflux ..more like a feeling i have a cotton ball stuck in my throat .I recently had my body scan done and im cancer free. Its been a long hard 7 months that has forever changed me. Im looking forward to returning to a somewhat "normal" life .. ..
  • MitziDawn
    MitziDawn Member Posts: 14
    #11
    BEP
    I was diagnosed last Sept after months of tests with Ovarian cancer . I was Stage 1B ..Dysgerminoma.. and recieved Cisplatin,Etopside and Bleomycin. I had 3 rounds ..my last day of chemo was New Years Day ...i truly didnt think i was going to make it ..but i did. I had to go thru chemo because of the cancer rupturing when my hysterectomy was done . I lost all of my hair and most of my eyelashes and eyebrows. I now have toxic neuropathy ..extreme fatigue ..acid reflux ..more like a feeling i have a cotton ball stuck in my throat .I recently had my body scan done and im cancer free. Its been a long hard 7 months that has forever changed me. Im looking forward to returning to a somewhat "normal" life .. ..
  • torres2family
    torres2family Member Posts: 1
    #12
    MitziDawn said:

    BEP
    I was diagnosed last Sept after months of tests with Ovarian cancer . I was Stage 1B ..Dysgerminoma.. and recieved Cisplatin,Etopside and Bleomycin. I had 3 rounds ..my last day of chemo was New Years Day ...i truly didnt think i was going to make it ..but i did. I had to go thru chemo because of the cancer rupturing when my hysterectomy was done . I lost all of my hair and most of my eyelashes and eyebrows. I now have toxic neuropathy ..extreme fatigue ..acid reflux ..more like a feeling i have a cotton ball stuck in my throat .I recently had my body scan done and im cancer free. Its been a long hard 7 months that has forever changed me. Im looking forward to returning to a somewhat "normal" life .. ..

    whats it like going through
    whats it like going through bep? i have to start that real soon
  • MitziDawn
    MitziDawn Member Posts: 14
    #13
    torres2family said:

    whats it like going through
    whats it like going through bep? i have to start that real soon

    BEP
    Truly ..it was very hard for me ...i went 5 days in a row 5 1/2 hrs. each day .. my premeds were steroids and and a anti nausea (sp) med Zofran i think ..ive blocked alot out ..i had 2 weeks off then went back for the five day trtmnt 3 times. Im dont know if its the sae for each person but for me i couldnt do a thing ...the nausea was the worse ..i never really threw up unless i made myself ..i didnt eat hardly a thing for almost 3 months..i felt like i had bugs under my skin ..theres alot more to my story with BEP ..also remaining effects from it ..such as they told me because of the Cisplatin if i go in the sun its the highest spf , a hat and a umbrella because th sun will burn me terribly .. ive lived on the coast my whole life and spent the summers at the beach ..finding this out truly depresses me ..if you would like to talk my email is tuesday.1964@yahoo.com..if you want i'll fill you in on my experience with this ..Godd Luck to you and ill be praying for you ..Mitzi
  • swampladytonight
    swampladytonight Member Posts: 1
    #14
    -

    -
  • TiggersDoBounce
    TiggersDoBounce Member Posts: 408
    #15
    LupeAnn & Mitzi
    Thanks for the education on the BEP, sorry you had to be the teachers...

    This sounds like climbing a mountain type of treatment....sending healing thoughts your way...

    Mitzi, glad you made it through this round. You will be a great support to LupeAnn...

    Hang in and stay in touch to let us know your progress.

    Laurie
  • Radioactive34
    Radioactive34 Member Posts: 391 Member
    #16
    lupeann said:

    Sure
    Cindy,

    Dysgerminoma is the rare type of Ovarian Cancer - it is a germ cell tumor. Even though it is Ovarian (it starts from an egg cell hence the name germ cell) it is treated very differently. You get the BEP treatment - also known as Bleomycin, Etoposide and Cisplatin. I figure there has to be more people out there like me (I am 32) who have had this but so far I have had no luck.

    Lupe

    It was initially thought
    It was initially thought that I had that type of cancer. Psstt...I ended up with something rarer. Though the treatment was similiar...just etoposide and cisplatin. Just that combo was butt kicking..exhausting..but still here. The more I read and see...all chemos kick butt...just in different manners.

    I definitely went bald...hair is still growing in...I am slowly starting to outgrow the mutant look.

    Like suggested, I would comb the the old files. This place is a treasure trove of information. The group has and has had some ladies who knew/know a lot of things. Some here can research like no tomorrow.

    As rare as mine is...this group takes away the alone feeling.

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