Peripheral Neuropathy

grateful_grammy08
grateful_grammy08 Member Posts: 4
edited March 2014 in Breast Cancer #1
Hi everyone, I'm new to this site. I was wondering if anyone else has peripheral neuropathy in their hands and feet? I had my last chemo treatment on july 30, 2007. I had 20 treatments over a 5 month period. The neuropathy was minor during the chemo, and the feeling came back in my hands completly. i lost my fingernails and once they came back the feeling came back. But over the last month the neuropathy has gotten real bad in my feet. It feels like the balls of my feet have knots in them. The Dr.'s have tried me on neurotin and cymbalta and neither have helped. Does anyone have any suggestions for relief for the pain??

Comments

  • imsurvivng
    imsurvivng Member Posts: 4
    #2
    neuropothy
    Hi,
    After taking Taxol, neuropothy developed in my feet. sorry to say that nothing has helped me, either. As for the delay, the Dr. said that it could occur up to a year after taking Taxol.
  • grateful_grammy08
    grateful_grammy08 Member Posts: 4
    #3
    imsurvivng said:

    neuropothy
    Hi,
    After taking Taxol, neuropothy developed in my feet. sorry to say that nothing has helped me, either. As for the delay, the Dr. said that it could occur up to a year after taking Taxol.

    neuropathy
    Thanks anyway, I just thought it was kinda strange that it has gotten so much worse and I've been done with chemo for over a year.
  • NorcalJ
    NorcalJ Member Posts: 187
    #4
    grateful_grammy08 said:

    neuropathy
    Thanks anyway, I just thought it was kinda strange that it has gotten so much worse and I've been done with chemo for over a year.

    Neuropathies
    I'm currently getting Taxol, and started (with Dr. O.K.) on glutamine powder on days 1-4 of chemo. There's lots of studies and trials for this. But, it's all done during the process of getting chemo. I felt the burning and tenderness on day 2 of the first Taxol infusion, then it resolved by day 4. The subsequent infusions didn't cause anything except once or twice and I'd continue the glutamine with success. Glutamine is an amino acid (building blocks of protein)and is available over the counter at health food stores or sometimes even Wal-Mart. Print out some of the studies for your Dr. Most say 10grams powder in juice or water, three times a day for days 1thru4 of infusions. But, like I mentioned, I felt the tenderness come back in between infusions and took one or two doses which relieved the symptoms.
    Always ask you Dr. But many of them aren't familiar with this enough---thus the reason to print out some of the study results.

    Good luck!
  • phoenixrising
    phoenixrising Member Posts: 1,508
    #5
    I don't know if it helps any but you can take up to 1800 mg of neurontin. I retained some neuropathy in my feet but small amounts of neurontin keep it managable. Frustrating when it develops a year after chemo, you're lucky to have a doc that believes it's chemo related.

    You know someone here I think mentioned Vit D helping them with their neuropathy. If not on this site then www.breastcancer.org. Something to look into.

    Also a gel called Neurogen (I think) did wonders for KathyM. You can get it at the drug store. Good luck to you, I know how painful it can be.

    You can also do a general search for neuropathy at the top of the page and see what others are saying.

    Take care
    jan
  • Skybuf
    Skybuf Member Posts: 143
    #6
    Neuropathy!
    I know all too well about foot neuropathy, I was given an overdose of Taxol my first and second time getting it, (06) and it's still no better. I had trouble walking for almost 2 yrs myself (everyones different) I did it all, took it all..Lyrica, epson salts, creams lotions and ice and heat.......what helped a bit was the Neurogen I recommend it but it's expensive and I can't affort it when I'd like it, love a basin of that stuff but it's like gold.
    I take Tylenol 1's to walk any distance and suffer greatly...but everyone tells me...at least your HERE.......so I don't complain much about it, sure they are sick of hearing it and it's not something you can see. But it's like walking on broken glass by mid day every day. Shopping is hard and I have ato pace myself now.....but Taxol is offered as a treatment and a good one for those nasty hidden cells.....what ya gonna do eh!
    Best to you....hope you find soemthing that helps, your not alone I assure you!!! :)
    God bless
  • grateful_grammy08
    grateful_grammy08 Member Posts: 4
    #7
    Skybuf said:

    Neuropathy!
    I know all too well about foot neuropathy, I was given an overdose of Taxol my first and second time getting it, (06) and it's still no better. I had trouble walking for almost 2 yrs myself (everyones different) I did it all, took it all..Lyrica, epson salts, creams lotions and ice and heat.......what helped a bit was the Neurogen I recommend it but it's expensive and I can't affort it when I'd like it, love a basin of that stuff but it's like gold.
    I take Tylenol 1's to walk any distance and suffer greatly...but everyone tells me...at least your HERE.......so I don't complain much about it, sure they are sick of hearing it and it's not something you can see. But it's like walking on broken glass by mid day every day. Shopping is hard and I have ato pace myself now.....but Taxol is offered as a treatment and a good one for those nasty hidden cells.....what ya gonna do eh!
    Best to you....hope you find soemthing that helps, your not alone I assure you!!! :)
    God bless

    THANKS
    thank you!! and you said exactly what i do, atleast i'm here and if this is the worst thing that i have to overcome with being a survivor, thank God!!!! but again like you said it is pestersome and does make for a long day when you have to go shopping or run errands. plus i have 2 precious grandbabies and bless there poor little hearts, i know they have to be tired of me saying please stop standing on grammies toes. but again i'm alive!!!!!!! thanks again

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