Rollcall

HAWVET
HAWVET Member Posts: 318
edited March 2014 in Head and Neck Cancer #1
I sometimes wonder who visits this Head and Neck Cancer area. I thought I would get a count. Probably, not everyone will sign up. If you do, please complete the following:

Forum Name, Type of Cancer, Year, and Home State

I will start.

HAWVET,Nasopharyngeal, 1998, Hawaii

Mahalo (Thank you)

HAWVET
«1

Comments

  • train-nut
    train-nut Member Posts: 101
    train-nut, hypopharyngeal (piriform sinus), 2007, Oklahoma...best of health to all!
  • BugHunter
    BugHunter Member Posts: 152
    BugHunter(Bill)
    Stage IV tonsilar
    Last treatment:03/28/2007
    Home st: Michigan(but live in Tennessee)
  • geezer
    geezer Member Posts: 9
    Geezer, Tonsilar, 2006, Florida
  • victor53
    victor53 Member Posts: 97
    Victor Brown
    Tonsil into base of tongue 4cm with a huge lemonsized lymphnode 9cm

    I did 6 weeks of once a week chemo Erbitux Carboplatin Taxol then two week rest
    Now i am in my second week of Radiation for 7 weeks with Cisplatin chemo daily on weeks 1.4.and 7 plus i get double radiation on fridays.
    Then a 4 week rest then surgery is the plan.
    I live in Costa Rica but am now in Rhode Island getting treated at same hospital i was born in 53 years ago. My email is vb53@cox.net i love to talk on phone with anybody who has experience at this email me your phone number and a time to call Thank you
  • TereB
    TereB Member Posts: 286 Member
    TereB
    Malignant Paraganglioma - started as glomus jugulare tumor in 1987 - still fighting
    Houston, Texas
  • garyr
    garyr Member Posts: 27
    Gary R
    Throat & Lymph galnds
    1999, New Mexico
  • jkinobay
    jkinobay Member Posts: 298 Member
    JKINOBAY, HPV16 positive SCC lymph nodes left neck misdiagnosed as Bronchial Cleft Cyst(surgery 5-07), MD Anderson said HPV16 points to tonsil area, tonsillectomy/adenoidectomy 7-07, left tonsil serious SCC, all else clear. Had 35 IMRT w/ weekly Cisplatin 9-07 & 10-07, last PET cancer free 4-08, next PET 10-08.

    Surgery and treatment in Tucson, Az. but I live and work in Mexico.


    Feeling better all the time. Be well..........JK
  • lolojldunn
    lolojldunn Member Posts: 37
    lolojldunn (Jim)
    Stage 4 Tonsilar
    Last treatment 8/16/2007
    Montana
  • sassyque
    sassyque Member Posts: 44
    sassyque...cancer of the tongue...2003...Pennsylvanis
  • sassyque
    sassyque Member Posts: 44
    Gee I can't spell!!!!Pennsylvania
  • slickwilly
    slickwilly Member Posts: 334 Member
    Slickwilly. Difuse Large B-Cell Lymphoma. 2003. Michigan. Mass with Octopus tenticles romoved from the right side of my face. Cancer from the Sinus cavity to the right jaw bone. 6 Chop+Rituxin treatments and 25 Radiation treatments. No more right facial nerve. 1/2 of my saliva glands, taste buds and sinus left. A minor meningioma brain tumor and it was Arthritis and spinal stenosis that finally put me on disability. Gotta hate those side effects. Keep fighting
  • Christmas
    Christmas Member Posts: 100
    Christmas, nasopharyngeal, last treatment - March 2004, California

    We are survivors!
  • ljoy
    ljoy Member Posts: 94
    Rollcall
    Tonsil cancer 2005. Treated at M.D. Anderson Houston, Texas and Texas Oncology Denton, TX. 39 radiation treatments and 3 rounds of Cisplatin. Now living cancer free in Sauk Rapids, MN. Ljoy
  • lorileona
    lorileona Member Posts: 2
    Rollcall
    lorileona (Lori, wife of Ron, cancer survivor)
    Originally Stage IV, Tongue and lymph nodes
    2005 and 2008
    Wisconsin
  • marywiz15
    marywiz15 Member Posts: 1
    lorileona said:

    Rollcall
    lorileona (Lori, wife of Ron, cancer survivor)
    Originally Stage IV, Tongue and lymph nodes
    2005 and 2008
    Wisconsin

    Rollcall
    marywiz15
    epithelial myo-epithelial carcinoma in my ethmoid sinus
    November, 2007
    Colorado
  • wboaz
    wboaz Member Posts: 48
    wboaz, Squamous cell cancer
    wboaz, Squamous cell cancer of the left tonsil, January 2006, Oregon
  • SASH
    SASH Member Posts: 421 Member
    wboaz said:

    wboaz, Squamous cell cancer
    wboaz, Squamous cell cancer of the left tonsil, January 2006, Oregon

    Roll Call
    Squamous Cell Carcinoma Stage 4
    Dx Sept 1999
    7200 RADS over 46 treatments
    10 rounds of weekly chemo simultaneous with the Rads
    Cut from ear to ear May 1, 2000 that removed base of tongue

    But I licked it.

    Florida
  • HAWVET
    HAWVET Member Posts: 318
    SASH said:

    Roll Call
    Squamous Cell Carcinoma Stage 4
    Dx Sept 1999
    7200 RADS over 46 treatments
    10 rounds of weekly chemo simultaneous with the Rads
    Cut from ear to ear May 1, 2000 that removed base of tongue

    But I licked it.

    Florida

    Thank you for all who have
    Thank you for all who have responded. For those of you still in need of treatment, I wish you well and will keep you in my prayers.

    There is a total of 17 of us who have responded. I will keep a roster and will have another roll call in January 2009. My hope is that we will all be present 100 percent and we do not lose a soul due to this disease.

    Here is the list:

    NAME STATE
    Bughunter Tennessee
    Christmas California
    Garyr New Mexico
    Geezer Florida
    Hawvet Hawaii
    Jkinobay Arizona
    Ljoy Texas/Minnesota
    Lolojldunn Montana
    Lorileona Wisconsin
    Marywiz15 Colorado
    Slickwilly Michigan
    Sash Florida
    Sassyque Pennsylvania
    TereB Texas
    Train-nut Oklahoma
    Victor 53 Rhode Island
    Wboaz Oregon

    If your name is not listed, it can still be added.

    Mahalo and Aloha
  • Pie123
    Pie123 Member Posts: 2
    Rollcall
    Pie123
    Squamous cell cancer behind the left tonsil
    Ended treatment 9/2007
  • marymoo
    marymoo Member Posts: 1
    Roll Call
    hi ya'll! Marymoo here age 39, SCC of Tongue and lymphnodes, just had first removal surgury Thursday Aug. 21, 2008, Alabama.

    We Will Survive!


    Marymoo