Neuropathy after treatment

betina61
betina61 Member Posts: 642 Member
edited March 2014 in Colorectal Cancer #1
I would like to know if any one of you have had the neuropthy last more than one year, mine started after I finish treatment and it have been one and a half year already is only numbness in my feet no pain, I am taking B12 but nothing have improved, I think that in my case is going to be permanent, the strange thing is that it didn't happened during treatment, at least I don't remember, any advice or sugestion will be apreciated,the Dr. prescribed me Lyrica but when I read the indications is more like for pain than the numbness, so I decided not to take it because I don't have pain.

Comments

  • apache4
    apache4 Member Posts: 272 Member
    #2
    I have been more then a year away from the Oxy and still have neuropathy in my feet. Just recently I have been able to go barefoot again without any pain, but I still have a wierd numbness. Since I am still on treatment (new one) I think that maybe that does not help. They feel really badly when I get Benadryl before infusion. I am asking for something else. I don't have real pain so I am thankful for that. I am with you and would not take anything for it...those side effects from some of the "extra" stuff scare me...
  • sladich
    sladich Member Posts: 429 Member
    #3
    I still have neuropathy in my feet after over a year. It's not painful - just a nuisance.

    Debbie
  • cjf2006
    cjf2006 Member Posts: 83
    #4
    I have neuropathy still in hands and feet - worse in the feet. It is a numbness and prickly feeling. It is annoying, especially when I have to put on shoes. I can't stand anything pressing against my feet. At home I wear open toed sandals with socks. I was told to take B-12 and B-6 by my primary care physician. It has improved, but is probably permanent. My onc suggested Lyrica too, but when I read the side effects / risks, I said no way. Once you start on it you can't just quickly stop it.
  • hoagiemom
    hoagiemom Member Posts: 87 Member
    #5
    Yes, I have a neuropathy after a year. I was also like you and didn't have during treatment but as soon as treatment was over I couldn't feel my feet or hands. It has gotten better and I'm taking my B vit.(they seem to help a little). I've come to the conculsion that I'm going to have to live with this. I really feel for you.
  • hannacat
    hannacat Member Posts: 101
    #6
    my neuropathy did'nt start until after treatment.My last chemo was in july of 2006. The hands are pretty good but sometimes the feet feel like my toes are in a web and the toes and soles are numb. I'm taking neurontin-maybe it would be worse without it. Anyway,right now i'm trying to garden and the numbness afects my balance and this is getting on my nerves. I hope you feel better.
  • vinny3
    vinny3 Member Posts: 928 Member
    #7
    I have some numbness yet about 18 months after treatment. Mainly the fingertips and for some reason my left ankle feels stiff. It doesn't affect running or use so I am thankful and can live with it. I take B6 100 mg twice a day now (was 3 times a day during treatment). I wasn't sure it helped but stopped it for 2 weeks of vacation and the neuropathy got worse at the end. I figure I can just keep taking the B6. I wouldn't suggest any of those meds such as Lyrica or Neurontin unless you are having pain. They will not help the numbness. I try to just consider it a reminder of where I've been and to be thankful for what I still have.

    ****
  • vinny3
    vinny3 Member Posts: 928 Member
    #8
    hannacat said:

    my neuropathy did'nt start until after treatment.My last chemo was in july of 2006. The hands are pretty good but sometimes the feet feel like my toes are in a web and the toes and soles are numb. I'm taking neurontin-maybe it would be worse without it. Anyway,right now i'm trying to garden and the numbness afects my balance and this is getting on my nerves. I hope you feel better.

    You might check with your physician again about the Neurontin. That can affect the balance but also make one feel tired. You could do a trial of slowly cutting the dose to see if there is any difference.

    ****

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