Neuropathy after treatment

betina61

I would like to know if any one of you have had the neuropthy last more than one year, mine started after I finish treatment and it have been one and a half year already is only numbness in my feet no pain, I am taking B12 but nothing have improved, I think that in my case is going to be permanent, the strange thing is that it didn't happened during treatment, at least I don't remember, any advice or sugestion will be apreciated,the Dr. prescribed me Lyrica but when I read the indications is more like for pain than the numbness, so I decided not to take it because I don't have pain.

apache4

I have been more then a year away from the Oxy and still have neuropathy in my feet. Just recently I have been able to go barefoot again without any pain, but I still have a wierd numbness. Since I am still on treatment (new one) I think that maybe that does not help. They feel really badly when I get Benadryl before infusion. I am asking for something else. I don't have real pain so I am thankful for that. I am with you and would not take anything for it...those side effects from some of the "extra" stuff scare me...

sladich

I still have neuropathy in my feet after over a year. It's not painful - just a nuisance.

Debbie

cjf2006

I have neuropathy still in hands and feet - worse in the feet. It is a numbness and prickly feeling. It is annoying, especially when I have to put on shoes. I can't stand anything pressing against my feet. At home I wear open toed sandals with socks. I was told to take B-12 and B-6 by my primary care physician. It has improved, but is probably permanent. My onc suggested Lyrica too, but when I read the side effects / risks, I said no way. Once you start on it you can't just quickly stop it.

hoagiemom

Yes, I have a neuropathy after a year. I was also like you and didn't have during treatment but as soon as treatment was over I couldn't feel my feet or hands. It has gotten better and I'm taking my B vit.(they seem to help a little). I've come to the conculsion that I'm going to have to live with this. I really feel for you.

hannacat

my neuropathy did'nt start until after treatment.My last chemo was in july of 2006. The hands are pretty good but sometimes the feet feel like my toes are in a web and the toes and soles are numb. I'm taking neurontin-maybe it would be worse without it. Anyway,right now i'm trying to garden and the numbness afects my balance and this is getting on my nerves. I hope you feel better.

vinny3

I have some numbness yet about 18 months after treatment. Mainly the fingertips and for some reason my left ankle feels stiff. It doesn't affect running or use so I am thankful and can live with it. I take B6 100 mg twice a day now (was 3 times a day during treatment). I wasn't sure it helped but stopped it for 2 weeks of vacation and the neuropathy got worse at the end. I figure I can just keep taking the B6. I wouldn't suggest any of those meds such as Lyrica or Neurontin unless you are having pain. They will not help the numbness. I try to just consider it a reminder of where I've been and to be thankful for what I still have.

****

vinny3

hannacat said:

my neuropathy did'nt start until after treatment.My last chemo was in july of 2006. The hands are pretty good but sometimes the feet feel like my toes are in a web and the toes and soles are numb. I'm taking neurontin-maybe it would be worse without it. Anyway,right now i'm trying to garden and the numbness afects my balance and this is getting on my nerves. I hope you feel better.

You might check with your physician again about the Neurontin. That can affect the balance but also make one feel tired. You could do a trial of slowly cutting the dose to see if there is any difference.

****