4th new treatment since oct 05

nicol06810
nicol06810 Member Posts: 18
edited March 2014 in Ovarian Cancer #1
Hi everyone...Well the results are in... My CA125 has gone up to 247 so I was started on Gemzar last week. I had my second treatment yesterday and other than feeling really tired and a little nausua I am handling it okay. I will be on this one until October. This is really getting old! I am starting to think that there will never be a remission to speak of. I had a 4 1/2 month remission after 6 cyles of Carboplatin and Taxotere. Then I was put on Topotecan but that stopped working 1/2 way through so I was put on Doxil. Wow did that do a number on me! Skin rashes from h---!!!!...Had 3 months off from that and am now on Gemzar. Was thinking about going back on the Carboplatin and Taxotere combo but my onc thought the Gemzar might work. Anybody try something else that worked really well for them? I know not everyone reacts the same way to the different chemos out there but at this point if the Gemzar doesn't work I'll try anything! This last year and half has made me realize how precious every day is and I am trying to make others understand how lucky they are and to appreciate each day that is given to them! (((Hugs))) to all my Chemo Warriors out there! Let's all continue to pray for each other (We need all the prayers we can get!!!!!)

Comments

  • groundeffect
    groundeffect Member Posts: 639 Member
    #2
    I'm going to go to bed soon, and will be sure to send a prayer your way. I have a friend in my support group who has had many different chemo treatments over the eight years she's been at it, and God love her, she seems to be more happy and positive than any of the rest of us! Keep your chin up, kid-I can tell you've got a great attitude that will carry you along, too!
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    #3
    Just to let you know this chemo warrior is here in MN praying for you. Prayers N Hugs Bonnie
  • floridajo
    floridajo Member Posts: 480
    #4
    Hi, Right now I'm on Gemzar and it's working for me. My last ca-125 was 17.9. I will be starting my 5th round this week upcoming. I have heard that Carbo, Taxol and Cisplantin can be added to the Gemzar if it doesn't work alone, so there's another choice that might help. Too bad the Doxil didn't help, I had 6 cycles and it gave me a 13 mnth remission. Which since 2004 is the longest remission for me. I'm praying that the Gemzar works for you, as it is really an easy chemo to tolerate..and that you get some kind of break here soon...(((hugz)))..Joanne
  • nicol06810
    nicol06810 Member Posts: 18
    #5
    groundeffect said:

    I'm going to go to bed soon, and will be sure to send a prayer your way. I have a friend in my support group who has had many different chemo treatments over the eight years she's been at it, and God love her, she seems to be more happy and positive than any of the rest of us! Keep your chin up, kid-I can tell you've got a great attitude that will carry you along, too!

    Thanks for all the prayers! So far I am feeling okay! I hope this one does the trick for a while!...Happy Memorial Day and Hugs to all!
  • nicol06810
    nicol06810 Member Posts: 18
    #6
    floridajo said:

    Hi, Right now I'm on Gemzar and it's working for me. My last ca-125 was 17.9. I will be starting my 5th round this week upcoming. I have heard that Carbo, Taxol and Cisplantin can be added to the Gemzar if it doesn't work alone, so there's another choice that might help. Too bad the Doxil didn't help, I had 6 cycles and it gave me a 13 mnth remission. Which since 2004 is the longest remission for me. I'm praying that the Gemzar works for you, as it is really an easy chemo to tolerate..and that you get some kind of break here soon...(((hugz)))..Joanne

    Wow...I would have loved a 13 month remission! The longest I've had is about 4 1/2 months!...At this point I'll take anything! So far I seem to be tolerating the Genzar okay but I have only had 2 treatments. (I am doing three weeks on and one week off) This has got to be better than Doxil! The doxil did a number on my skin...especially my feet!....Keep those numbers going down Joanne!...and thanks again for the prayers!...Hugs!
  • nicol06810
    nicol06810 Member Posts: 18
    #7
    BonnieR said:

    Just to let you know this chemo warrior is here in MN praying for you. Prayers N Hugs Bonnie

    Thanks Bonnie....Every little prayer helps! And I am sending some right back at ya!!!!
  • pholechek
    pholechek Member Posts: 5
    #8
    I just finished my third treatment...started with taxol/carboplatin in April of 2005 and then did Doxil summer of 2006. It did a number on me as well...skin rashes, mouth sores, etc., plus my CA 125 started going up a month after finishing. I just finished doing a round of chemo using just carboplatin without the taxol. In just two treatments my CA 125 fell from 114 to 14 so I was able to stop after 4 treatments. Plus the side effects were minimal. I will have to wait to see how long my CA 125 stays down to see if it has long term effects. Hopefully, it will. I know it might not work for everyone, but you could ask your doctor about it.
  • nicol06810
    nicol06810 Member Posts: 18
    #9
    pholechek said:

    I just finished my third treatment...started with taxol/carboplatin in April of 2005 and then did Doxil summer of 2006. It did a number on me as well...skin rashes, mouth sores, etc., plus my CA 125 started going up a month after finishing. I just finished doing a round of chemo using just carboplatin without the taxol. In just two treatments my CA 125 fell from 114 to 14 so I was able to stop after 4 treatments. Plus the side effects were minimal. I will have to wait to see how long my CA 125 stays down to see if it has long term effects. Hopefully, it will. I know it might not work for everyone, but you could ask your doctor about it.

    Thanks for the input...I might just have to check it out....I'll try anything if it will work...Just want a lengthy remission this time...3-4 months just doesn't cut it any more!...Thanks again!...((((Hugs))))
  • saundra
    saundra Member Posts: 1,370 Member
    #10
    Add another prayer warrior from TX to your support group. I am
    new and have only had three chemos and three to go before maybe I can have surgery. The experience of all of these ladies keep me
    going from day to day. I'll be grateful for any remission at this point.
  • JanQ
    JanQ Member Posts: 236
    #11
    I understand and you are in my prayers. I just had my third round of Doxil and so far side effects are minimal, I am hoping for that 13 month remission too. It does get old, I am having alot of swelling for some reason, but this weekend my family and I are heading for Indiana, I have 2 nieces graduating. I am excited to get away and be with family. Well take care and God Bless!

Discussion Boards