For Laurabell, MiraT, and niavas

mc2001
mc2001 Member Posts: 343
edited March 2014 in Leukemia #1
Hello guys and gals. I am also a leukemia survivor. I had a friend with AML-APL and he is doing well. I noticed you all had concerns over this form of leukemia, so I wanted give you the website address to my leukemia and lymphoma site I designed and periodically maintain. Here is the addy: http://www.geocities.com/leukemia_lymphoma/
Also, if you wish to compare my treatment for ALL to your treatment for AML or APL you can read my journal (short description of treatment)as well on my site: http://www.geocities.com/leukemia_lymphoma/my_story.htm
IF you have any questions about leukemia you are welcome to email me. Iwill try my best to help. Take care and God bless :-)
-Michael

Comments

  • Laurabell
    Laurabell Member Posts: 10
    #2
    thanks Michael for letting me know about your website. I am doing pretty good right now. I am having some annoying side effects from my maintenance therapy (it's called Atra) but I'm thankful for this drug anyways, I know it's doing something good! YOu have worked so hard on that website, there is lots of info. and links to sites. That is wonderful. Thanks again! Hope you are doing well:) Also, you said you had a friend with APL? If you don't mind me asking, how old and how long has he or she been in remission?? Just curious since the more people I know who are doing well, makes me even more hopeful! Thanks so much
    Laura
  • mc2001
    mc2001 Member Posts: 343
    #3
    Laurabell said:

    thanks Michael for letting me know about your website. I am doing pretty good right now. I am having some annoying side effects from my maintenance therapy (it's called Atra) but I'm thankful for this drug anyways, I know it's doing something good! YOu have worked so hard on that website, there is lots of info. and links to sites. That is wonderful. Thanks again! Hope you are doing well:) Also, you said you had a friend with APL? If you don't mind me asking, how old and how long has he or she been in remission?? Just curious since the more people I know who are doing well, makes me even more hopeful! Thanks so much
    Laura

    Hi Laura,
    Thank you for the kind words. My friend is doing very well. He had his own stems transplanted, and has remained in remission for over 8 years just like I have. I had no transplant. My treatment schedule is described on my website. I believe I provided the link to my treatment journal in my previous post? Here it is again: http://www.geocities.com/leukemia_lymphoma/my_story.htm
    if you have more comments or questions please feel free to ask. you may send me an email through this site also. Glad you are doing much better. Just remember, these things take time. Sounds like you are doing a great job at it! God bless.
    -Michael
  • nosnarf
    nosnarf Member Posts: 1
    #4
    Hello. My sister Kelley is 50 years old. She was told Dec 7th after thinking she had the flu, she has leukemia aml 4. I have never gone on line like this so I am not going on and on until I know someone is listening. It has been so hard.

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