looking for others with mets to the liver

desertdreamer
desertdreamer Member Posts: 12
edited March 2014 in Colorectal Cancer #1
I had squamous cell anal cancer which has twice metastasised to the liver. I am looking for others with this same scenario who might share with me their treatment. So far chemo and surgery has not cured me. I am told the treatment is basically trial and error with this type so I am looking for success stories to perhaps help me. Thank you

Comments

  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    #2
    Hello,

    In order to find others with similar experiences you may want to do a search of other members. You can do this by entering key words in the search bar at the top of the page. You may want to use words such as "anal" and "liver metastasis". When you get the results of your search you may want to then contact the members you find by the internal CSN email system to see if they want to share their experiences.

    I hope this information has been helpful.

    Take care and be well,

    Dana
    CSN Dana
  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    #3
    Hello,

    You may want to consider doing a member search to see if you can find others who have experienced this situation. You can do this by using the search bar at the top of the page. Use key words such and "anal liver metastasis." From there you can view other member's personal web pages. If you find someone you would like to contact, you can send them an email through the CSN internal email system.

    I hope this information has been helpful.

    Take care and be well,

    Dana
    CSN Dana
  • KKLoop
    KKLoop Member Posts: 73
    #4
    I am assuming that this is different from rectal cancer???????? My Mom is labeled colorectal. Let me know if I am on the same page with you, I have lots to say.
  • desertdreamer
    desertdreamer Member Posts: 12
    #5
    KKLoop said:

    I am assuming that this is different from rectal cancer???????? My Mom is labeled colorectal. Let me know if I am on the same page with you, I have lots to say.

    Hi, KKloop, yes rectal cancer is different from anal cancer. However, because anal cancer is so rare, it is treated as though it were rectal cancer because there is no standard treatment anal cancer. Please let me know what is happening with your mom. Hope to hear from you soon. You can reach me also at lovesarizona@att.net Sincerely, desertdreamer
  • Surviving101
    Surviving101 Member Posts: 1
    #6
    desertdreamer said:

    Hi, KKloop, yes rectal cancer is different from anal cancer. However, because anal cancer is so rare, it is treated as though it were rectal cancer because there is no standard treatment anal cancer. Please let me know what is happening with your mom. Hope to hear from you soon. You can reach me also at lovesarizona@att.net Sincerely, desertdreamer

    I too am a desert dreamer. Love it!! Had surgery for anal cancer and 50 radiation treatments, and chemo. 4 years of remission so far.
  • KimBlack
    KimBlack Member Posts: 1
    #7
    Surviving101 said:

    I too am a desert dreamer. Love it!! Had surgery for anal cancer and 50 radiation treatments, and chemo. 4 years of remission so far.

    My mother was diagnosed in June...We finished Chemo and Radiation...It was AWFUL...But, we made it through. I moved in, and am here for the Long haul. We thought we beat it, as the tumor and lymphs were clear. Now, there is mets to the liver. I am a nurse, and I am terrified. All I read says a lifespan of 1-5 years. I really would like to read survival stories, treatment options, stories. I feel like I am dying inside, my mom is my VERY BEST FRIEND....My personal email is KBlack1972@aol.com for ANY stories, suggestions...God Bless to ALL of you, I have been here to help my mother, and outsiders would NEVER know the side effects as possibly worse than the treatment...

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