Will this nightmare ever end???

hi judy,
sorry to hear of your trouble. first remain focused, you have come a long way with this. call the dr or get a second opinion. i had my resection done this past thursday 9/9 and i worry about it all the time. you must stay positive. we are all here for you all the time. may the lord give you strengh to get thru this
fed

Judy, I am so sorry to hear you are going through all this. My husband had a catheter in for nearly a year after his rectal cancer surgery. In his case it was his prostate that caused the problem, which is obviously not the case with you!! However, he had to have the catheter changed quite often as he got severe bladder spasms after a while. After all, the catheter is a foreign body in the bladder and is an irritation. That may be why you are getting the bleeding. Sediment and blood clots can form around the catheter tubing and cause blockage, which, as you experienced, is very painful. When I look back, my husband had more pain and complications from the catheter than he did from the rectal surgery and the follow up treatment (chemo/radiotherapy). Fortunately, as soon as he had prostate surgery and the catheter was removed, his problems went away.

As advised above, you must press the doctor for information. LIke, why is he not trying to see if the bladder can work by itself now? Maybe he has reason to believe it is too soon to try but if you were told this, I think you would feel better....just knowing. Also, make sure the catheter is changed regulary to cut down on infection . Best of luck.

My dearest Judy,

I'm so sorry sweetheart. I think of you often and hope things are going better for you. I know how scary inexplicable things going on in your body can be... But there is a cause and a solution and your doctor had better get to the bottom of it! Remember they did only open you up a few months ago and peeked in at all your internal organs, so try to stay calm and don't think about cancer (although, understandably, that's the first place your mind goes). I don't know if this will make you feel any better, but right after I was released from hospital following my APR I went downhill. I had awful cramps, diarrhea, vomiting, no appetite. My mother and I were scared to death, and having no experience with major surgery, I thought maybe this is the way things would be forever! This went off for about 2 weeks. During those two weeks, I saw my world-renowed surgeon twice who insisted that I "just didn't like my mother's cooking". It took a green growth on my stoma and a perceptive nurse three weeks post-op to realize that I had a bacterial infection! After two days on antibiotics, I turned the corner and began to heal. All this to say that I empathize with your panic and despair (and I haven't been through a quarter of what you have) but please don't give up. Take all your frustrations and demand that your doctors figure out what's going on. You have come so far and you are a true inspiration to us all. I can't even imagine the nightmare you have been through but I feel that you will be turning some corners soon. We are all thinking of you and demand that your doctor fix you up!

All my love,
Andrea

Hi Judy: I'm not that familiar with your etiology, but Andrea's situation is a good example; if you are not getting answers, get a second opinion. Often doctors seem to give as little information as possible; make a list, and pin him down. If that doesn't work, get another opinion.blood from anywhere is an indication all is not right. Bud.

Hey Judy,

I really feel for you, im sorry things are tough for you but you are a fighter and do manage to get through the hurdles. I really think you should see a doctor about the bleeding, be persistant. I think its better to find out what is going on.

Hang in there and I love what the 'wise man' spongebob quoted. It is so true

Belinda