Things Can Just Change from Day to Day

Unknown
edited March 2014 in Colorectal Cancer #1
While my overall news is still good based on two consecutive clean CAT and PET Scans done on Bert, a little fly has once again entered my ointment! Received a call yesterday from Dr. Lenz's office that they want Bert to do a colonoscopy. When we last saw Dr. Lenz to get the results of 3/16 PET Infusion with CAT overlay, you will recall all looked great and Doc continues to remain stumped as to why Bert's CEA fluctuates between 5.9 to 6.6 over a period of three months...up a little, down a little. I asked him at that time when he thought we should do a colonoscopy of Bert as it will have been a year in June. He said that probably not until he's done with chemo, as there really seemed to be no need. Well, it seems that another more scrutinized, if such a thing is possible, PET report was sent to Dr. Lenz (which he ordered) and there does seem to be some "slight suspecious something" in the sigmoid colon (remember, Bert's two tumors were in the cecum colon). Also, Bert's new CEA is now 8.2!!! To be on the safe side, we're off for the colonoscopy. I love this doctor. He is so on top of everything and just doens't leave anything to chance. While I am grateful for this outstanding care, I don't have to tell everybody on here that as usual, I am nervous. I don't think in any way, shape, or form that my life will ever be the same again. But the cup is half full in way you slice it :o) Scans remain clear and IF this should be anything, chances are it's very small (Dr. said it may even be some kind of minor infection...a possibility why the CEA is what it is) and nothing like the two "bastards" that were removed when this whole nightmare started and again, IF THIS IS SOMETHING, I am told no better place for it to be than contained in the colon. Let's hurry up and wait again. I hate this ride :o(

Hugs to all,
Monika

Comments

  • kerry
    kerry Member Posts: 1,313 Member
    Monika,

    You and Bert are in my prayers! It always warms my heart to read your tender caring for Bert at this difficult time. Bless you and Bert and the loving relationship you two have. Hang in there.

    Kerry
  • kerry said:

    Monika,

    You and Bert are in my prayers! It always warms my heart to read your tender caring for Bert at this difficult time. Bless you and Bert and the loving relationship you two have. Hang in there.

    Kerry

    Kerry, your sooooooooo right! I love that man (Bert) dearly. Always have (since I was 19), always will (hopefully many, many more years) and darn proud of it too and not ashamed one little bit to admit it.

    Monika, in L.A. who absolutely adores her husband of 29 years....and counting :o)
  • andreae
    andreae Member Posts: 236
    Hi Monika and Bert,

    Just wanted to let you know that I'm thinking of you both. I know it's no fun, but hang tight. An infection sounds right. Bert was admitted for an infection before Christmas, right. And an infection does cause rises in CEA. Know that my fingers are crossed and I'm sending out some big hugs to you both.

    Lots of love,
    Andrea
  • spongebob
    spongebob Member Posts: 2,565 Member
    Hang in there Monika. I know it's a Mr. Toad's wild ride, but just hang in there. Sounds like you've got a great doc.

    BTW, what are you doing in LA? Be sure to watch the Sharon Osbourne Show tomorrow...

    - Sponge
  • aspaysia
    aspaysia Member Posts: 250
    Monika, I have a team of suffocating specialists who won't let me breathe with all the test they do for the least little thing. I even had a bone scan because of some blood work they didn't like. Usually the shadows, blips, whatever disappear. Speculation runs to inflamation, fluid, blah, blah. Not to trivialize your concern about your husband but they could put your very own self under a microscope and find some anomalies. Everybody has them. Even the doctors.

    Aspaysia, who wants to be left alone but submits to all the probing for the sake of her worried family.
  • vanser
    vanser Member Posts: 100 Member
    aspaysia said:

    Monika, I have a team of suffocating specialists who won't let me breathe with all the test they do for the least little thing. I even had a bone scan because of some blood work they didn't like. Usually the shadows, blips, whatever disappear. Speculation runs to inflamation, fluid, blah, blah. Not to trivialize your concern about your husband but they could put your very own self under a microscope and find some anomalies. Everybody has them. Even the doctors.

    Aspaysia, who wants to be left alone but submits to all the probing for the sake of her worried family.

    Monika -
    I agree with the last posting. I guess part of getting through the disease is learning to cope with the terrible fear of recurrence. It is hard not to be a pessimist when you have already gone through surgery and treatment, but be thankful that the doctors are on top of things and are performing all of the appropriate follow-up tests.
    Good luck !
  • 2bhealed
    2bhealed Member Posts: 2,064 Member
    ((((((monika and bert)))))))

    Praying for an answer...clean scope...lowered CEA! Do I hear an AMEN!?

    peace, emily