Osteosarcoma

Hi there. My 12 yr old daughter was diag. with Osteosarcoma in May 2002. She also had limb salvage surgery in Oct.2002. She is currently in remission. This is Paige's 2nd cancer. She also had rhabdomyosarcoma when she was 3 (also in her leg) Please feel free to contact me at lilgirlie5396@hotmail.com

Hello prayermom, I was diagnosis with Osteosarcoma of the right pelvis in Oct 2001. I have gone through the chemo and the surgery. And it's hard at times. If you ever need to talk to someone, please feel free to contact me. I will be here for you. Feel free to write me at misti0220@netzero.com. You son is in my prayers.

mdw67 said:

Hello prayermom, I was diagnosis with Osteosarcoma of the right pelvis in Oct 2001. I have gone through the chemo and the surgery. And it's hard at times. If you ever need to talk to someone, please feel free to contact me. I will be here for you. Feel free to write me at misti0220@netzero.com. You son is in my prayers.

My son had an amputation of his right leg on May 12, 2003. His osteosarcoma was in his right iliac crest. He is learning to walk on a prosthesis. We have been through a great deal of suffering, but by the Grace of God we have our son. He is 16 years old. From Louisiana.
His web site is www.eschoolk8.com/Jacob.html
God Bless,
Mom

Hi PrayerMom. I am a 18 year old Osteosarcoma survivor. I was diagnosed when I was 15. The tumor was in my left leg abouve my knee. It had gone undetected for so long that it had spread to both of my lungs. I had 6 surgeries total. The doctors were able to save my leg. I went through 18 months of high dose chemo because I relapsed in my lungs while still on treatment. I would love to talk to your son or you. My email is Survivor31386@hotmail.com. Email me anytime.

Hi

I live in Jersey,Channel Islands.UK. My 17 yr old son was diagnosed with osteosarcoma 2 months ago and has just started the second chemo cycle out of six lasting 8 months. Each time we have to take him on a plane to a hospital in mainland UK and are there for 5 days. Me and my wife take this in turns. I know how you feel and understand how you life is normal one day and is completely turned upside down the next. It will never be the same for our son or ourselves. I would be interested to hear your experiences as I believe you are in the US.It will be interesting to compare treatments over there and in the UK
My son's tumour is just above his ankle and fortunately has not spread. He will have limb salvage surgery to remove part of the fibula bone and the tumour. The success of the operation depends on how much the chemo shrinks the tumour and it will be a tense time when the surgery happens as there is a scenario when he loses his foot. Since diagnoses I have spent days searching the net for information about this rare cancer and have bought books on the cancer and nutrition
I would be interested what you have found out about it, the causes and the treatment
I have quite a few word files with information which I have collected from various sources
I you give me your email address I can send you all these as attachments

Kind regards

Willy Nieuwburg
Island of Jersey ( UK )
Email: willy@newtelsurf.com

jannahoney said:

Hi Prayermom. I was 18 when I was diagnosed with osteosarcoma in my left tibia. I went through 6 surgeries on my leg and my doctor was able to save it. It was a very long road but now I've been cancer free for 10 years and you'd never know I had cancer unless you see the huge scars running up and down my shin. I don't even have a limp at all and I've had two healthy wonderful children since. You can email me anytime if you would like to know more about it. Good luck!

Dear jannahoney my daughter as just finished Chemo for Osteosarcoma she had most of her left tibia taken away,ans as a brace where we turn the screws each day, she does expereince terrible pain as one of the nerves is damaged, did you have anything like this ?

jmalone4kids said:

Hi, my name is Jennifer. I am an osteosarcoma survivor x's 3. I had a right leg amputation above the knee. I was diagnosed at age 13 again at 15 and AGAIN at 18.I am now 30 and almost 13 years cancer free! I would love to talk with you. I feel like God put me on this earth to help other people going through the same thing. My phone # is 615-216-6326 or my email is jmalone4kids@yahoo.com. I hope to speak with you soon.

Jennifer

Hello. My name is Monica. I was diagnosed with osteosarcoma at age 27. It was stage 1. I didn't have to go through chemo or radiation. I had surgery in November 2006. The tumor was removed, I had a full knee replacement, resection of veins, etc.. I also lost the nerves- I cannot lift my right foot up anymore. I have to wear an AFO-brace to help me walk without my foot dragging. I am thankful. I hope everyone is doing well.