thank you thalidomide

kimd
kimd Member Posts: 2
edited March 2014 in Multiple Myeloma #1
HELLO AGAIN, I WANT TO TELL EVERYONE THAT THALIDOMIDE SEEMS TO BE HELPING MY FATHER WONDERFULLY, HE IS FINALLY GETTING BACK TO BEING HIMSELF AFTER A HORRIBLE THREE MONTHS. HE DID VAD TWO CYCLES AND SPENT A GOOD MONTH AND A HALF IN THE HOSPITAL AND WAS TOTALLY A MESS, HE STARTED TAKING THALIDOMIDE ABOUT TWO MONTHS AGO AND HIS PROTEIN/CALCIUM? REDUCED TO HALF AND HE CURRENTLY HAS VERY FEW OR NO MYELOMA CELLS PRESENT IN HIS BODY, THERE IS A DOWN SIDE THOUGH, HE IS ON DIALYSIS 3X PER WEEK, THE KIDNEYS ARE FAILING DUE TO THE MM, BUT THEY ARE STILL THINKING THEY MAY PULL THROUGH.WE ARE HOPING AND PRAYING, EVERYONE DON'T GIVE UP, ASK FOR THE NEWEST TREATMENTS, VELCADE IS NOW APPROVED, THAT IS SUPPOSE TO BE GOOD TOO. A COULD SAY THAT I THOUGHT MY DAD WAS HELPLESS A MONTH AGO AND NOW HE IS GREAT.. KIMD

Comments

  • becca13
    becca13 Member Posts: 4
    #2
    Praise God! Im so happy to hear that your Dad is doing so well. I tried Thalidomide and it didn't do anything for me. Ended up having a donor BMT and still in the first 100 days of that. All seems to be going well though. Im 41 years old and was Dx'd at 38 yrs old. Glad to hear the great news about your Dad. Remember God Heals all who put their faith and trust in Him.
    Take care and God Bless,
    Becca
  • westlake
    westlake Member Posts: 1
    #3
    velcade vs. thalidomide going to Canada or can drugs be brought over? Est. cost would be $8K per month.
  • DrSteve
    DrSteve Member Posts: 8
    #4
    westlake said:

    velcade vs. thalidomide going to Canada or can drugs be brought over? Est. cost would be $8K per month.

    Westlake, See if you can get to a larger treatment center to get into the new revimid study. Revimid is the 2nd generation of thalidomide, and is free if you get into the program. I have been in it now for 2 months, and it is working better than the stem cell trans plant. The side effects are tolerable, so far, but you have to link it with dexamethasone. The steroid is not much fun, but then neither is the alternative(dying). Good luck. DrSteve
  • boss100
    boss100 Member Posts: 1
    #5
    westlake said:

    velcade vs. thalidomide going to Canada or can drugs be brought over? Est. cost would be $8K per month.

    what is the cost in usa of thalidomide. my wife recenty was dia. with myeloma. been hearing all kinds of cost. first time on this site
  • sylbates
    sylbates Member Posts: 8
    #6
    westlake said:

    velcade vs. thalidomide going to Canada or can drugs be brought over? Est. cost would be $8K per month.

    You don't have to pay $8000. My dad on Medicare only, couldn't afford $5K for Thalomid. Submitted all financial records to the manufacture, and received FREE Thalomid as long as he needs it. Unfortunately, we had to discontinue since it was having no effect on his cancer.
  • dmetz516
    dmetz516 Member Posts: 1
    #7
    Does your father continue to see progress with the thalidomide treatment. My great aunt is in her 3rd week of it..and I wanted to know what more you could tell me about your father's treatment progress. thanks..dmetz516
  • Unknown
    Unknown
    #8
    This comment has been removed by the Moderator

Discussion Boards