Symptoms after radical nephrectomy

roc1064
roc1064 Member Posts: 2 Member
in Kidney Cancer #1

Hi All, I'm new here, so still learning the ropes. I am 36 years old and had my left kidney and adrenal gland removed in October. The margins were clear and I understand that I am very fortunate in that regard. I have had follow up appointments with the urologist, and my first follow up CT is in two weeks, but I was not able to get an appointment with the nephrologist until March. For the most part I feel normal, although my energy level is still not what it was. I'm hoping that over time it will improve. Two things concerning me are that since my surgery my hands are often cold, and I now get dizzy when I stand up too quickly. I have never experienced these symptoms before. I have had blood work done for the endocrinologist and it does not appear to be related to adrenal or anemia. I guess what is frustrating is that I feel as if something is not right with my body, but I am not being heard. Has anyone else experienced this?

Comments

  • donna_lee
    donna_lee Member Posts: 1,051 Member
    #2

    It sounds like you are in a post-surgical stage…a slow-down of circulation to extremities. Hands, feet and head, and add going into winter, i.e. colder weather.

    Don't let your hands get cold-wear gloves or keep a blanket over your lap or shoulders while sitting. Before standing, make sure you have prepared to stand. Get your feet stable in the sitting position, focus your eyes on something ahead of you, and use your arms to steady yourself on the chair arm or table. Then rise without looking down at your feet.

    I'm now 81, had kidney out almost 19 years ago, along with other organs that were affected. I don't think there's anything wrong. Have your CT and ask the nephrologist when you see him/her.

    Good Luck, donna_lee

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