newly diagnosed lung cancer
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My mother was just diagnosed with Her2 positive Invasive moderately to poorly differentiated adenocarcinoma lung cancer. The other results from this first biopsy are still coming in. We have a petscan schedule and a bronchoscopy withing the next two weeks. She's 75 and also has heart failure and many more other health issues. I am trying to learn as fast as I can and am so lost. I am wondering if any treatments will be available for her due to her poor health. Any advice would be appreciated as I have already lost my father to cancer and my sister has also passed away so I am the sole caregiver to my sweet momma.
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I am very sorry for the loss of your father, but I'm glad that you still have your mother. I am 68 years old and I too have been diagnosed with a number of health issues. Presently, I am in hospital having procedures called thoracentesis. They are removing fluid from around my lungs that have been causing me severe problems with breathing. Yes, I have been dealing with lung cancer as well. Right now we are working with those issues that have been causing me the most problems at this time. I am very thankful for the love and support of my children. It truly means a lot to us seniors. Having my children show their love and support do encourage me to continue fighting to stay alive and to be as well as possible for me. That caused me to be strong. I feel that you effect similar upon your mother. Regardless of what she may be expected to go through with, be there to support and encourage her.
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Sorry you guys are going through this with so much loss already and this time of year. The heart failure is going to probably be the biggest hurdle. Many of the monoclonal antibodies are indeed contraindicated by heart failure. The go to treatments for her2 positive lung cancer are both monoclonal antibodies. Thereis an alternative in Poziotinib . Ask the oncologist about it. Other TKIs may be available via a clinical trial and that's also worth exploring with the oncologist as well. If her genetic testing comes back with any targetable mutations other treatments will also become available.
Cancer treatments keep advancing at a remarkable pace. This will be the 5th Christmas wasn't supposed to see after being diagnosed in July/August 2020 stage 4b
Good luck to you guys. Hopefully the genetic tests reveal something positive. And have the best christmas you can.
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I hope you get well enough to leave the hospital soon.
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Thanks! I went in this past Thursday and was supposed to be home the same day, but it seems that my doctor had additional plans. I'm okay with it and I'm sure that I won't be here long. I hadn't finished wrapping Christmas presents yet!🥲 MERRY CHRISTMAS EVERYONE!
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I am so sorry you are also dealing with other health issues in top of the cancer. Praying you start feeling better soon and stay strong!! Im trying to stay positive and keep her laughing and also supporting her as she breaks down in tears. I'm sure she's scared and I just wish I could help more. Thank you for your encouragement. Merry Christmas to you and your family!!
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Thank you so so much for your reply and advice on treatments. All these words are new for me so I will write them all down so that I can ask the oncologist at the next appointment! I feel like I have to learn a new medical language as I am sure all of you did as well in the beginning. I feel more hopeful that there may be something to help mom and praying that she stays strong. Merry Christmas to you!
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I left the hospital on Christmas Eve, just in time to finish wrapping presents. As of today, I am feeling so much better. Yes, stay positive! I am thankful for all those things that are still right and good about me, those things that are still working fine. Something I find funny when I look in the mirror is that my hair is
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My hair is starting to grow back, but I look like Bozo the clown. What happened to the hair in the center? LOL. Any how, I'm sure it will catch up with the rest in time. This new growth is silver. 🙂
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So good to hear. I spent christmas 2021 in the neurological ICU after suffering a seizure. Don't remember more than 5 minutes from that day.
When my hair grew back I looked like a skunk. The front was jet black like I was 18. The back half was pure white. After a while it went back to salt and pepper.
HHappy new year
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well I’m going for my petscan and bronchopsy/ biopsy next week, anxious as hell! 3.5 cm tumor with pleural tags in right lung. I’m only 59 and never smoked one cigarette in my life. My grandfather was diagnosed with lung cancer at 59 and dies at 60. My mom was diagnosed at 59 with lung cancer and died at 64. My little sister was diagnosed at 42 with breast cancer that turned into lung cancer and she died at 44. They all smoked so what the hell? So he’ll yes I’m anxious. Who knows though? Looking to talk to some people in here as I don’t have any, and I mean ,any support people. I’m in rural maine and it blows with no car Lol. I’ll be losing my mind until my diagnosis but should know all by 22nd or so. Scary stuff. Trying not to worry about stuff that is out of my control which is everything but my thoughts and actions. Just venting thanks Batman
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While no one can say for certain whether it’s cancer until the biopsy is done, I can tell you that treatments have come a long way in a very short time.
Your history, including the fact that you live in Maine, puts you at a higher risk for lung cancer. Unfortunately, even if you’ve never smoked, the fact that many of your loved ones have probably exposed you to significant secondhand smoke. Additionally, Maine has an elevated risk, with nearly 20% of lung cancer deaths caused by radon exposure. This exposure could have come from multiple places, such as your childhood home, places you’ve worked, or your current residence.
Pleural tags are generally benign, and even pleural thickening is more often associated with fibrosis or chronic inflammation from past lung injury. A 3.5 cm lesion, however, is concerning and likely the reason for the biopsy and PET scan. Make sure they perform a Rapid On-Site Evaluation (ROSE) of the biopsy. This will provide immediate results if it’s positive. Some facilities may require a cancer diagnosis before sending the tissue out for genomic testing. This testing is crucial for today’s cancer treatments. There are so many targeted treatments available now that weren’t available in the past.
I was diagnosed with stage 4B cancer 4 ½ years ago, and I am currently in full remission.
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Happy New Year to you as well! I hope that things are going well for you at this time. At this time I am having breathing issues even after thoracentesis. As you can imagine, this has truly been affecting my quality of life. Come the 17th of this month, I will have been away from chemo one month. My doctor and I will be discussing future treatment on the 13th of this month. Boy, do we need to talk!!! The past treatments are starting to seem more like trial and error as they seem to have taken a greater toll and negative decline on my physical well-being but have shown little help in treating the cancer. My faith in God keeps me hopeful and looking forward to something that works.
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You present a pretty dismal picture of your background with cancer. Diabetes is seen in both sides of my family; that is, on both my mother's and my father's side. Three of my siblings have diabetes and one of my three children. Another of my children has hypoglycemia. I am 68 and both parents are deceased and so far, I do not have diabetes. I say this to remind you that even though we may be genetically the same or a like in ways, we are still also genetically engineered differently in ways and that some of those differences may be what protects us while others succumb to certain diseases, illnesses, and sicknesses. I have been told that I have stage 4 lung cancer, and cancer has existed before in my family, but I'm not letting that determine what happens to me and my experience with cancer would be different. I may even beat it! I hope that you are hopeful because I believe that you may beat yours as well.
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hello all went for my pet scan today I have a 3.7 cm lung tumor with suv of 12.2 , hilar node suv of 5.4 and posterior hilar node of 3.4. A little further along than I would like,not sure what stage or kind yet, got my bronchoscopy biopsy on Friday. Kind of bummed out hoping it might have been something else but you get what you get. I don’t even want to go for my biopsy. I wish they could just do it through my chest rather than be knocked out. I don’t know if I’m complaining or venting too early to tell lol. I’ll be back for sure after I get the biopsy results. This waiting is giving me massive anxiety . Thanks for listening Batman
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You already know the findings are concerning, and it’s natural to feel anxious. The size and activity of the tumor do raise suspicion for cancer, but it’s important to remember that rare non-cancerous conditions can also cause high SUV levels like this.
As for the lymph nodes, they could be reactive—meaning they’re responding to inflammation or the tumor itself rather than being cancerous. Reactive lymph nodes are quite common, even in the presence of a malignancy.
The biopsy on Friday is a key step to clarify everything. Hopefully, they’ll perform a Rapid On-Site Evaluation (ROSE) during the biopsy. If the results show malignancy, they can immediately send the sample for genetic testing and order a brain MRI to complete the staging workup.
It’s okay to prepare yourself, but you won’t have the full picture until the biopsy results come back. Oh how we all know the dread of the waiting. But we can only take it OnDayAtATime.
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Thanks for the words of encouragement. I live in rural maine so I don’t know if they have the rosé technology up here, but I will ask. As I had said before my mom and my grandfather were both diagnosed with lung cancer at 59 and I will be 60 next month so I’m just being realistic. But then again you never know. You sound very knowledgeable and after .I get my results I would be interested in your input thanks again Batman
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