newly diagnosed lung cancer

2

Comments

  • justawmn
    justawmn Member Posts: 13 Member

    hi. i want to wish everyone a very Happy Thanksgiving. Hang in there. This site is a blessing for me.

  • eDivebuddy
    eDivebuddy Member Posts: 38 Member

    Happy Thanksgiving to you aa well. This is my 5th with stage 4 lung cancer.

  • lwhite
    lwhite Member Posts: 2 Member

    Happy Thanksgiving to everyone & their families.

  • justawmn
    justawmn Member Posts: 13 Member
  • BrendaHenry
    BrendaHenry Member Posts: 15 Member

    Sorry I missed Thanksgiving greetings. I went to my daughter's for dinner and had a nice time. I couldn't taste the food because my taste buds are gone right now, but I ate it anyway! 😆 I've been very weak the past few days. Today I left the oxygen at home and went for a short drive to the store. Being out and receiving natural air was beneficial. I took things slow and enjoyed being out. Does anyone know what can be done about this low energy level? I'm taking b vitamins and a multivitamin, but I don't know what else to do. I'm supposed to be exercising. For me that means walking, but I don't have the breath or the strength to do much of that. Oh well.. I'm still hanging in there and I'm still moving about. I'm still alive.

  • eDivebuddy
    eDivebuddy Member Posts: 38 Member

    Glad you enjoyed Thanksgiving. Sorry you're feeling fatigued. I've been at this immunotherapy for years and am still fatigued. I do not need oxygen though. I push through it and try to keep as active as I can. Right now I'm rebuilding part of my deck. Before that stairs leading to it. Exercise a balanced diet and plenty of fluids. I know it sounds cliche, but it truly helps.

    Also do not leave the oxygen at home. Low oxygen levels are going to make you feel fatigued quicker than anything else . Can you get away with an oxygen concentrator? They have some really small ones now to help with mobility.

  • BrendaHenry
    BrendaHenry Member Posts: 15 Member

    Thank youThank you so much! Reading about your activities encourages me to be a little more active than I have been. I will drink more and more fluids. 🙂

  • eDivebuddy
    eDivebuddy Member Posts: 38 Member

    Here's a picture of the stairs. Not the smallest of projects

    You can get back to doing what you once did. It may take you longer but perseverance pays off.

  • justawmn
    justawmn Member Posts: 13 Member

    today i go for my radiation tattoo. will probably start treatment next week. i am not a candidate for surgery due to the condition of my lungs. i’m not sure what to think about that

  • eDivebuddy
    eDivebuddy Member Posts: 38 Member

    Surgery has the best possibility of removing the cancer, it may remove lung capacity not currently impaired by any preexisting lung conditions. radiation doesn't remove tissue and can targeted a much smaller area. This can spare functional lung cells. Radiation can be very effective at achieving local control of the cancer. When used in conjunction With systemic treatments the success rate can be very high.

    Good luck to you. Get lots of rest, stay hydrated and eat as well as you can.Plenrty of calories and protein . https://www.cancer.org/cancer/survivorship/coping/nutrition/once-treatment-starts.html

    If you need lotion make sure it doesn't contain lanolin. It can make radiation less effective and may also make the skin more sensitive To the radiation increasing discomfort.

  • BrendaHenry
    BrendaHenry Member Posts: 15 Member

    You're right about the oxygen. I should have it with me always.. even if for just in case. I'm just trying to appreciate and get some natural air. My pulmonologist knows that I take myself off the oxygen once in awhile for the reason I just gave. He told me to make sure that I use it at night when going to bed. Believe me, I do enjoy breathing! 🙃

  • eDivebuddy
    eDivebuddy Member Posts: 38 Member

    Don't have to use it all the time. Just any time you're going to be physically active. Hsve you thought about a continuous o2 meter. You can get one and have it alarm when your o2 gets low.

    They have watches and rings that can let you be active and aware of your oxygen levels at all times.

    The LOOKEE Ring Continuous Pulse Oximeter is the smallest I've seen with continuous readings and an alarm.

    My watch only takes it on demand and when I sleep.

  • BrendaHenry
    BrendaHenry Member Posts: 15 Member

    Thanks for the new ideas!

  • justawmn
    justawmn Member Posts: 13 Member

    hi. you are always a great source for information. i’ve been thinking about my eating habits. i really need to start eating healthier. it’s difficult to find quick easy meals that are healthy for one or two people

    the surgeon said if he removed the lower lobe of my left lung i would be on oxygen for life so it’s not an option. actually i think everyone should be given a choice between surgery and radiation if the cancer they have csn be successful with either option.

  • eDivebuddy
    eDivebuddy Member Posts: 38 Member

    SBRT should be offered for those unable or unwilling to have surgery. They might highly recommend against forgoing surgery if able but circumstances are different for everyone. Surgery is going to be the best chance for a cure for a bit longer. But radiation can and does achieve excellent results especially when paired with systemic treatments.

  • BrendaHenry
    BrendaHenry Member Posts: 15 Member

    Surgery is not an option for me. SBRT is definitely something I'd like to speak to my oncologist about with regard to my treatments. Thank you for sharing these ideas!

  • BrendaHenry
    BrendaHenry Member Posts: 15 Member

    I most certainly like having options to choose from. I was put on oxygen after about with pneumonia in the hospital. I have been on it for five months now. I think my pulmonologist decided that it would be a good idea to leave me on it for a while because I also have the cancer and bronchitis at the same time. The oxygen helps me to breathe better, but there are times when I don't need it as much. I understand that oxygen is needed for all of the cells of the body, so I don't play around with it. I do hope that you will be given choices and that you will make the best choice for you and your body. Be well, in jesus's name! Amen.

  • OneDayAtATimexxx111
    OneDayAtATimexxx111 Member Posts: 1 *

    hi there I just found out I have lung cancer also. I go for a bronchoscopy/ biopsy 11/17 so I’m right there with you. My tumor is 3.5 cm or more. No we’re not dying we’re going to fight like hell. I watched my little sister and my mom face cancer with courage and dignity and I am going to try to honor them by hanging tough. Ps I never even smoked a single cigarette in my life, mine is hereditary . I also don’t have anyone to go through this with, so I’ll be leaning on people in here. Just remember somebody always has it worse than us. Try and have a good day one day at a time!

  • eDivebuddy
    eDivebuddy Member Posts: 38 Member

    Sorry you've had to join us. Since you said it's hereditary they've already done genetic testing and have a treatment plan? If not it's the single most important part of treatment. Today's treatments are based on your individual cancer and are so much more advanced than years past. No reason you can't enjoy years to come.

    Going through this without a significant support network available can be so challenging. You can connect with a patient navigator at your cancer center to help find what's available locally. The American Cancer Society also has plenty that may be available depending on your location. https://www.cancer.org/support-programs-and-services.html